STAND_Trial (@stand_trial) 's Twitter Profile
STAND_Trial

@stand_trial

'Sativexยฎ for the Treatment of AgitatioN in #Dementia' in #carehomes @KingsIoPPN/@MaudsleyNHS. Funded by @AlzResearchUK ๐ŸŠ. Tweets by @sim_neuro/@_ChrisAlbertyn

ID: 1411019332688154627

linkhttps://www.facebook.com/standtrialkcl/ calendar_today02-07-2021 17:50:14

250 Tweet

90 Followers

169 Following

Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

There's nothing like a primary endpoint visit for a #trial...there's a 'buzz in the air'...crucial data about to be collected! And something so comforting for me being in a #carehome ๐Ÿฅฐ...it's where I started 7yrs ago...and where I think SO much good can be done! Dementia Researcher

There's nothing like a primary endpoint visit for a #trial...there's a 'buzz in the air'...crucial data about to be collected! And something so comforting for me being in a #carehome ๐Ÿฅฐ...it's where I started 7yrs ago...and where I think SO much good can be done! <a href="/dem_researcher/">Dementia Researcher</a>
Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

Sadly, today is Sim's last day on Alzheimer's Research UK's STAND_Trial Centre for Healthy Brain Ageing, KCL, Institute of Psychiatry, Psychology & Neuroscience โ˜น๏ธ. Sim has been an invaluable team member...innovative, dedicated, intuitive & delightful - future employers should snap her up quick! Wishing you all the best for your next step Sim! ๐Ÿ˜Š

Alzheimer's Society (@alzheimerssoc) 's Twitter Profile Photo

We are pleased to hear Prime Minister Boris Johnson has announced a new โ€˜national dementia missionโ€™ in honour of the late Dame Barbara Windsor. This mission gives further commitment to tackle one of the greatest health challenges facing the UK. [1/5]

Alzheimer's Research UK (@alzresearchuk) 's Twitter Profile Photo

It's great to see the progress Alzheimer's Research UK researcher Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ and the STAND_Trial team are making. They're looking at whether a cannabis-derived medicine can help agitation in people with Alzheimerโ€™s disease ๐Ÿง  #ResearchWillWin (1/4)

Andrew C ๐ŸŠ (@andrewcornwall5) 's Twitter Profile Photo

Well done, Chris! Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ #ThankYou again for involving MALADY Grp (inc. me) in your trial design & production. So important to decrease the need for #antipsychotics & improve #qualityoflife ppl #LivingWithDementia! STAND_Trial #cannabinoids #MakeBreakthroughsPossible๐ŸŠ

Dementias Platform UK (@dementiasuk) 's Twitter Profile Photo

๐Ÿง  We're pleased to be working with brain health clinics across the UK as part of our efforts to enhance the set-up and delivery of dementia studies and trials. Contact us at [email protected] if you'd like to know more or become part of the network.

๐Ÿง  We're pleased to be working with brain health clinics across the UK as part of our efforts to enhance the set-up and delivery of dementia studies and trials.

Contact us at dpuk@psych.ox.ac.uk if you'd like to know more or become part of the network.
Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

Where do trialists register their RCTs? The Health Research Authority/Department of Health and Social Care recommend ISRCTN: the UK's Clinical Study Registry (hra.nhs.uk/planning-and-iโ€ฆ)...but this meant STAND_Trial was left out of this annual review which used clinicaltrials.gov โ˜น๏ธ(alz-journals.onlinelibrary.wiley.com/doi/10.1002/trโ€ฆ - one of my fav's ๐Ÿ˜!!). Any advice?

Where do trialists register their RCTs? <a href="/HRA_Latest/">The Health Research Authority</a>/<a href="/DHSCgovuk/">Department of Health and Social Care</a> recommend <a href="/ISRCTN/">ISRCTN: the UK's Clinical Study Registry</a>  (hra.nhs.uk/planning-and-iโ€ฆ)...but this meant <a href="/stand_trial/">STAND_Trial</a> was left out of this annual review which used clinicaltrials.gov โ˜น๏ธ(alz-journals.onlinelibrary.wiley.com/doi/10.1002/trโ€ฆ - one of my fav's ๐Ÿ˜!!). Any advice?
Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

When did I start thinking about STAND_Trial? Almost 6 yrs ago! It defo has been a 'long & winding road' as Sir Paul would say ๐Ÿ˜œ. Shout out to Dr Amir Englund for being one of my first consults ๐Ÿ˜!! Lots of errors corrected in this 1st email exchange (got my phases mixed up ๐Ÿ˜…)

When did I start thinking about <a href="/stand_trial/">STAND_Trial</a>? Almost 6 yrs ago! It defo has been a 'long &amp; winding road' as Sir Paul would say ๐Ÿ˜œ. Shout out to Dr <a href="/AmirEnglund/">Amir Englund</a> for being one of my first consults ๐Ÿ˜!! Lots of errors corrected in this 1st email exchange (got my phases mixed up ๐Ÿ˜…)
Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

This makes me so sad ๐Ÿ˜ข. It's a STAND_Trial participant. Either the care home didn't have capacity to do any non pharma interventions...or the residents symptoms were so severe that they weren't feasible. Either way, my heart breaks for this person โค๏ธ Understanding Patient Data Patients Know Best

This makes me so sad ๐Ÿ˜ข. It's a <a href="/stand_trial/">STAND_Trial</a> participant. Either the care home didn't have capacity to do any non pharma interventions...or the residents symptoms were so severe that they weren't feasible. Either way, my heart breaks for this person โค๏ธ <a href="/Patient_Data/">Understanding Patient Data</a> <a href="/patientsco/">Patients Know Best</a>
Jonathan Schott (@jmschott) 's Twitter Profile Photo

Breaking news: Eli Lilly and Company Phase 3 trial of Donanemab is positive, showing significant slowing on cognitive and functional outcomes. Now we have two positive trials showing effects of amyloid clearance in Alzheimer's disease-- hugely exciting times! investor.lilly.com/news-releases/โ€ฆ

Breaking news: <a href="/EliLillyandCo/">Eli Lilly and Company</a> Phase 3 trial of Donanemab is positive, showing significant slowing on cognitive and functional outcomes. Now we have two positive trials showing effects of amyloid clearance in Alzheimer's disease-- hugely exciting times! investor.lilly.com/news-releases/โ€ฆ
Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

Alzheimer's Research UK funded STAND_Trial protocol published. Thank you to all Dementia Researcher partners for your hard work & guidance! Special mention to #DrIskanderJohar (RIP โค๏ธ), without whom, this would never have happened๐Ÿ™! โžก๏ธ healthopenresearch.org/articles/5-18/โ€ฆ Centre for Healthy Brain Ageing, KCL Institute of Psychiatry, Psychology & Neuroscience Ageing Research KCL

<a href="/AlzResearchUK/">Alzheimer's Research UK</a> funded <a href="/stand_trial/">STAND_Trial</a> protocol published. Thank you to all <a href="/dem_researcher/">Dementia Researcher</a> partners for your hard work &amp; guidance! Special mention to #DrIskanderJohar (RIP โค๏ธ), without whom, this would never have happened๐Ÿ™!

โžก๏ธ healthopenresearch.org/articles/5-18/โ€ฆ

<a href="/KCL_OAP/">Centre for Healthy Brain Ageing, KCL</a> <a href="/KingsIoPPN/">Institute of Psychiatry, Psychology & Neuroscience</a> <a href="/ARK_KCL/">Ageing Research KCL</a>
Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

Sign of a decent recruitment push when you're still getting email enquiries from potential participants ~yr after close? I'm getting ~2 per week...and it's heartbreaking tbh...STAND_Trial was public/patient inspired, and it continues that way! โค๏ธ The Health Research Authority Made WITH Patients

Chris Albertyn ๐ŸŠ ๐Ÿ‡ฌ๐Ÿ‡ง ๐Ÿ‡จ๐Ÿ‡ฆ (@_chrisalbertyn) 's Twitter Profile Photo

STAND_Trial *finally* given the green light to lock the database (ie fully audited etc). So excited to get my hands on unblinded data soon! ๐Ÿ˜Š ๐Ÿ™Œ #CelebrateTheSmallWins Research at ARUK Institute of Psychiatry, Psychology & Neuroscience Dementia Researcher "Do you know what I wanna do?!...#strut!": youtube.com/watch?v=aJ3VXVโ€ฆ