Many thanks to B. Arman Aksoy for amplifying this important initiative! We're seeking photos & perspectives from #singleventricle patients & parents that would like to share their stories with our research community at #SVIM2022 ➡️ forms.gle/39fto2KDp2k2u1… x.com/armish/status/…

I hope to see you all there! So excited to share these two amazing initiatives where I am honored to spend my time.

Grateful to be 1 in a million 🙏🏼🫀♻️

It's a beautiful day in Baltimore, MD! #SVIM2022 kicks off today at 4 PM with keynotes from Jameson Rich, Kirstie Keller, PhD, Michel Puceat & @allen_kiona - followed by a fireside chat on #singleventricle funding landscape Check in 2-8 PM - See you soon! cvent.me/3PD9lD

Wanna take a sec to compliment Additional Ventures for the ways they’ve connected the physicians & researchers with patients @ #SVIM2022. Everyday btw sessions they play these messages from the families about their hopes & fears. It’s emotional. It’s real. It’s motivating. Thank you.

Very excited & proud to publish in JAMA Cardiology our study of remote hypertension and cholesterol management in more than 10,000 patients Brigham and Women's Hospital, bringing specialty care to diverse patients at scale & improving clinical care bit.ly/3zWmBW7, bit.ly/3WZd0b0

Impactful new initiative Cincinnati Children's directed by Dr. Nadine Kasparian supporting physical AND mental health of patients and families affected by #CHD 👏👏 x.com/CincyChildrens…

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“Standing on the edge of death now, I feel compelled,” writes Amy Silverstein (Amy Silverstein, author), “to use my experience in the transplant trenches to illuminate and challenge the status quo.” nyti.ms/3A5qIi2

We're deeply sorry to hear of the loss of Amy Silverstein, who died at 59 on Friday. Amy was a two time heart transplant recipient, brilliant author, and tireless advocate for #truthintransplantation. Her fight goes on, and her work will not be forgotten. cbsnews.com/video/passage-…

👀 We've been cooking up an exciting collaborative opportunity for the field, and we can't wait to share! Stay tuned for something BIG - announcement coming tomorrow❗#fundingopportunity #singleventricle

With $2.25M, how would YOUR team tackle single ventricle sequelae? 💭💡 #fundingopportunity #singleventricle AHA Science Learn more and apply: ow.ly/isYm50PJ1xy 📆 Pre-Proposals (LOIs) are due December 19th!

Great to see Dr. Nadine Kasparian empowering individuals living with #SVHD on how to bring up mental health with their care teams. It’s a team effort. #SVPatientDay FON

As his patient, his former employee, & an overall huge fan of Akshay Desai - this is THE COOLEST! Hope to see a few video clips circulating after this session at #HFSA2023 🫀 🚲 Love the interactivity, the creativity, and the concept 👏🏻 Nir Uriel, MD MSc Katy Fraser

We're just one year away from the Single Ventricle Investigator Meeting 💫 #SVIM2024 convenes Oct 17-19 in Denver, CO! Don't miss out on this incredible opportunity to connect with multidisciplinary researchers & clinicians in the #singleventricle space! cvent.me/WvqEDk

Kicking off the Single Ventricle Investigator Meeting 2024 today in Denver! Ready for an exciting few days 🔬🧬🫀 Additional Ventures #SVIM2024

Full house bright & early this morning at Additional Ventures #SVIM2024 to hear from patients/families with #chd and Keila Lopez MD, MPH 🫀 for discussion on health equity, mental health, behavioral cardiology, & impact of drivers of health on brain connectivity from fetal cards to ACHD 🫡

Scott Leezer “We are fine until we’re not okay, it happens so fast.” We need a sense of urgency and advocacy to help those with CHD now and for a long time in the future

Great debate tonight at the dinner for #SVIM2024. Impactful basic and clinical research presentations with personal stories of SVD that will stay with me throughout my career. Additional Ventures

⁦Additional Ventures⁩ 🧬🔬👏🏻 linkedin.com/posts/addition…