FionaRobinsonPhD (@frobinsonphd) 's Twitter Profile
FionaRobinsonPhD

@frobinsonphd

Consultant, medical writing and editing.
Passionate about empowerment through knowledge.

ID: 1493600221384880141

calendar_today15-02-2022 14:57:55

479 Tweet

155 Followers

263 Following

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What if people with #VWD had a say in #ClinicalTrial outcomes? How could they agree which outcomes to recommend? In the June 4 National Bleeding Disorders Foundation Wednesday Webinar Mark Skinnier, Elizabeth Clearfield, Baiba M. Ziemele, and Dr Paula James will explain how coreVWD did exactly this!

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TODAY! Hear from medical and lived experience experts about people with VWD reshaping research and care. Pre-register (free): bleeding.org/events #VWD #LivedExperienceExpertt #ClinicalTrial #PatientCentered #Outcomes

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In next week's National Bleeding Disorders Foundation Wednesday Webinar we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts. Bring your questions for the live Q&A and don't forget to pre-register! July 16 2PM ET

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Can #BleedingDisorders research benefit #children? What kind of research is being done? Are there special considerations for research with youth? Join me on Wednesday and ask the experts your questions about bleeding disorders research in children and adolescents!

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For decades living with #hemophilia meant IV infusions for many people, but now some treatments are given by subcutaneous injection. In tomorrow's National Bleeding Disorders Foundation Wednesday Webinar Akshat Jain MD MPH FRCP will tell us all about one of these! July 23 2PM ET Pre-register (free) below:

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With so many treatment products available now, do you know all of them? In next week's National Bleeding Disorders Foundation Wednesday Webinar we'll hear all about HEMA Biologics #treatment option for the #hemophilia community from one of the very best medical educators: Dr Tami Chrisentery-Singleton

Hemostasis and Thrombosis Research Society (@htrstoday) 's Twitter Profile Photo

Don't miss your chance to apply for the SEARCH Workshop— explore career opportunities in biomedical research, engage with experts, network with like-minded peers! Only 7 days remain to apply! Apply by August 1, 2025: htrs.smapply.org/prog/2025_sear…

Don't miss your chance to apply for the SEARCH Workshop— explore career opportunities in biomedical research, engage with experts, network with like-minded peers! Only 7 days remain to apply!

Apply by August 1, 2025: htrs.smapply.org/prog/2025_sear…
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TODAY 2PM ET! Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about HEMA Biologics #treatment option for #hemophilia A and B with #inhibitors in the National Bleeding Disorders Foundation Wednesday Webinar. Bring your questions for the live Q&A!

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Why do some people with severe hemophilia A develop inhibitors and not others? In the next National Bleeding Disorders Foundation Wednesday Webinar lived experience and medical experts explain research into this question and the My Life, Our Future genetic database Aug 13 2PM Bleeding.org/Events

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TODAY 2PM ET! In the National Bleeding Disorders Foundation Wednesday Webinar we learn from medical research and lived experience experts about research into why some people with severe hemophilia A develop inhibitors, and others do not. Bring your questions for the live Q&A!

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TODAY!! Come learn with me about a treatment option for people with hemophilia A or B and inhibitors with the always engaging Dr Guy Young ! 2PM ET, pre-register (free) below.

EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

In Europe, #Emicizumab is approved for routine #prophylaxis in #haemophilia A with factor VIII #inhibitors, severe haemophilia A, and moderate haemophilia A with severe bleeding. Learn more with #EHCucate 👉 academy.ehc.eu/topics/nfrt/em…

In Europe, #Emicizumab is approved for routine #prophylaxis in #haemophilia A with factor VIII #inhibitors, severe haemophilia A, and moderate haemophilia A with severe bleeding.

Learn more with #EHCucate 👉 academy.ehc.eu/topics/nfrt/em…
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Big changes are coming to insurance plans. In next week's National Bleeding Disorders Foundation Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment. 2PM ET, Oct 1 Don't miss the live Q&A

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Join me for a unique opportunity to learn from medical and lived experience experts about The Odyssey of Factor X: Voices, Symptoms, and the Evolution of Care, in this National Bleeding Disorders Foundation Wednesday Webinar, sponsored by Kedrion Biopharma - USA #FactorX #Ultrarare #BleedingDisorder

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TODAY 2PM ET Don't miss this rare opportunity to learn about an ultra-rare bleeding disorder from lived experience and medical experts!

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Access to care too often depends on who you are or where you live Wed, Nov 5, 2PM ET The National Bleeding Disorders Foundation Hemostasis and Thrombosis Research Society Research Journal Club will discuss these challenges with health access, clinical care, and lived experience experts. Pre-register (free): bleeding.org/events