📢We're thrilled to announce the 3rd edition of our EuroNDD meeting! We offer this unique workshop to serve as an important forum for researchers, clinicians, and patient advocates to connect, exchange ideas, and drive progress in the field of rare NDDs. Spread the word! #EuroNDD

🚨 Exciting news! #EURONMD is hosting a 4-episode webinar series on Facioscapulohumeral Muscular Dystrophy (#FSHD) this May! 🌟 Join expert speakers from across Europe to explore the latest research, clinical management, and therapies. Don’t miss out! 👉ern-euro-nmd.eu/educational-ne…

📢 Save the date! Join us in Marseille☀️ from 24–27 Sept 2025 for the 2nd Summer School on Multidisciplinary Management of #NMDs! 👥 Health pros, researchers & patient reps 🎓 Expert talks, interactive sessions & hands-on workshops 📩 Pre-registration now open! #FILNEMUS

One day left to register at the early bird fee for in Person participation to #eshg2025. Join us in Milan or online for the #eshg2025 #hybridconference! Register at a reduced rate until April 10, 2025 at 23:59 CEST. More info: 2025.eshg.org/registration/

📢Conference "Towards an EU Action Plan on Rare Diseases" TEN President Baiba Miltovica asks Member States & European Parliament to guarantee significant budget for rare diseases in the next Multiannual Financial Framework 2028-2035.🤝🔬 🔗Live: europa.eu/!3vvNmw

Check out their diverse programme featuring focused & case-based workshops, and many other sessions! 🧠 Join us at the 11th Congress of the European Academy of Neurology (EAN) in Helsinki! 👉 Register here: ow.ly/NeMS50VaQPI ➡️ Early bird deadline: 16 April 2025 #EANeurology #ean2025

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📌 #FSHD webinar series – ep 1️⃣ 📚“Genetic Diagnosis” delivered by Prof. Emiliano Giardina (University of Rome Tor Vergata, Italy) 📆 May 8th, 2025 16:00 CEST Register here 👉 lnkd.in/eK5mJYqE

EPNS Congress 8-12 July 2025 B for Brain, Science & Health Roll the yellow dice and attend the 2 plenary sessions. **MRI-SCIENCE / NEUROIMAGING **NEUROMUSCULAR DISORDERS Learn more: epns-congress.com/programme/ #EPNS2025 #paediatricneurology ESNR ern euro_nmd

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📌#FSHD webinar series – ep 2⃣ 📚“International Clinical Care Guidelines” by Dr. Evangelista (Institut de Myologie & Pitié Salpêtrière Hospital – AP-HP, France) 📆May 15th, 2025 16:00 CEST Register here 👉bit.ly/4jSmFuL

➡️#EURONMD webinar w/@ERN_RND 🧠 & European Academy of Neurology 📌 #FSHD webinar series – ep 3⃣ 📚“Pediatric FSHD” delivered by Prof. Tracey Willis (Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, UK) 📆May 22nd, 2025 16:00 CEST Register here 👉ern-euro-nmd.eu/event/fshd-web…

We are here at the European Society of Human Genetics (ESHG) 2025 in Milan! Join us in the booth 550! #ESHG #ERN

🌍Last week, the ERN-EuroBloodNet participated in 2 key events shaping the future of rare disease care across Europe. ✅​Were crucial opportunities to share best practices, align on strategic goals, and reinforce collaboration among the European Reference Networks #ERNs

➡️#EURONMD webinar w/@ERN_RND 🧠 & European Academy of Neurology 📌 #FSHD webinar series – ep 4⃣ Final episode! 📚“Clinical Trial Readiness” delivered by Dr. Nicol Voermans & Ria de Haas (Radboudumc, the Netherlands) 📆May 28th, 2025 16:00 CEST Register here👉ern-euro-nmd.eu/event/fshd-web…

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📚“Genetic therapies of Neuromuscular Diseases” by Serge Braun, PharmD, PhD (Former AFM-Téléthon Scientific Director, Member of the french Academy of Pharmacy) 📆June 5th, 2025 16:00 CEST Register here ern-euro-nmd.eu/event/genetic-…

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📚“Treatment of idiopathic inflammatory myopathies” by Prof. Marianne de Visser, (Amsterdam University Medical Center, The Netherlands) 📆June 12th, 2025 16:00 CEST 👉Register here: ern-euro-nmd.eu/event/treatmen…

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📚“Pain Management in Myopathies” by Dr. Stefanie Glaubitz (Department of Neurology, Universitätsmedizin Göttingen, Germany) 📆June 19th, 2025 16:00 CEST 👉Register here: ern-euro-nmd.eu/event/pain-man…

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📚“Advances in Gene Therapy in Myopathies” by Prof. Francesco Muntoni (University College of London, UK) 📆June 26th, 2025 16:00 CEST 👉Register here: ern-euro-nmd.eu/event/advances…

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📚“Management of Cardiac Involvement in Myopathies” by Prof. Eloisa Arbustini (Fondazione IRCCS Policlinico San Matteo, Italy) 📆July 3rd, 2025 16:00 CEST 👉Register here: ern-euro-nmd.eu/event/manageme…

➡️#EURONMD webinar w/ @ERN_RND 🧠 & European Academy of Neurology 📚“Non-pharmacological management of myopathies” by Prof. Dr. med. Peter Young (Clinic for Rehabilitation Medical Park Reithofpark, Germany) 📆July 10th, 2025 16:00 CEST 👉Register here: ern-euro-nmd.eu/event/non-phar…