Happy birthday, Augie! We love you!

Augie was my leader, mentor, and friend. He changed so many lives - including mine - profoundly. He remains my inspiration. Through lessons learned from him, he still leads the way.

Here, I had a chance to talk a little bit about how Google Cloud and their Looker platform are helping to power the next evolution of our PMP ALS Natural History Study - the ARC Data Commons.

ALS TDI is thrilled to announce the launch of the ALS Research Collaborative (ARC) – an ambitious global initiative developed to significantly accelerate the discovery of ALS treatments. Learn about how you can be a part of ARC at als.net/news/als-tdi-u… #ARC #ALSresearch #EndALS

Today represents a significant advancement in our dedication to people living with amyotrophic lateral sclerosis (#ALS). Learn more about the U.S. FDA’s approval of our treatment for SOD1-ALS, a rare genetic form of the disease:

New Research: Reduced C9orf72 expression exacerbates polyGR toxicity in patient iPSC-derived motor neurons and a Type I protein arginine methyltransferase inhibitor reduces that toxicity: Introduction Intronic repeat expansions in the… #neuroscience frontiersin.org/articles/10.33…

We are so excited for the 3rd Annual MLB-wide Lou Gehrig Day tomorrow! In honor of the day, we made some limited-edition Team ALS TDI baseball cards. Meet some of your team working to #EndALS by flipping through the pack! #LG4Day #TeamALSTDI

****ALS RESEARCHERS*** >If you are interested in presenting an abstract @ our 6th Annual #ALSResearchSymposium on Day 2, 11/17/23 about an #ALS treatment that you or your company has in dev, pls email [email protected] by 8/31 for consideration. alsoneresearchsymposium.org #ENDALS

Study by ALS TDI and MGH Reveals New Potential for Use of Accelerometers In Tracking ALS Disease Progression. These promising findings could have significant implications for the use of accelerometers as outcome measures in ALS clinical trials. nature.com/articles/s4146…

Mike Shannon and his wife, Jan, are hitting the road for Ales for ALS. Stay tuned for updates as they travel across the country in their Ales for ALS RV. Have a favorite brewery who may wish to join our program in 2024? Let us know in the comments!

To all of our Las Vegas friends! Join Ales for ALS at HUDL Brewing Company for the kick-off of the Ales for ALS Roadtrip Across America this Monday 11/13!

It’s time! We are thrilled to officially announce the Ales for ALS Roadtrip Across America, and to FINALLY show off the Ales for ALS RV that has hit the road with National Director of the Ales for ALS program, Mike Shannon. als.net/news/announcin…

This is beautiful work executed at scale. Lots to build on here. ALS TDI team came back from the ALS/MND symposium excited to do just that!

We’re grateful to Pitt Basketball and Duke Men’s Basketball for shining a light on our efforts. Looking forward to Saturday’s Hoops4ALS game in Cameron Indoor Stadium at 8pm EST. ALS TDI #als #hoops4als #H2P #alsawareness #alsadvocacy

The RV is parked for a week while Mike, Jan, and the dogs relax on the beach in Crystal Coast, NC! Even with this view, they're stepping out to meet new friends and introduce breweries to the program. Excited to say that Shortway Brewing Co. is joining Ales for ALS in 2024!

#Together

Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!

In response to Conan O'Brien’s desire to speed research for ALS at ALS TDI, an anonymous donor has pledged to match all donations made up to $25,000, in response to his wonderful tweet! als.net/donate/?soc=co…