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We’re well on our way to developing a UK Cerebral Visual Impairment framework. So far we’ve listened to education and a session with orthoptics next week. So next it’s parents and carers. Keen to hear the problems and barriers you’ve experienced. [email protected]

Cathy Williams will be spreading the word about CVI to paediatric ophthalmologists here, tomorrow! Will post link to the talk when available.

Watch Cathy's talk for the World Society of Pediatric Ophthalmology and Strabismus here, at 2 hours and 43 minutes in: youtube.com/watch?v=ITaiJg…

Our feasibility trial follow up data collection is underway! So grateful to the schools and families for sticking with us through so many changes. Online parent questionnaires are coming in every few seconds! #CVI #FeasibilityRCT #Intervention

We hear this far too often from families, sadly. We must keep researching and raising awareness together to make sure that all children with CVI have access to the support they need. CVISociety CVI Scotland

The CVI Project CVI Scotland Agreed, we pick up the pieces created by this situation, much heartache could be avoided through earlier identification and swift support. This is particularly upsetting when children are in known, ‘high risk’ groups.

Fantastic Conversation about CVI with Dr Kathleen Vancleef and John Ravenscroft. youtu.be/LR6s9z4iyBA Looking forward to reading Kathleen's pre-print publication on early qualitative signs of CVI!

We are very pleased that the protocol papers for our #CVI feasibility study are now published in BMJ_Open Trial: bmjopen.bmj.com/content/11/5/e… Process evaluation: bmjopen.bmj.com/content/11/5/e…

We've had a website refresh! Please check out thecviproject.co.uk 🥳 Many thanks to Hanna at oakshed.co.uk for all her hard work making it look beautiful!

How do children with #CerebralVisualImpairment see? An important study of #CVI-related vision problems The CVI Project Dr Anna Pease 💙 onlinelibrary.wiley.com/doi/10.1111/dm…

Please retweet/share with any parents or carers of primary school children, thank you!

We were delighted to have #CathyWilliams talk to us this morning on #CVI and her important work on improving outcomes for affected children and families - we’ve been so pleased to be able to support this study! ⁦University of Bristol⁩ ⁦University Hospitals Bristol and Weston NHS FT⁩ ⁦National Institute for Health and Care Research⁩

Our new paper offers parent and child perspectives of living with CVI - highlighting the need for better awareness in education and health: doi.org/10.3389/fnhum.…

Yes ⁦Guide Dogs⁩ I know lots of people like Will! What a great initiative. Please share widely! ⁦CVISociety⁩ ⁦CVI Scotland⁩ ⁦Dr Lola Solebo 💙👶🏾👁️👩🏾‍💻⁩ ⁦Caireen Sutherland⁩ ⁦⁦The CVI Project⁩ ⁦John Ravenscroft⁩ ⁦⁦Damien Yeo⁩ ⁦SeeAbility⁩

So far I’ve counted three presentations on cerebral visual impairment and special need eye care in this years @BCOVS2021 programme, Thanks for helping us spread the word.

Very pleased to see our paper describing a core outcome set for trials of interventions for childhood Cerebral Visual Impairment now published: bmjopen.bmj.com/cgi/content/fu… huge thanks to our participants and collaborators 🙌 CACH Bristol CVISociety CVI Scotland #CVI