I have returned from my return neuro appointment with a list of treatments to choose from. Oh and that back pain I’ve been ‘whinging’ about for over a year? Guess where the two new lesions are? That’s right my spine 🙄

Okay had a couple of days to think and I’m no further forward in making a decision. Choices are: Ocrevus, Kesimpta or Mavenclad. Neuro thot Mav a good option as at my age, ahem, the cycle of hormones coming to an end may make it a good option. I don’t just want good, thots? 🤷🏻‍♀️

I had my full panel of bloods taken at hospital before I commit to a drug. I had a big story about how they struggle to get blood etc. when I saw all the vials I thought that’s not happening. Small needle, 1st attempt not even a bruise. Amazing 🤩

I am no further forward in my decision to make a new dmt choice. I’ve been down the rabbit hole and it’s making things worse. I’m really unsure how leaving people to research things themselves is the best strategy 🤔

It’s been a difficult choice but I’ve opted for Kesimpta. I spoke with a different MS nurse and she managed to get me over the line with a chat. Kesimpta club it is! 🤯

It’s one of those days! I have dropped nearly everything I have touched and bumped into countless doors and walls. I’ve even managed to smash a plate 🥴

First dose of Kesimpta taken yesterday. I thought I was cruising then I got to the 6hr post dose, oh lord it hit me like a brick wall. Aches and pains, chills, itchy throat which continued into the night. Took drugs and tried to sleep. Today is a recovery day ❤️‍🩹

It was second dose Kesimpta yesterday. Did it before bed, 2 paracetamol (tylenol) and slept through. Feeling okay today so seems like the way forward from now on 👍🏻

Woke up today with numb feet and permanent cramp in my calves. Walking is going to be fun today 🥴

I wrote to my MP about benefit reform. The reply is below. Not one mention of the trauma and humiliation that comes from the process was addressed from my letter 🙄 Dr Jay Watts

🧵 NEW: APPG on Poverty and Inequality's response to the Pathways to Work Green Paper reveals SHOCKING evidence - disabled households face £1,067 extra costs monthly (67% of income) yet government plans devastating cuts that will push 400,000 into poverty. Thread👇#TakingThePIP

I contacted my MP Imogen Walker who cut and paste some bog standard reply yet answered not one of my questions. Before the election I personally spoke with her on this issue, ‘disabled people will always get my support, I’d never allow cuts’. She’s voting for cuts 🙄

Lumpy leg and arm this morning along with fatigue of doom. I think today is not going to be much fun 🥴

Rachael Maskell's amendment will be voted on at 7pm. If it goes through, the welfare bill is dead for now. If it doesn't, they will then go to the vote on the bill We urge MPs to support the amendment #TakingThePIP #WelfareNotWarfare #DisabilityRebellion

Labour MP Rachael Maskell appears close to tears as she 'pleads' with the government to abandon planned welfare cuts 'These Dickensian cuts belong to a different era and a different party', she said

'The starting point should never be cuts before proper support' - disabled MP Emma Lewell MP delivering a speech opposing the bill. Says #PIP review is looking increasingly 'predetermined'. Her message to fellow #Labour MPs: 'Please do not do this.' #TakingThePIP #WelfareNotWarfare

Meg Hillier in the chamber talks about people being 'pushed into disability benefits'. We are not pushed into disability benefits - you cannot be coerced into being Disabled! Disability benefits are there to support us to live independent lives in the face of an ableist society.

We’re in parliament asking MPs to vote against harmful cuts to disability benefits. ❌ PIP is a lifeline for people with MS, and this bill will push more people into poverty. MPs must vote ‘no’, and #ProtectDisabilityBenefits. Call or email your MP: mssoc.uk/4nyIodG

Government backtracking and concessions makes it ever more clear: this bill is not fit for purpose, and does not even have the support of their own party. MPs must vote against it!

How am I 3 years post diagnosis already?! 🤯 Yearly neuro review summary, bladder review and baclofen to see if it helps with the sporadic excruciating back pain I experience. MRI in the next few months.