Lung cancer is the deadliest cancer in the EU. On #WorldLungCancerAwarenessMonth, discover how the #EU4Health project SOLACE is improving screening to enable early cancer detection and reduce mortality. hadea.ec.europa.eu/news/world-lun…

Don´t forget to register for the Alpha1PatientConference, which will take place tomorrow morning at 10:00 CET

ERN-LUNG Academy application before December 1st. The program is free. Find out more: ern-lung.eu/our-expertise/…

While the new European Commission is settling in, the 3rd Conference for an EU commitment to tackling rare diseases took place in Budapest, Hungary, on Nov 29th. ERN-LUNG was present to make sure that our network is being seen and heard... @ERNs ERN-LUNG ERDERA JARDIN Joint Action

Check out our latest newsletter and stay up to date with ongoing activities both around and within ERN-LUNG and the RD community! View newsletter online: ern-lung.eu/?na=view&id=30

We would like to notify you the opportunity to participate in the “Survey on unmet needs in personalised medicine management and the potential of personalised health technologies for healthcare professionals”: ec.europa.eu/eusurvey/runne…

There are 24 European Reference Networks covering a range of #rare #complex #lowprevalence diseases. Find out more about ERNs and the conditions they cover: ern-lung.eu/wp-content/upl…

The latest BEAT-PCD newsletter  is available on our website beat-pcd.squarespace.com/news-and-events It contains  an update on BEAT-PCD activities, a report on our summer meeting, a summary of recent PCD research papers and upcoming events

Check out the latest edition of ERN-LUNG's newsletter and learn about this month's key highlights. Don´t forget to subscribe for future editions! ern-lung.eu/?na=view&id=31

Delighted to meet so many patient advocates attending the 9th Annual ERN-LUNG Board meeting whilst representing EU-PFF & the European Lung Foundation foundation

Today we are in Paris at the ERN-LUNG Annual Board Meeting. We’re here with other partners discussing how we have raised awareness of rare diseases this year and what more needs to be done. 📸 Gergely Meszaros, ERN-LUNG project manager, giving an update on recent activities.

9th ERN-LUNG Annual Board Meeting at Hôpital Bicêtre in Paris, France

ERN-LUNG's network coordination team member Gergely Meszaros giving an insight on most recent and ongoing communication and dissemination activities

Very fruitful discussions during the recently formed LAM working group. Did you know that LAM (Lymphangioleiomyomatosis) is a rare lung disease and affects mostly women of childbearing age?

May 5, World Pulmonary Hypertension Day is a global effort to raise awareness of PH, a condition that affects the lungs and heart. Led by PHA Europe, the global campaign brings together PH organizations and advocates to coordinate global efforts around awareness and education.

List of ERDERA underrepresented countries🌍: Bulgaria, Cyprus, Czechia, Estonia, Greece, Georgia, Hungary, Ireland, Latvia, Lithuania, Morocco, Poland, Portugal, Romania, Serbia, Slovakia, Slovenia, Türkiye. Interested? 👉forms.office.com/e/3u9akmHytq

Don´t miss the ERS Wednesday special program where ERN-LUNG will be discussing what they can offer for the future... Find out more: k4.ersnet.org/prod/v2/Front/…

ERDERA has launched a new online survey to explore how rare disease patient organisations can contribute to publicly funded research. Open until mid-July Confidential. Co-created with patients. Take the survey: shorturl.at/ePVuL