The Advisory Committee on Heritable Disorders in Newborns and Children voted Tuesday, January 30, 2024 to add #Krabbe to the RUSP. This recommendation will now go to the Secretary of HHS for approval. #newbornscreening #NBS #genetics

Join us on February 14th at 1:00 PM EST for a meaningful discussion about the unique challenges Black individuals face when navigating the #raredisease space. Discover ways we can collaborate to improve these experiences. Register here: bit.ly/4blrs4j #healthequity

Happy Black History Month! Each week, we will honor an ancestral midwife like Mary Francis Hill Coley, who delivered over 3,000 babies and was featured in the film "All my Babies," a midwifery training video. Join us in March for #NBMA2024Conference ! bit.ly/NBMA2024Confer….

#OvarianCancer is the fifth leading cause of death among women. This #WorldCancerDay, check out the SWHR ovarian #cancer fact sheet to learn your ovarian health risks and understand your cancer screening options: ow.ly/cSZf50Qxo5k #SWHRtalksCancer

#BreastCancer is the 2nd leading cause of death among women. A woman's risk of developing breast cancer in her life is 1 in 8. This #WorldCancerDay, check out this fact sheet to learn your breast health risks & cancer screening options: swhr.org/swhr_resource/… #SWHRtalksCancer

Mark your calendars so you don't miss out on our upcoming webinar! Still need to register? You can do that here: bit.ly/4blrs4j #healthequity #BlackHistoryMonth #Blackcommunity #raredisease

The 2024 Health Justice and Belonging Conference has just begun! Excited to attend thought-provoking sessions and hear from all the distinguished speakers. WSU Medicine #healthjustice #healthequity

Stephanie Courtney, founder of the Shades of Motherhood Network, shares with us the Black Birthing Bill of Rights and speaks on the importance of Black women understanding their rights during pregnancy and childbirth. #healthjustice

The last day of the Health Justice and Belonging Conference is underway, and we look forward to today's sessions! WSU Medicine #HealthJustice #HealthEquity

To truly meet the needs of communities, we must actively engage and respect key stakeholders from those communities at every stage of the process. Check out these tips on how you and your organization can do just that! WSU Medicine #healthjustice #healthequity

Happening tomorrow - join us as we dive into the unique experience of being Black with a rare disease. We will provide insights, share stories, and offer practical tips we can all use to raise awareness and further our collective pursuit of #healthequity. bit.ly/4blrs4j

15 minutes until our webinar begins! Still need to register? Click here: bit.ly/4blrs4j #raredisease #healthequity #Blackcommunity

#BMHW24 is on the way! A week packed with enlightening discussions, dynamic events, and meaningful connections aimed at advancing the well-being of Black Mamas and Birthing People. #BlackMaternalHealthWeek #ReproductiveJustice #BirthJustice #BirthEquity #BMHW2024

About 80% of Black women will have uterine fibroids by the age of 50. Black women tend to develop #fibroids at a younger age, have larger fibroids, and have fewer days between periods.

New to advocacy? Don't worry! You don’t need to be an expert or an extravert to be an advocate. We'll have a live training for all advocates in preparation for our Advocacy Day! Register today! hubs.la/Q02lGn_B0 #maternalMentalHealth #maternalhealth #healthcareproviders

The recording for our webinar, where we shared the results of our #FamilyLeadership Survey, is now available! Click the link to learn what #familyleaders had to say about their journeys and the responsibilities that come with the role: bit.ly/3I4uhci #familyengagement

RSV is the leading cause of hospitalization for babies under age 1. Protect your baby from unnecessary risks: ➡ Sanitize surfaces ➡ Wash hands often ➡ Wash toys regularly ➡ Avoid large crowds Learn more about how to prevent #RSV ▶ bit.ly/3nBpxk6

This month, we hosted a webinar that focused on the challenges the #BlackCommunity faces while navigating the #raredisease space and the healthcare system. Click this link to watch that recording now: bit.ly/4bIavkB #rarediseaseday #Links2Equity #TravereTherapeutics

In celebration of #InternationalWomensDay, we are hosting a webinar during which our presenters will share insights on the importance of women being included in #healthresearch while exploring the impact of diversity in #advocacy efforts. Register here: bit.ly/4bVHuSr

Embracing #RareDiseaseDay today and every day because awareness is just the beginning. Our fight for #raredisease equity is a daily commitment, and together, we can make sure that no one feels alone on their journey. Visit Rare Disease Day to learn more! #showyourstripes