Great to hear Chris Ponting on New Zealand's national public radio this morning! RNZ Saturday Morning A short chat on the DecodeME the ME/CFS Study significance for ME/CFS & sparking faster progress toward causes & treatments. rnz.co.nz/national/progr…

Why Medical School Trains Doctors Not to Believe Long COVID Before you judge your doctor, scroll to the end of this post and look at the picture of new medical students. Then read the article. These are the people we need to understand, that all medical students started out

1) Interesting experiment on fatiguability of arm muscles that might be useful as an objective test. During repeated handgrip tasks, researchers found that "the neuromuscular system experienced changes earlier than the actual behavior"

This was me in 2021 having hiked up Simonside in Northumberland. This is me in 2025 having been diagnosed with #MECFS 4 years ago. Now severe, I have lost all functionality of daily living. We desperately need research, treatments and support. #MillionsMissing #NEISVoid

From riding enduro with my son in 2018 to being bedbound with very severe #MECFS in 2025 - 7 years in, I’ve lost everything. #MillionsMissing #NEISvoid #MyalgicEncephalomyelitis #severeME #pwME

Severe #MECFS has taken almost everything, but research, treatments, and recognition can change lives. It’s time the world sees us and acts. #ChronicIllness #InvisibleIllness #MEAwareness #HealthEquity #PatientVoices

Please read this important perspective on how kids and families can be affected by #LongCovid archive.ph/7mtb8 “It is so critically important to raise this awareness that children of all ages, even infants and toddlers, can experience long COVID,” Rachel Gross, MD, MS 👏👏

Hear, hear. Now that said, we are not saying that all Long COVID cases are ME or present w/ PEM. Just to be extra clear. But what you/we state is the real honest & brutal truth. We are where we are, recognition, research, and clinical care wise, because of what they did to ME/CFS

Leben in Dunkelheit und Stille – warum Marc Kirch seinen Suizid plant Prof. Karl Lauterbach Dorothee Bär Nina Warken Stefan Schwartze moz.de/lokales/bernau… BMFTR Bundesgesundheitsministerium

Why some say it’s an uphill battle for kids with long COVID The condition is estimated to affect around six million children in the U.S. While Canada has no similar reporting for children, a 2023 report found 19 per cent of Canadian adults developed long archive.ph/2025.08.17-113…

#PEM ≠ intolerance to exercise PEM = disability + payback which consist in an exacerbation of symptoms, after and decoupled from the level of any type of physical, mental a/o emotional exertion, as well as lowering of one’s previous ability to function and survive. #MECFS #pwME

It’s looking like my post-DecodeME grant number 1 is going to be looking for abnormal mitophagy in primary cell lines from pwME. Samples, personnel and techniques already in place, just need the cash for consumables and labour. This follows the finding of FBXL4 as a risk gene.