Universal Health Coverage is only truly universal if it also addresses the needs of people living with a rare disease. Advocate for #UHC4RareDiseases Use the toolkit to spread the word! #HealthForAll #UHC2030 EURORDIS-Rare Diseases Europe @rarediseasesint rarediseasesinternational.org/uhc4rarediseas…

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The value of real debate is that it enables business leaders such as this man to get all the facts before they decide... tough, but too late to change one's mind just now...

📢 NEW! The official #RareDiseaseDay video is out NOW 🎉Watch the 6 real life stories and be inspired to join the 2021 campaign. 👥 Share this post with your followers using this hashtag #RareDiseaseDay

WHO's Rudiger Krech calls for Global Centres of Excellence/Expertise, following MOU between World Health Organization (WHO) & @rarediseasesint at #WODCUSA World Orphan Drug Congress USA

I couldn’t agree more that this is one of the most beautiful and moving pictures ever. You are a true champion and role model, Carson Pickett! x.com/wolfganghofer6…

Il valore di un sorriso “Con David Sassoli l'Europa e l'Italia perdono un uomo delle istituzioni di primario livello, credeva nella politica nella sua accezione più nobile, in un'Europa baluardo dei diritti e delle opportunità” sempre con il sorriso RIP President Roberta Metsola

📢Register Today. Join the global rare disease community in celebration on #RareDiseaseDay ONLINE and at #Expo2020 : bit.ly/35QhD0X Yann Le Cam Ritu Jain Kelly du Plessis Rare Disease Day RarasNoInvisibles National Organization for Rare Disorders (NORD) AFM-Téléthon Alliance maladies rares

Join us at #HLPF 2022! United Nations 👉bit.ly/3xNuOKh 6 July I will be closing our Formal Side Event on addressing the Challenges of PLWRD as a #Gender Equality, Human Rights, and #Equity priority ❗PLWRD deserve recognition within the UN Agenda! #SDGs FEDER | Enfermedades Raras IPOPI @RDI

.CORD and @rarediseasesint stand with the global rare disease community at #HLPF. I will deliver Key Messages to #rarediseases community at the Formal Side-Event on #gender and #rarediseases 👉 6 July 2022, ONLINE bit.ly/3xNuOKh

#WorldOrphanUSA Durhane Durhane Wong-Rieger @rarediseasesint calls for #PPPP Patient-Public-Private Partnership during keynote World Orphan Drug Congress USA. Recognize #patient partnership in the ecosystem!

Build Back Smarter after COVID @rarediseasesint Durhane Wong-Rieger

#WorldOrphanUSA Advocacy track, FlaminiaRDI explains the language of #UN Resolution to address challenges of #PLWRD and families. #UHC #HealthForAll

Listening to Nick Sireau explaining about the importance of collaboration between Doctors, patients and companies as a model of successful drug development World Orphan Drug Congress USA

RDI has a booth World Orphan Drug Congress USA Mary Wang

Warmest congratulations to #Rwanda on its  selection to host the African Medicines Agency (AMA). I am very confident that #AMA will soon be fully operational under the leadership of Paul Kagame, w/ support of all AU Moussa Faki Mahamat member states and key partners.Louise Mushikiwabo

Félicitations au Rwanda d'avoir été choisi pour abriter le siège de l'Agence africaine du médicament. Je suis convaincu que l'AMA sera bientôt opérationnelle sous le leadership du Paul Kagame, avec le soutien de tous les États membres de l'#UA & partenaires-clés Moussa Faki Mahamat

being able to code #rarediseases in systems is fundamental to recognising existence of persons living with rare disease. #Visibility #PWLRD

URGENT MESSAGE to our A NEG, B NEG & O NEG BLOOD DONORS. Our supplies are very low & we are experiencing high demand from our hospitals. If you are one of these blood groups & receive a text please make every effort to make an appointment to donate ❤️🩸❤️ #WeCountOnYou #ThankYou