Advocates want NIH to create an office to pursue research and treatment of long Covid, ME/CFS, Lyme disease, Ehler-Danlos syndrome, POTS, and other post-infection illnesses. trib.al/osvGkgc

Spoke to Science Friday about #LongCovid, including biological mechanisms, the false narrative that rates of Long Covid are going down, and other topics, alongside the amazing Prof. Akiko Iwasaki! Listen here: sciencefriday.com/segments/4th-a…

Thank you nature for highlighting some of the tireless work done by pw #LongCOVID like Lisa McCorkell and LongCovidPharmD. Patient-led research enriches all aspects of clinical research and I’ll never not be grateful to my colleagues with lived experience who teach me every day

Kudos to Heather Graf for a very solid and thorough look at #LongCovid. Cynthia Adinig Walter J. Koroshetz Ziyad Al-Aly, MD

Host: “The NIH has faced criticism from some patients..Michael among those who feel the agency needs to pick up the pace.”

So excited about this project!! #longcovid

If you would ever like assistance entering your case, a member of the NCATS/NIH team would be happy to assist you with updating or completing your case information. You can reach them at [email protected] Meighan Stone | @meighanstone.bsky.social Michael Sieverts Lisa McCorkell Daniel Lewis (but with Long COVID)

TIME 100 Health: 'Avindra Nath: Demystifying exhaustion' '..interest yielded a historic study—perhaps the most extensive ever conducted—on a long-ignored and mysterious condition: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)' time.com/6968936/avindr…

Next book tour stop: REDDIT! The MIT Press @mitpress.bsky.social has set up a Reddit AMA tomorrow for me at 11am ET. Please ask me any anything: journalism, Long Covid, medical research, policy, etc. And if you want to ask what car I drive or what to put in your Hinge profile, I'm also happy to oblige.

Meighan Stone | @meighanstone.bsky.social Zeest Khan, MD Michael Sieverts

While originally we thought we would need to reach 1000 cases before doing an interim analysis, the data you all have provided has been so rich, we think it’s worth starting the analyses at 500 cases. Hannah Davis Meighan Stone | @meighanstone.bsky.social Melissa Mazur C.H. Romatowski Michael Sieverts

Today The Sick Times: I covered what the incoming Trump administration may mean for #LongCovid and related disease research and advocacy. thesicktimes.org/2024/11/26/don… (obsessed with the featured image by Miles W. Griffis!)

Did your existing chronic health issues get worse after a COVID infection, or did you develop new onset #LongCOVID? Tune in to our free webinar on January 23rd to learn how you can get involved in the CURE ID study to help find more effective treatments! bit.ly/CureIDwebinar

Say what you will about Hill currently, but these two women leaders—Senate GOP Appropriations Committee Chair Sen. Susan Collins Senate Appropriations Dems Vice Chair Senator Patty Murray—show what it looks like to work in excellence, across the aisle, for ALL Americans. Congress would be well-served to take their example.

PLRC joined other research organizations to provide statements for today's Senate Appropriations hearing, Biomedical Research: Keeping America’s Edge in Innovation. Our statement is under US Congress section here: patientresearchcovid19.com/advocacy/. Video: appropriations.senate.gov/hearings/biome… 1/

"...the very nature of Long COVID and other infection-associated chronic conditions (IACCs) – complex, multi-system conditions that present themselves in myriad ways – testifies to the need for a research enterprise of tremendous breadth and depth." 2/

Meaningful time w fellow #LongCovid advocates at Sen. Susan Collins & Senator Patty Murray's bipartisan biomedical research hearing. Heartening to hear Senate GOP Appropriations Committee & Senate Appropriations Dems's questions & bipartisan support for biomedical research! Meighan Stone | @meighanstone.bsky.social John Haughton MD, MS 🌻 Bridget Michael Sieverts

ICYMI: Solve CEO Emily Taylor spoke at the #MIllionsMissing #DisabilitySOS event hosted by @meactnet in DC today. She reflected on her journey as a caregiver & announced our #MECFS Catalyst Award funding for a study by Dr. Akiko Iwasaki. ow.ly/Jzx550VRqz3 #WorldMEDay

From the print edition of today's The Washington Post . Thank you Lindsay Karp for sharing your experience. It will be helpful to all of in this invisible realm.

FREE WASHINGTON DC EVENT SATURDAY JULY 19: Are you living with #LongCOVID, a loved one, caretaker or healthcare provider? Join celebrated cellist & Long COVID patient-advocate Joshua Roman's community The Kennedy Center performance of his "IMMUNITY", register here: kennedy-center.org/whats-on/explo…