A huge step forward for #Fahrs, researchers at the University of Southampton have secured a significant grant to better understand the biochemistry of the disease. More info soon.

Jeremy has almost reached his CAD$10,000 #fundraising target, help him get over the line, #donate if you can.

🧠 What is Fahr's Disease? It's a rare, genetically inherited neurodegenerative disorder characterised by abnormal calcium deposits in the brain. Learn more about symptoms and support at FahrBeyond. #FahrsDisease #BrainHealth fahrbeyond.org

🧩 Are you involved in rare disease research in the UK? RDR UK & @LifeArc are building a tool to map the rare disease research landscape — and your input matters! Researchers, patients, families, carers & rare disease advocates — 📝please take the survey tinyurl.com/RDRLDproject

🚶‍♂️Symptoms of Fahr's Disease include motor function deterioration, cognitive decline, seizures, speech difficulties, gastro difficulties & involuntary movements #Parkinsons. Early diagnosis is crucial.Visit FahrBeyond for more info #Neurology #RareDisease fahrbeyond.org

One week to go before the next Queen Square Basal Ganglia Club Meeting with Prof. Günter Höglinger and Dr Ed Jabbari. NHNN, September 3rd, 2025, 4 PM. All are welcome. Clinical and Movement Neurosciences @ UCL IoN MovementDisordersUCL UCL Queen Square Institute of Neurology UCL Brain Sciences

Jeremy is almost there, only three more days to go until he gets to the finish line! #fundraiser #charity #giving #Fahrs

🧬Genetic Insight: Fahr's Disease is often inherited and can manifest at any age, although typically in the 40s or 50s. Genetic testing can help identify the condition early,& there are 8 known genes that cause Fahr's FahrBeyond #Genetics #HealthAwareness fahrbeyond.org

💡Living with Fahr's Disease: Managing symptoms is key. Support from organisations like FahrBeyond can make a difference for people with #Fahrs. Let's spread awareness & support research e.g. through the Fahr's Biobank UCL Queen Square Institute of Neurology #Support #RareDiseases fahrbeyond.org

A huge thank you to Warwickshire Masonic Charity for your generous donation of £1,500! Your ongoing support is essential in helping us to provide services and information for the Fahr's community. Phil Hall Warwickshire Freemasons United Grand Lodge of England Masonic Charitable Foundation

Wow, Jeremy cycled 11,500km across Canada, raising over CAD$12,600 for Fahr Beyond to help advance research and support for the Fahr's community. Incredible effort, and a huge thank you. Don't forget there is still time to show your support gofund.me/20fac791b

📚 Fahr Beyond is the only registered charity in the UK (& the world) dedicated exclusively to supporting individuals with #Fahrs. Join us in raising awareness & supporting those affected. Let's build a connected& resilient community #Charity #FahrsDisease fahrbeyond.org

We have joined Instagram, connect with us there: instagram.com/fahrbeyond/

Fahr’s Disease is a rare neurodegenerative condition marked by abnormal calcium deposits in the brain. It can cause movement disorders, dementia, psychiatric symptoms, and more. Most people have never heard of it— let's change that. #FahrsDisease #RareDiseaseAwareness #Parkinsons

Fahr’s Disease can strike anyone, but it’s often inherited. Symptoms usually appear between ages 30–60 and vary widely. Misdiagnosis is common. Raising awareness means earlier detection and better support. #Fahrs #GeneticDisorders #Neurology