🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Over 300 million people globally living with a rare disease, we join hands across borders & amidst the 6000+ rare diseases to advocate for access to diagnosis, treatment, care, & social opportunities. The key message for Rare Disease Day 2025 is "More than you can imagine!"

Nathasha is presently working on her master's dissertation, which is a project titled 'What do you think about hearing aids?' Please see her story and research project on the link below and share any thoughts you may have to help! Thank you ow.ly/jmBb50V66hr

Please register to save your space at the FX Conference:- ow.ly/XH0P50ULLGM

We're excited to see some great candidates applying for our contract position in Scotland! If you're interested in joining us, we'd love to hear from you. Please send your CV to [email protected] Check out more details here: ow.ly/jEoQ50VaWmC

Children with FXS can find it difficult to manage & react appropriately to information coming via their senses. Do you have any questions or experiences to share? Contact Alison at [email protected] or check out more information here: fragilex.org.uk/single-post/se…

Come join us on 22nd March 2025 for a day filled with support & information for families affected by Fragile X Syndrome. We have exciting speakers planned so don't miss this opportunity. Register Here for your FREE TICKET! eventbrite.co.uk/e/fragile-x-sy…

MathMIND is a study on Mathematical Inclusion for children with Fragile X aged between 4 – 9. Interested in taking part? The team have produced a video to introduce themselves:- vimeo.com/1001119097 Please contact [email protected] with any questions or to take part.

Patrick Wild Centre are looking for FX volunteers(aged 3-45) Their study is sensitivity to touch. This brief video provides a clear overview of what takes place during the meeting. Want to find out more? Contact [email protected] or sign up here: outlook.office365.com/book/TouchFXS@…

Join us for a day filled with support & information for families affected by Fragile X Syndrome. We have exciting speakers planned so don't miss this opportunity to bond with other families & learn more about Fragile X Syndrome. Register for FREE Here! eventbrite.co.uk/e/fragile-x-sy…

Register now for the FX Conference. We have exciting speakers planned so don't miss this opportunity to bond with other families & learn more about Fragile X Syndrome. Register Here for FREE! ow.ly/oJnj50Vgkb5

We're excited to see some great candidates applying for our contract position in Scotland! If you're interested in joining us, we'd love to hear from you. Please send your CV to [email protected] Check out more details here: ow.ly/tVj250VaWmy

Come join us on 22nd March 2025 for a day filled with support & information for families affected by Fragile X Syndrome. Connect with other families facing similar challenges & share experiences. We have exciting speakers planned. Register Here for FREE! ow.ly/4k5U50VhcfU

Just 2 days left until the Edinburgh conference! Can't wait to see and meet you all! 😊

We are delighted to share that the Patrick Wild Centre are launching their 1st webinar series for this year on Gene Therapy with Dr Ralph Hector, Senior Research Fellow, at SIDB on 29/04/25 at 8:00 PM - 9:30 PM. Please sign up using the following link events.teams.microsoft.com/event/47c6965d…

We are joining Sibs on Thursday 10th April to recognise and celebrate the siblings. NationalSiblingsDay2025, they play a valuable role in their unique relationships. Share your stories, pictures, drawings & poems sibs.org.uk/nsd

Interested in taking part? The team have produced a video to introduce themselves:- vimeo.com/1001119097 There is an info sheet with more details at:- oxfordxpsy.az1.qualtrics.com/jfe/form/SV_0e….

The FXS resources can be found on our website at fragilex.org.uk/resources

Be sure to check out the FX Shop for all your FX merchandise needs at ow.ly/gzQl50VxgEA