Join to raise awareness on Gaucher disease :) eurogaucher.org/gb/internation…

A lot of training and networking today and tomorrow .. happy to be here... #PFProgress16

Mary Baker - all patients have similar needs - early diagnosis, access to information and treatment #PFProgress16

Patients find it difficult when they are called economic burden-the cost should not be the only criteria in healthcare #PFProgress16

Informed and educated patients will be needed much more in present and future - #patientsinvolved #PFProgress16 EUPATI jin

Please help support International Gaucher Day, add a #Twibbon now! twibbon.com/support/intern…

"Rare But Not Alone"... raising awareness of Gaucher disease and the impact of GD on the lives of patients thndr.me/DzbRAw

Rare Disease Day is coming .. get prepared to raise awareness :) challenges.mk/?p=4169&lang=en #RareDisease #RareDiseaseDay

За денот на Акутна Миелоидна Леукемија, 21 април, носете црвено црно во поддршка на пациентите кои се борат со оваа болест. x.com/KNOW_AML/statu…

За жал иновативните лекови за Акутна Миелоидна Леукемија на се достапни за пациентите во Македонија :( x.com/aamdsif/status…

Life with challenges is supporting the AML campaign - Patients deserve proper tretment challenges.mk/?p=4234&lang=en #knowaml #fightaml

At the haematology congress listening the session on treatment fir MDS and AML #knowaml #fightAML #MDS

challenges.mk/?p=4234 Support AML patients in Macedonia #knowaml #fightAML

Today is Acute Myeloid Leukemia World awareness day! Let's raise the awareness of #AML #knowAML #fightAML #21April #Hematology

Support AML patients challenges.mk/?p=4234#knowaml #fightaml

#IAmAChangeMaker because I am fighting for rare disease patients to have a better life, early diagnosis, early access to treatment and care

#PatientsPartners

#ShowYourRare

Today is #RareDiseaseDay! Take action now - paint your face to #ShowYourRare and show you care! thndr.me/9WV93j

EURORDIS membership meeting. Great people working together for rare diseases #EUCRDVienna