Is Wales ready? A report launched today shows the number of children with life-limiting conditions is rising dramatically. Wales’ two children’s hospice charities need sustainable funding now to meet this unprecedented demand. Find out more here: hopehouse.org.uk/trends-report

Great to see this study making national news - time to prioritise high quality care for children with life limiting conditions Stuart Jarvis Together for Short Lives University of York Cicely Saunders Institute at King's Tŷ Hafan Children's Hospice #pedpc

Looking forward to it!

More coverage for our report on prevalence and complexity of life-limiting conditions among children and young people in Wales, from University of York news pages: york.ac.uk/news-and-event… Underlines need for continued and increased support Tŷ Hafan Children's Hospice Hope House & Tŷ Gobaith Children's Hospices Lorna Fraser

Great chance to hear preliminary findings and provide input on paediatric end of life care research from ENHANCE

Wonder whether Musk will be buying x.org - afterall, the logos already align!

New name, same important research - the former Martin House Research Centre is now the Pediatric Palliative Care Research Group UoYppcrg I'm proud to continue as part of the team working hard on our existing and new research

Full report on prevalence and medical complexity of children with life-limiting conditions in Wales now published: doi.org/10.15124/yao-g… With thanks again to our partners Tŷ Hafan Children's Hospice and Hope House & Tŷ Gobaith Children's Hospices and the study steering committee for their great work on this

Looking forward to presenting UoYppcrg Dept Health Sciences work on medical complexity in children with life limiting conditions using linked routinely collected data this afternoon at #ADRUK2023 (1540, Ashstead 2). Part of our work with National Palliative and End of Life Care Programme Hope House & Tŷ Gobaith Children's Hospices Tŷ Hafan Children's Hospice

Is you child receiving #PalliativeCare in the North East/Yorkshire? Do you know what to do if something goes wrong #OutofHours? UoYppcrg would like to hear your experiences to better understand round-the-clock care. Contact details below 👇

Important to hear a wide range of voices, with experiences good and bad, when assessing healthcare services. A great opportunity to help improve things in the future.

New UoYppcrg paper by Jasmin Abbott on transition from children's to adult healthcare for young people with chronic kidney disease. Shows interesting variations in outcomes by gender and ethnic group link.springer.com/article/10.100…

If anyone knows a 'Stauart jarvis' with expertise in nursing, please pass on this (no doubt excellent 🤔) opportunity 😂 #AcademicSpam

Exciting opportunity for qualitative researcher to join our lovely team UoYppcrg within Dept Health Sciences to work on a national study looking at experiences and needs of young people with a disability in the UK. Job ad: jobs.york.ac.uk/vacancy/resear… Study info: york.ac.uk/healthsciences…

Looking forward to presenting our work on transition from children's to adult care (hall 1 at 1630) and end of life care for children and young people with cancer (hall 3F at 1145) at #EAPC2025 today

Great to see the book 'Research Methods in Palliative, Supportive, and End-of-Life Care' is now published online and soon to come in print academic.oup.com/book/60420 - includes a chapter on epidemiology and big data by Lorna Fraser and me Dept Health Sciences UoYppcrg