Ciaran Mc Varnock™ We are calling on Vertex Pharmaceuticals. Vertex this woman is waiting on an answer as to whether she will be granted #Trikafta on compassionate grounds. Your drugs won’t be able to help her if they come too late. Where is your COMPASSION? Please help her #cysticfibrosis team to save her.

Please please help gofundme.com/f/nfv95-dixie0…

Quarantine got us recreating the sweetener tour... this kid has withdrawal.... take us back to Birmingham!! ⁦@ArianaGrande⁩ #12weeksisolation #sweetnertour

I love Ariana

Mayor Jacob Frey: Justice for George Floyd - Sign the Petition! chng.it/CCfqGVGp via Change.org UK

Ok twitter over to you Little Mix please send a birth message for Dylan he’s been stuck in because he has cystic fibrosis and deserves a special birthday!!!!

He’s still singing #Liverpool #Liverpoolchampions Virgil van Dijk

#Kaftrio is not symptom-treating, it corrects the root-cause of #CF - a dodgy CFTR gene. Taking it is a bit like Peter Parker getting bitten by the radioactive spider that changed his DNA. Basically when this lands, CF Warriors become CF Superheros. #KaftrioNow #TrikaftaNow

Daily Express ThankYou Chris Riches helping the #cysticfibrosis crusade for CF .Matt Hancock Let’s get the job done ✅ My daughter is literally hanging on edge of life Give her a future😢 #KaftrioNow #kaftrio Please RT🙏🏻 Blake Dark Cystic Fibrosis Trust Vertex Pharmaceuticals NHS

⁦After 6 months of sheilding little boy has finally been able to go back to school!!! It’s been tough and we’ve had our ups and downs but the one thing that’s got us both through is music ⁦Lewis Capaldi⁩ give him a quick hello make his day!!! #cysiticfibrosissucks

LOCKDOWN MELTDOWN... after shielding for months and being in and out of school this boy is struggling with life!! He is 7!!! This should not be happening! JoJo Siwa help me make him smile again!!! #childrensmentalhealth #moreneedstobedone

Are you a parent/guardian of a child (6-12 years) with #CF? Would you like to try out a new family-based programme for free & get involved in #cysticfibrosis #research? Get in touch! forms.office.com/r/Xk52UCwg7L or email directly: [email protected] Please RT!

1,000’s of children are asking for 1 thing for a Xmas. The gift of a life unlimited by #CF MHRAgovuk pls stop dragging yr heels you were supposed to make things quicker! EU Medicines Agency hv approved #Kaftrio u just need to rubber stamp now.

Wow!!! This is my baby boy! Symptoms of scarlet fever… but he doesn’t have any puss on his throat so no antibiotics… needs to be really unwell for antibiotics apparently as there aren’t any… this is what my gp has told me today!! no wonder kids are dying #GroupAStrep #scared

Check out six💜! #TikTok tiktok.com/@sixthemusical… as

Check out six💜! #TikTok tiktok.com/@sixthemusical…