HELP! Twitter is great, but we miss @TwitterSupport! Our account WECAN was suspended last week claiming we are now <13age. Of course! Our WECAN network is not a person, but was „born“ 4y ago. No chance reaching out to Twitter to fix: no reply to forms/no phone#/no email

Digitalisierung des Gesundheitswesens stand im Zentrum des dritten "Swiss Patient Forum" von EUPATI-CH Schweiz computerworld.ch/social/ehealth… EUPATI Deutschland EUPATI_CH EUPATI Leukaemie-Online.de #XgegenKrebs

Krebs betrifft jede Familie. Die Nationale Dekade gegen Krebs #XgegenKREBS will Krebsforschung und Transfer von Forschung in die Praxis stärken, Krebs ausXen. Patientenbeteiligung ist Kernthema! Teilt Eure Meinung, Wünsche, Erwartungen, Fragen mit uns: dialog.dekade-gegen-krebs.de

Konzertierte Initiativen für die effektivere Forschung und das Leben trotz Krebs: wichtig, dass #MissionCancer der European Commission und #XgegenKrebs des @BMBF_Bund alle Akteure zusammenbringen und Patientenvertreter auf höchster Ebene einbinden! #wirwollenwissen WECAN

Bravo Jan Geissler und Bettina Ryll für Eure Arbeit als Patientenexperten in #MissionCancer und #XgegenKrebs - gemeinsam für bessere, effektivere, patientenzentriertere Krebsprävention, Krebsforschung und Patientenversorgung!

#COVID19 is of concern to many cancer patients who are in special need of cancer treatment and follow-up care. WECAN members provide info resources about COVID-19 and specific recommendations to their patient community. See wecanadvocate.eu/covid-19/

Our 10-months WECAN expert course on evidence-based advocacy, evidence generation and publication kicks off today. Advocates from pan-EU patient orgs will be trained as experts in evidence-based advocacy, including individual coaching wecanadvocate.eu/eba/

The European Union continues to support the World Health Organization (WHO) & has already provided additional funding. For 🇪🇺 the main task is to save lives, contain & mitigate the #Covid_19 pandemic. We urge the US to reconsider its announced decision. #StrongerTogether bit.ly/2XeP2vu

Which psychosocial, financial, patient management, research and institutional challenges does #COVID19 impose on cancer patients and their NGOs? WECAN members have mapped key #cancer patients’ concerns & challenges in the #corona crisis. Results: wecanadvocate.eu/covid-19/

HARMONY is proud to have patient organizations as part of its initiative. See what role our valued Patient Cluster has played in progressing HARMONY’s mission in #bloodcancer bit.ly/312RrtO Acute Leukemia Advocates Network (ALAN) Carmen Auste CLL Advocates Network @heretohelpMDS Lymphoma Coalition Myeloma Patients Europe

Great kickoff workshop today on „Principles of Successful Patient Engagement in Cancer Research“ hosted by @BMBF_Bund within #EU2020DE presidency. Policy paper on principles will pave way for roadmap on patient-centric cancer research in trio EU presidency DE/PT/SL WECAN

This is an emotional moment. After months of hard work, the day of the first dispatches of #COVID19 vaccines is here. Thousands of doses are being delivered today to all 🇪🇺 Member States at the same time. This is 🇪🇺solidarity and unity in action. #StrongerTogether

Patients want to be partners of science. That's why patient community has sent a joint letter to ASH, calling on Martin S. Tallman, MD Martha Liggett Matthew Gertzog to give patient advocates reasonable access to #ASH2021! Follow good examples of ASCO European Hematology Association ESMO - Eur. Oncology

Having patient advocates attending and contributing to medical congresses is key: understanding cutting edge science and addressing patients needs and preferences to clinicians. Thought provoking discussion about value as well as barriers to access at EU-PFF #PFSummit21 today

This is #WECANAdvocate, a network of over 20 umbrella cancer #patient organizations in Europe. Born out of the true need to share experiences, we are strengthening cancer patient #advocacy across Europe. Jan Geissler European Commission Stella Kyriakides European Cancer Organisation ESMO - Eur. Oncology ASCO

EHA President European Hematology Association says we’re ‘preaching to the converted’ and calls for these policy/patient/advocacy sessions to be in the plenary next year Credit to Elizabeth for dedicating 4 hours today with #PatientAdvocacy colleagues at #EHA2022 with schedules so busy 👏

Etwa 3% der Bevölkerung können sich auch durch Impfstoffe nicht vor COVID19 schützen, weil ihr Immunsystem keine Antikörper entwickelt. Die Internationale COVID19 Blutkrebs-Koalition #ICBCC ruft dazu auf, Immunkompromittierte durch Prävention und Therapien besonders zu schützen.

Was können wir für Blutkrebspatienten in DE tun, um sie zu schützen, Prof. Karl Lauterbach Christian Drosten? Etwa 2-3% der Bevölkerung können sich auch durch Impfstoffe nicht vor schwerem #COVID19 schützen, weil ihr Immunsystem wenig Antikörper entwickelt. #ICBCC #considerthecompromised

Great discussions at HARMONY Alliance Foundation General Assembly about using Big Data for quality of life research in haem cancers. Myeloma Patients Europe and CML AdvocatesNetwork presented their own research proposals, counting on academia & industry to get this research done! #bigdataforbloodcancer

💫Happy faces in the morning, happy faces in the evening, and lots of exciting and constructive discussions about science in between. Thanks for a great face-to-face meeting—we can’t wait to share our progress at the next one! #SafePolyMed #PatientSafety #Polymedication