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15 scientific journals published simultaneously an editorial on 'the importance of healthy policy & systems research for strengthening rehabilitation in health systems'. Spread the news! #WHO #WRA #rehabilitation2030 who.int/initiatives/wo… Read here pubmed.ncbi.nlm.nih.gov/37847248

Angela White, member of the Global PROMS Initiative Engagement Coordination Team, explains the challenges of communicating ongoing, changing, complex symptoms of #MultipleSclerosis during a short clinical consultation - could digital technology help?

Tim for our multi-stakeholder Rountable on next steps on recognition of disease progression! Both online and live participants, including Xavier Montalban Cemcat (Moderator), Valerie Block, PT DPTSc , Paul Kamudoni (Merck Healthcare ), Daniel Ontaneda and Prof. Soelberg Sørensen

Super excited for this new publication! #precisionmedicine #closingtheloop #NIH-NLM #comprehensivecare and #preventingfalls pubmed.ncbi.nlm.nih.gov/38206662/

Falls are a major issue for people with MS - in this review we break down ways to assess and treat / refer. Fall Assessment and Monitoring in People with Multiple Sclerosis: A Practical, Evidence-based Review for Clinicians. cp.neurology.org/content/13/5/e…

Working though the 2 year data - curious to see where the correlations between SC grey and step count go. pubmed.ncbi.nlm.nih.gov/36573559/

Beautiful 📈!

Designed in collaboration w/#patients & #clinicians, #MS-FIT has emerged as well-received closed-loop tool for tracking #falls & reducing falls risk in individuals w/MS. Patients liked its brevity, simplicity & overall utility...Clinicians welcomed the closed-loop system...

Thrilled to have presented our initial results for the WeB (Wearables for the Bladder) study at #AANAM, Multiple Sclerosis: Special Populations and Non-MS CNS Neuroinflammatory Disease session today. Riley Bove #NMSS funded research

This afternoon we had a conversation with the fantastic Valerie Block, PT DPTSc, of UC San Francisco, who discussed findings from a pilot study of wearables for bladder monitoring in #MultipleSclerosis presented at #CMSC2024. Stay tuned! CMSC IJMSC

"Although addressing many #SocialDeterminants of health is outside the role of #neurologists, it is increasingly clear that ignoring the societal context of someone living with #MS would be to neglect a potentially substantial effect on disease outcomes." doi.org/10.1038/s41582…

frontiersin.org/journals/neuro… Excited to share this new article from the progress made in the Global PROMS (PROMS) Initiative. So much more to come! Global PROMS Initiative

Excited to be part of this incredible group and mission ResearchGate: researchgate.net/publication/38…

Way to go #Coffee #CoffeeLovers #MS #MultipleSclerosis Sam Hooshmand, DO

After 18 years Peer Baneke, the Chief Executive of MSIF, will be retiring this December. In this article, we reflect on Peer’s lasting contributions and the impactful legacy he leaves behind. 👉 msintfederation.org/3ZN8q1R

I need people to understand how difficult it is to get an NIH grant. You spend months writing a proposal, following strict guidelines that include a detailed multiyear budget, bios of everyone on your team, plans for participant safety & ethical conduct. Then you send it off -1/n

The Global PROMS Initiative has launched a global survey to gather insights on digital tools for people with MS. 📱 Created by people with MS in collaboration with researchers, the survey aims to understand how digital tools impact daily life. 📣 👉 lnkd.in/dAEVXfVg

There are no fluctuations in daily step count following anti-CD20 infusion in people with #MultipleSclerosis, thus suggesting stability between infusions. Prospective study using Fitbit from Valerie Block, PT DPTSc Riley Bove UC San Francisco ▶️ journals.sagepub.com/doi/10.1177/20…

This achievement "demonstrates the immense time, effort and expense it takes to understand complicated human diseases and develop effective treatments — but also how the investment can have profound effects on human lives." UC San Francisco Dr. Stephen Hauser

Today is World MS Day, a global moment to honor the courage of those living with multiple sclerosis and reaffirm our commitment to ensuring that MS ends with us. Whether you live with MS, care for someone who does, or support the cause to find a cure in your own way — thank you.🧡