EBMT Patient Advocacy Committee
@theebmt_pac
The EBMT PAC consists of European Patient Advocates, representing the patients' voice contributing to EBMT organization and activities since 2018
ID: 1353399816492118016
24-01-2021 17:51:29
238 Tweet
326 Followers
185 Following
#EBMT22 #PatientAdvocacy Natacha Bolaños EBMT Patient Advocacy Committee "Every time we talk about a patient, we talk about a family. Many hospitals now don't know who is going to pay specialised care and innovative treatments. Some centers in some countries cannot assume that burden by themselves"
As #EBMT22 closes today, more info on #BMT #Survivorship at April 30-May 6 BMT InfoNet symposium. #BoneMarrowTransplant #Patients & #Carers register here 👉symposium.bmtinfonet.org #GvHD #FatigueManagement #Nutrition #PhysicalActivity #Neuropathy #MemoryChallenges #SexualHealth
Looking very much forward to presenting the results of S-FAST, a The EBMT Transplant Complications Working Party & EBMT Nurses study (with input from EBMT Patient Advocacy Committee) on sexual function in survivors after allo-#BMTsm and their partners later today at #EBMT22! The EBMT Trainee Committee
#EBMT22 Natacha Bolaños speaks about accessibility of cellular therapies and patient advocacy. Thanks for highlighting such important aspects of delivering cures to our patients! The EBMT EBMT Patient Advocacy Committee EBMT_Cellular_Therapy
It has been my pleasure to be part of this session, lot of challenges to think about know, to determine how patient advocates can best contribute to improve and expand access. Lymphoma Coalition EBMT Patient Advocacy Committee European Hematology Association ESMO - Eur. Oncology ELI @sehh_es
The EBMT Patient Advocacy Committee received from you a legacy that will support the growth of patient involvement, and the growth of The EBMT as a whole. Thanks Bregje Verhoeven for your commitment, beautiful leadership style, for co-creating with so many and for allowing me to work at your side
If you are motivated in reducing #Cancer inequalities in the EU please sign the Open Letter to be passed to the European Parliament, the European Commission and the national governments of the EU countries. Lymphoma Coalition WECAN EBMT Patient Advocacy Committee European Hematology Association bit.ly/3ww5GJ5
It's official! 📰🎉 In a benevolent visit to the Barcelona office 🌴🏢 this morning Nicolaus Kröger was able to carry out the old Presidential custom of handing the hammer 🔨 to the new EBMT President 🎓. Congratulations Anna Sureda and thank you Nicolaus for all these years! 👏
At the End of our annual BMT nurses meeting, Thomas Jezequel from CHU de Nantes talks about the next #EBMT23 AM in Paris. There is a great program planned for nurses and at the patient, family and donors day. Stay tuned on our social networks for more informations ℹ️
Now we need to get this data aligned with patient outcomes in the patient survey, and collected at registry level! EBMT Patient Advocacy Committee EBMT_Cellular_Therapy Lymphoma Coalition Lysa Lymphoma European Hematology Association Silvia Montoto Anna Sureda GELTAMO Lymphoma and Related Diseases Registry Lorna Warwick
Underlying #patient factors include #caregivers, accomodation, logistics issues, and tolerance to toxicities. These match with the Lymphoma Coalition global patient survey data, but we can even expand on more detailed definition and recommendations to facilitate access. #PatientCare
