Season 4 of #VirginRiver talks about #HD. Danny confesses to Lizzie why, even though he loves her, he can't be in a relationship with her: "I don't have a future, I have #huntingtondisease. It's not curable." We have to wait for Season 5 to learn how the theme will be developed.

Organizzazioni discutibili che sotto elezioni promuovono iniziative su malattie rare al fine di fare subdola propaganda politica attraverso una comunicazione ambigua e autoreferenziale: come se chiunque dovesse accettare inviti di chi millanta per essere sul carro dei “sensibili”

Good news! We are please that the #SelectHD clinical study by Wave Life Sciences has started also in Italy! First Italian site actively recruiting is CRC Verona. IRCCS Casa Sollievo della Sofferenza will follow shortly. Learn more bit.ly/3eH4yeU Ferdinando Squitieri

Huntington disease is definitely a systemic illness and studying the pediatric variant opens new avenues to learn more - here we took home another piece of the puzzle authors.elsevier.com/a/1fjiy_Uo2et9…

Grazie all'Ospedale Pediatrico Gianna Gaslini per l'interesse a conoscere meglio la #malattiadihuntington nei #bambini - bit.ly/3R8ORKQ Con Ferdinando Squitieri

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Huntington disease Economic burden now published for Europe and USA. It was impressive that we have contributed with 492 participants from Italy exactly like all the USA (n=492 as well) - total number n=2094 linkedin.com/posts/activity…

LIRH Foundation annual conference to update HD families of new experimental therapies had >200 participants, excellent speakers from Wave, PTC, UniQure, SOMbio, Prilenia and is the only event delivering real time news on therapies in Italy. Proud to be part of it

⭐️Wow! November has been another great month for HDClarity⭐️ ⭐️In total, our clinical sites have conducted 14 successful lumbar punctures. This is the second highest monthly total in 2022!⭐️ ⭐️Our total for 2022 now stands at 101 Sampling/RPT Sampling visit⭐️

Se sei un #medico specialista in #neurologia, in #psichiatria o in #genetica, uno #psicologo/a o un #biologo/a con interesse per la #ricercaclinica nelle #malattieneurodegenetive come #huntington, invia il tuo CV: bit.ly/3T9RIWv Ferdinando Squitieri

Learn about JOIN-HD at hdyo.org

youtube.com/watch?v=1BcM-i… Today is the last day of the #HDAwarenessMonth. Participation in #clinicaltrials can make the difference to find a #cure for #huntington's bit.ly/3MLeQb9 Prilenia Ferdinando Squitieri @Srotberg15 HDYO EHDN News EHDN Collaborations EURORDIS-Rare Diseases Europe

Proud to share our last publication in the Lancet journal eBioMedicine on paediatric Huntington disease authors.elsevier.com/sd/article/S23…

#Glucose transporters (#GLUT1 and #GLUT3) reveal to play pivotal roles in pediatric #huntingtondisease. We definitely need to disentangle their pathogenic mechanisms now. #bioinformatics #genetics

Important findings from an #Italian study conducted with the contribution of #LIRH about #prediction of #HD severity thanks to a new #cognitive assessment #huntingtondisease #reserach EHDN News HDYO UCL Huntington’s Disease Centre Ferdinando Squitieri

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Ten years to LIRH Foundation, the largest Huntington disease organization in Italy combining advocacy, research and care. Proud to be part of it

The LIRH Foundation #HDnetwork keeps growing - A couple of weeks ago LIRH Umbria Association was founded, adding itself to LIRH Toscana, LIRH Puglia, LIRH Sardegna, LIRH Friuli Venezia Giulia and NOI Huntington, the Italian HD Youth Network! #huntingtondisease #retehuntington

Children who live in a Huntington Disease family may experience traumas with consequences in adulthood - evidence of an environmental factor affecting QoL journals.sagepub.com/eprint/J78ZRBI…

Great event today in Rome with the first race to race awareness about Huntington disease in the beautiful villa borghese ⁦Roma Capitale News⁩ ⁦Fondazione LIRH⁩ linkedin.com/posts/ferdinan…