When you get to roll your rolls together for a #RareDiseaseDay blog post!

Sunny morning here in Birmingham for the Muscular Dystrophy UK Care Advisor Conference 2025! Education@Sheffield Social Sciences | The University of Sheffield iHuman

‘To me, ventilation is more than you can possibly imagine’. My brilliant @CrippingBreath colleague Dr Suzanne Glover blogging about living with a rare disease and ‘shaking up’ public understandings of ventilation 👍🏻 #RareDiseaseDay

It felt SO good to be back with our greyhound friends today 🥰

Meet our fabulous Community Researchers 🤩 Community Researcher Cooperative | Cripping Breath | The University of Sheffield ⁦Education@Sheffield⁩ ⁦DisabilityMatters⁩ ⁦⁦Wellcome⁩ ⁦⁦iHuman⁩ sheffield.ac.uk/cripping-breat…

Nope, not spoilt at all.

*New blog post* by team member Dr Louise Atkinson Nerys Johnson: Disability and Practice sheffield.ac.uk/cripping-breat… Dr. Kirsty Liddiard DisabilityMatters Education@Sheffield Social Sciences | The University of Sheffield CRIPtic Arts thearthouseuk Grace Joseph Jennifer Kettle 🕷️ Julie Ellis Dr Suzanne Glover Jamie Hale

Our researchers Dr Suzanne Glover & Jennifer Kettle 🕷️ met with the Co-production Collective today. It's a fantastic connection - learn more here coproductioncollective.co.uk DisabilityMatters Wellcome Dr. Kirsty Liddiard Education@Sheffield Social Sciences | The University of Sheffield

We have 2 chapters coming out in the Handbook of Critical Respiratory Studies: Breath & Air in Humanities & Social Sciences (Springer 2025) 🤩 Grace Joseph Jennifer Kettle 🕷️ Dr Suzanne Glover Dr Louise Atkinson Jamie Hale Julie Ellis DisabilityMatters Education@Sheffield Social Sciences | The University of Sheffield

New blog post by our fantastic community researchers! Blog post #7 Experts by experience: Our Community Researcher Cooperative sheffield.ac.uk/cripping-breat… Dr. Kirsty Liddiard Dr Louise Atkinson Jamie Hale CRIPtic Arts Grace Joseph Julie Ellis Jennifer Kettle 🕷️ Dr Suzanne Glover

It’s really cool to see years of research having REAL LIFE implications. Please share with DMD adults, families and professionals 🎉

WE'RE HIRING We're looking for an experienced communications and engagement professional to improve our content, reach and user engagement. Apply here: charityjob.co.uk/jobs/pathfinde…

'For people who live with ventilation, breathing is not something that comes naturally and not something that comes for free.' sheffield.ac.uk/cripping-breat… #WorldHMVDay #CareIsKey @hmvip Muscular Dystrophy UK Spinal Muscular Atrophy UK Pathfinders Neuromuscular Alliance Education@Sheffield DisabilityMatters

'The cost of breathing is something that most never need to think about, but for those who rely on ventilators, many face an uncertain financial future without radical change to recognise that assisted breathing is an essential cost...' sheffield.ac.uk/cripping-breat… #WorldHMVDay

Our brilliant Research Associate & Community Research Lead Dr Suzanne Glover is speaking at this great event 🙌🏽 Learn more here britsoc.co.uk/events/key-bsa… Dr. Kirsty Liddiard Julie Ellis Jennifer Kettle 🕷️ Dr Louise Atkinson Jamie Hale Pathfinders Neuromuscular Alliance DisabilityMatters Education@Sheffield

Our fantastic Research Associate & Lead Community Researcher Dr Suzanne Glover was at the Muscular Dystrophy UK conference yesterday 🙌 Pathfinders Neuromuscular Alliance Dr. Kirsty Liddiard DisabilityMatters Education@Sheffield Social Sciences | The University of Sheffield Grace Joseph Julie Ellis Jennifer Kettle 🕷️ CRIPtic Arts

Thrilled for this article to be out - open access, so take a look! @CrippingBreath Cripping inquiry: breathing life into co-produced disability methodologies frontiersin.org/journals/socio…

🚂 Full Steam Ahead for PRAG! On Monday we successfully held our first Research Advisory Group meeting! A big thank you to everyone who attended and contributed – your insights were invaluable. Interested in joining? Sign up here: forms.gle/d9pp3bXrjW7LP4…

New paper: “Social Care and Young Adults with Neuromuscular Conditions Diagnosed in Childhood: A Co-Produced Scoping Review” Work led by George Peat Northumbria Uni northumbria.ac.uk/about-us/our-s… Funded with a career development award from NIHR School for Social Care Research

Check out our Research Team's latest publication on Social Care and Young Adults with Neuromuscular Conditions Diagnosed in Childhood: A Co-Produced Scoping Review! You can read it here: journal.ilpnetwork.org/articles/10.31…