🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Our friends in UCD School of Nursing, Midwifery & Health Systems are seeking rare disease parents - 👩‍👧 Raising a child with a #raredisease? Your experiences matter! Help researchers understand the financial & social impact of rare diseases on families in Ireland via a 30 minute survey! tinyurl.com/bdhwd2az

REMINDER: Our CDNT family survey is closing on Wednesday April 30, surveymonkey.com/r/FCTSBTP. The survey takes approximately 10minutes to complete. If you would like additional time to complete the survey, please email [email protected].

Join our Policy and Public Affairs Manager Clare Duffy on Friday May 9th from 10.30am to get better understanding of both Carer's Allowance and Carer's Benefit. There will be space for questions throughout. Register at eventbrite.ie/e/carers-allow…

✨The Decision Support Service turns 2!✨ The DSS was established for adults who may require help, now or in the future, to exercise their right to make decisions about their personal welfare, property, or affairs. #MyDecisionsMyRights #DSSturns2

Epilepsy - Who Cares? | Epilepsy Ireland ⁦Mike Masterson⁩ ⁦Mary Vasseghi⁩ ⁦Epilepsy Ireland⁩ 💪 epilepsy.ie/content/epilep…

Excellent showcase of graduates research UCD College of Health & Agricultural Science research students symposium University College Dublin congratulations to all the presenters and special mention to Yvonne McCague UCD School of Nursing, Midwifery & Health Systems for presenting her research focused on psychological impact of paediatric chronic constipation 👏

The exclusion of “Grace’s” legal submissions from the Commission’s report is a deeply worrying development that must be addressed to ensure accountability and prevent similar failures in the future. Read our response to the statement on our website here: inclusionireland.ie/news-events/we…

This year we are going to share one important fact about TSC each day during the month of May. Please do share these with family, friends and social media to help increase awareness and understanding. Thank you 💙🩵💚 #TSC #

#raredisease#TSC#

#TSC #RareDisease #raisingawareness

#TSC #infantilespasams #epilepsy Epilepsy Ireland Mike Masterson Laura Enright Mary Vasseghi

Share your experiences of the challenges faced by a family when a child is diagnosed with a #RareDisease tinyurl.com/bdhwd2az Help us to understand what matters most for people living with rare diseases.

Looking for the latest in #ClinicalTrials for rare diseases? We've got you covered! Explore ongoing trials, discover innovative treatments, and stay informed on groundbreaking research. Check out our current clinical trials page for all the details 👉 rarediseaseresearch.ie/current-clinic…

The National Rare Diseases Office has launched new Rare Diseases Education Programme which is now available on HSELand for all healthcare professionals. To enroll in the programme, log in to HSELand and search ‘Rare Diseases Education Programme’: hseland.ie

🧠This #TSCAwarenessDay, we’re highlighting research from Mary Vasseghi, revealing the need for more coordinated care for people with TSC in Ireland. Her work offers a clear path forward—starting with the creation of a national care coordinator role. 🔗futureneurocentre.ie/moving-toward-…

We are looking foward to our upcoming family day .#strongertogether Claire Behan (O'Rourke) Colin Doherty D Ferguson FutureNeuro Centre Epilepsy Ireland Mike Masterson

Applications are now open for a fully funded PhD scholarship in partnership with Stewarts Care, focusing on optimising the potential for equine assisted therapy to benefit children and adults with an intellectual disability. ✉️ Informal queries can be emailed to Dr Martin

Mary awarded her PhD today ! Inspiring grit and determination can achieve wonderful things . #strongertogether Claire Behan (O'Rourke) Colin Doherty Laura Enright D Ferguson Mike Masterson

Congratulations to the brilliant Mary Vasseghi on becoming Dr Mary Desmond Vasseghi! Her PhD in rare disease research is so well deserved. She’s been a shining presence on our management committee, PPI Panel, and at our conference. What a milestone! 🎓👏

We've created 10 eLearning courses which seek to provide family carers with essential information and guidance across many aspects of caring. Each course includes an introduction and overview, and you can access them any time that suits you. 🔗familycarers.ie/carer-supports…