Thank you to everyone who answered questions about quality of care in last month's Quick Question. This month, we are asking about sleep challenges. To answer and see last month’s results, visit here: ftdregistry.org/quick-question… #endFTD

Why does longitudinal data matter in #FTDresearch? Tracking changes over time helps researchers understand how the disease progresses and how to treat it more effectively. See how your data makes a difference: ftdregistry.org/press/the-role… #FTD #endFTD

Can FTD-linked genes shape brain development before symptoms appear? A new study is exploring this question in families affected by genetic #FTD. Now enrolling across Canada and Europe. ftdregistry.org/press/new-stud… #endFTD #FTDResearch

Coming to #AAIC2025? Visit Booth 521! The FTD Disorders Registry supports researchers with de-identified data and tools for study design, cohort discovery, and recruitment. Let’s move FTD research forward together. #EndFTD #FTDResearch #FTD

Shana Dodge & Penny Dacks are on the ground at #AAIC2025! Visit Booth 521 to learn how the FTD Disorders Registry supports your research with data, cohort tools & recruitment resources. Let’s move #FTDResearch forward together! #EndFTD #FTD #DementiaResearch

Come say hi to FTD Disorders Registry Director Carrie Milliard at Booth 521 today at #AAIC2025! Learn how the FTD Disorders Registry is accelerating research and supporting scientists with real-world data. #FTDRegistry #FTDResearch #EndFTD #Neuroscience

Come visit Cure MAPT FTD at our posters today at #681 and #697 at #AAIC25 #AAIC2025 or at booth 1729 with the Alzheimer's Association

The FTD Disorders Registry and The AFTD are back at Booth 521 today at #AAIC2025! Stop by! We look forward to connecting and sharing how we're working together to advance #FTDresearch. #EndFTD #FTD

Now Live: FTD Disorders Registry Researcher Portal Access secure, deidentified data from real-world lived experience of #FTD disorders. Design studies. Estimate recruitment. Accelerate progress. Learn more: ftdregistry.org/for-researcher… #FTDResearch #Neuroscience #EndFTD #AAIC2025

Great to see the team behind Progranulin Information Navigator by the Bluefield Project at #AAIC2025! This resource raises awareness of GRN-specific trials and improves access to genetic testing and counseling. Bluefield is also a cofounder of the FTD Disorders Registry. #GRN #FTDResearch #endFTD

Great to see Devon Chenette of Alector present at #AAIC2025! Her poster, "Genetic testing rates of individuals diagnosed with FTD and close biological relatives assessed in the FTD Insights Survey," highlights important findings made possible with data from the Registry.

We’re grateful to be able to share the FTD Disorders Registry's work at #AAIC2025! Stop by during today’s poster sessions to connect with Registry Director Carrie Milliard. We’re always eager to exchange ideas and insights. #endFTD #FTD #FTDResearch

Come visit us today at poster #092 to learn more about Cure MAPT FTD families as well as our booth #1729 at #AAIC2025

Join Registry Director Carrie Milliard today at #AAIC2025 from 3:30–4:15 PM at Poster #480. She will share our work on the challenges families experience during the diagnostic journey for behavioral variant frontotemporal dementia (bvFTD) using data from the Registry. #EndFTD

Great connecting with the team from Cure MAPT FTD today! #AAIC2025

Join us for a free webinar on Wednesday, August 13, 2025 to explore the diagnostic journey for frontotemporal degeneration (FTD) and how we can improve detection and referral. Free CME and CEC credits available! Register here: events.zoom.us/ev/AlPqObBF8Hx… #endFTD #neurology

Thank you, #AAIC2025! We loved connecting with researchers, clinicians & advocates at our booth. Your curiosity and commitment to advancing #FTD understanding inspire us. Let’s keep moving toward earlier diagnosis and better care. #FTDRegistry #FTDResearch #EndFTD

Anyone with an interest in FTD disorders research is welcome to join the Registry. Learn more at: ftdregistry.org/why-join/

Researchers: Unlock the power of FTD data! Join the FTD Disorders Registry Researcher Portal to access de-identified data, request custom datasets, and explore collaboration opportunities. Start here: ftdregistry.org/for-researcher… #FTDresearch #EndFTD

Thank you to everyone who answered questions about sleep challenges in last month's Quick Question. This month, we are asking about the types of health insurance coverage. To answer and see last month’s results, visit here: ftdregistry.org/quick-question… #FTDQuickQuestion #EndFTD