**FOR NZ RESIDENTS ONLY** Responding to harm from Fetal Anticonvulsant Syndrome survey Aims to: Understand if & how individuals, families & whānau affected by FACS might like to share their experiences; & with whom, working towards repair & prevention. forms.gle/NQUGezKRHmyyH4…

“If it is not safe it is not care.” Quote from Tedros Adhanom Ghebreyesus at the 5th Global Ministerial Summit on Patient Safety. #PSS2023

Back in 2019 Foetal Anti-Convulsant Syndrome NZ , along with INFACT (UK), met with representatives from the World Health Organization (WHO), in Geneva. One action item discussed during that 2019 mtg has now come into fruition. #GlobalChange #FACS #Epilepsy Emma Murphy (INFACT) ☘️💕😘🦋

Another achievement from our 2019 mtg with World Health Organization (WHO) it that there's now a Statement on the risks associated with use of sodium valproate in women and girls of childbearing potential. who.int/news/item/02-0… Emma Murphy (INFACT) ☘️💕😘🦋 #GlobalChange #FACS #Epilepsy #MentalHealth #Migraine

It is a massive achievement and will benefit thousands 👏🏻👏🏻

Congratulations on a much needed new approach to the health and disability system, when harm occurs. It is clear the mahi that has gone into this work. 👏🏻👏🏻

Always great to see that Fetal Anticonvulsant Syndrome information is popping up on more pages. Proves the work we are doing is making changes. Thanks Healthify healthify.nz/health-a-z/f/f…

💯 agree!

We are one of the 65 organisations supporting this as most of our FACS people do not fit into our schooling system.

Restorative response to harm from Foetal Anticonvulsant Syndrome (FACS) This paper provides an overview of FACS in Aotearoa New Zealand.  It explores who is at risk of harm from FACS & how consumers and whānau are affected.  facsnz.com/news Jo Wailling

Congratulations to the Young Voices Advisory Group. Big congratulations to Tash who is one of our FACSNZ Youth Ambassadors. 👏🏻🎉

Today (16 May 2024) is the 13th Global Accessibility Awareness Day (GAAD). The purpose of GAAD is to get everyone talking, thinking, and learning about digital access and inclusion. For more information on GAAD: accessibility.day #gaad

Totally support having a Patient Safety Commissioner here in New Zealand. newstalkzb.co.nz/news/national/…

Absolutely fantastic to meet with Dana Kirkpatrick who is one of the co-chairs for the NZ Commonwealth Women’s Parliamentarians. Looking forward to putting some of her recommendations into action. Thank you for the support.

"This edition of the mhGAP also cautions against particular interventions when the guideline team deems that potential risks outweigh potential benefit. For example, it advises against use of sodium valproate in women or girls of childbearing age..." psychiatrictimes.com/view/who-addre…

Congratulations to our founder, Denise Astill, on receiving the ONZM in the 2025 New Year Honours! 🎉 Her dedication to supporting those affected by foetal anti-convulsant syndrome is inspiring. #ONZM #Advocacy #FACS