⁦Teesside Cystic Fibrosis Centre⁩ attending ⁦Vitalograph⁩ paediatric spirometry workshop. Meeting ARTP standards for lung function tests 💨

Please sign and support people with CF to be able to claim free prescriptions. Petition: Free prescriptions for all cystic fibrosis (CF) patients petition.parliament.uk/petitions/6337…

Supporting free prescriptions for people with cystic fibrosis in England: join us? CysticFibrosisPaedsTeamGNCH CFAdultNewcastle Teesside Cystic Fibrosis Centre petition.parliament.uk/petitions/6337…

It was nice to return to a face to face meeting of our annual “North East CF Club” tonight. It was great to see our regional colleagues and share experiences of the new era of CF care. Here is our very own Dr Duffy presenting on CF and Pregnancy 🤰🏻

Pleased to be able to share this nice piece of work from ManchesterCFResearch and Chris van der Gast team at MMU. Posting sputum back to the lab does not reduce our ability to culture CF bugs! sciencedirect.com/science/articl…

Nutrition and Hydration week in CYPED, #anappleadaykeepsthedoctoraway #hydrationstation #NHW2023 @ste_mck1 Michael Souter Cathy Brammer Eoin McCarthy ALICE🦋.

We’re developing training resources to help CF centres improve exercise provision for people with #cysticfibrosis. If you’re an adult with CF, or a healthcare professional, you can help by filling in our survey about exercise and CF. ➡️ ow.ly/IJle50NmNBK

We also have a brilliant supportive social worker. I’m sure our families will agree Sara is amazing too

Petitions that get shared more often, get more signatures. If you know someone with CF please share this every day this week. Thanks. petition.parliament.uk/petitions/6337… Wessex Adult CF Service @ChildrensUnit Blackpool Adult Cystic Fibrosis Service @CF_PROSPER Salty Teesside Cystic Fibrosis Centre Nick Luck York Hull Adult CF Centre #cfaware

Good luck team ☘️

We need your help to reach our survey response goal! Here are three simple steps you can take to help out: ⭐ Fill in the survey. ⭐ Share the survey with your friends and family. ⭐ Retweet this post. Make your voice heard today! 🔗 surveymonkey.co.uk/r/YourlifeandCF

Exciting opportunity 👀

Paeds physios! Questionnaire on Infant/Baby PEP provision in UK and Ireland. Big variations in the way baby PEP is taught, the questionnaire aims to identify any consensus. forms.gle/a2KSnVjmxCxgN6… Any questions please contact Emma Dixon Emma DIXON Many thanks!

Worth reflecting on #InternationalClinicalTrialsDay quite how far cf care has come, not just through modulators. It’s an amazing story, driven by clinical trials and by amazing people (patients and researchers).

Do you receive any hospital-prescribed medicines directly to your home? Have you experienced any problems? With a recent review announced of a homecare delivery company, we want to hear about your experiences. Click the link to fill in the survey: surveymonkey.co.uk/r/ZPDSSNM

And here’s a link to the paper I presented last week at #ecfs2023. Important to know that research into better treatments continues and doesn’t end with kaftrio. #CysticFibrosisweek

A huge congratulations to childrens outpatients JCUH for achieving a diamond accreditation 💎 Truely putting children, young people and their families at the heart of all they do! @hilarylloyd13 Natalie Cockfield Sue Pitts Nicola Howe

Following NICE's statement today, our Chief Executive, David Ramsden, has shared the following video, giving an update on where things stand. You can read the statement from NICE here. ➡️ ow.ly/JlwO50QwhLv

Thought provoking presentation by Charlie Dawson Great Ormond Street Hospital for Children on the ever evolving role of the CF nurse #ECFS2024 Cystic Fibrosis Nurses Association UK

Excellent conference. Lots of learning and networking. Great ideas to take back to Teesside Cystic Fibrosis Centre team. Exciting times in cystic fibrosis care #ecfs2024