UK TTP Registry
@ukttpregistry
The United Kingdom Thrombotic Thrombocytopenic Purpura (TTP) Registry based at University College London.
ID: 1278996313527500804
17 Tweet
106 Followers
107 Following
Research charities like British Heart Foundation play a key role in UK science & research. But due to Covid-19, catastrophic funding cuts risk the slowing of medical advances that save lives. 50+ MPs have written to Rishi Sunak raising this vital issue. theguardian.com/science/2020/j… #ResearchAtRisk
Thanks to all UK #TTP treaters UK TTP Registry and @BloodJournal for sharing this valuable data informing ‘real world’ use of Caplacizumab with the wider TTP Network- helping to guide best practice in rare disease
Want to star in a #RareDiseaseDay video to help highlight the diversity of the rare community? Especially looking to hear from young adults with a rare condition from minority ethnic communities/ the LGBTQI+ community. Email [email protected] by 12 Jan.