Spina Bifida Association (@spinabifidaassn) 's Twitter Profile
Spina Bifida Association

@spinabifidaassn

Working to build a better and brighter future for all those impacted by Spina Bifida.

ID: 34249165

linkhttp://www.spinabifidaassociation.org calendar_today22-04-2009 11:51:44

6,6K Tweet

27,27K Followers

19,19K Following

Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

Dr. Laura Hobart-Porter values Teal on the Hill as a vital way to advocate for her patients and support SBA-backed resources. πŸ—“οΈ Join virtually March 2-4, 2025β€”register by Feb 7 to meet with Congress! πŸ‘‰ Sign up: bit.ly/4gFIBb2

Dr. Laura Hobart-Porter values Teal on the Hill as a vital way to advocate for her patients and support SBA-backed resources.

πŸ—“οΈ Join virtually March 2-4, 2025β€”register by Feb 7 to meet with Congress!
πŸ‘‰ Sign up: bit.ly/4gFIBb2
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

Born out of a need, @billyfootwear was founded on the principle of inclusion. Alongside an incredible team, Billy strives to add value to the lives of others and make a measurable difference in the world, one foot at a time. Join us March 13 ➑️ bit.ly/412qTcj

Born out of a need, @billyfootwear was founded on the principle of inclusion. Alongside an incredible team, Billy strives to add value to the lives of others and make a measurable difference in the world, one foot at a time.
Join us March 13 ➑️  bit.ly/412qTcj
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

Community Information Session on Medical Trauma and Adults with Spina Bifida πŸ—“οΈ March 25 πŸ•– 7PM ET/4PM PT πŸ”— bit.ly/4hXo95R

Community Information Session on Medical Trauma and Adults with Spina Bifida
πŸ—“οΈ March 25 
πŸ•– 7PM ET/4PM PT
πŸ”—  bit.ly/4hXo95R
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

After facing homecare challenges, Santara Sen learned the power of advocacy. A longtime SBAGNE member, she values community support, fueling her passion for leadership. Excited to return to Teal on the Hill, she’s ready to make an impact! Register: bit.ly/4gFIBb2

After facing homecare challenges, Santara Sen learned the power of advocacy. A longtime SBAGNE member, she values community support, fueling her passion for leadership. Excited to return to Teal on the Hill, she’s ready to make an impact!

Register: bit.ly/4gFIBb2
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

⏳ Time is running out! Register for the Spina Bifida Clinical Care Meeting (SBCCM) before the Feb 28 early bird deadline. Connect with experts & explore the latest in care. πŸ“… June 5-7, 2025 πŸ”— Register now: eventcreate.com/e/2025-spina-b…

⏳ Time is running out! Register for the Spina Bifida Clinical Care Meeting (SBCCM) before the Feb 28 early bird deadline. Connect with experts & explore the latest in care.

πŸ“… June 5-7, 2025
πŸ”— Register now: eventcreate.com/e/2025-spina-b…
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

πŸ“’ Join SBA of North Texas for Education Day Featuring sessions for teens, adults, parents & caregivers + keynote speaker, our own, Judy Thibadeau sharing the latest on SBA programs, research & education. πŸ“… March 1, 2025 πŸ“ Frisco, TX πŸ”— Register: app.giveffect.com/campaigns/3665…

πŸ“’ Join SBA of North Texas for Education Day

Featuring sessions for teens, adults, parents & caregivers + keynote speaker, our own, Judy Thibadeau sharing the latest on SBA programs, research & education.

πŸ“… March 1, 2025
πŸ“ Frisco, TX
πŸ”— Register: app.giveffect.com/campaigns/3665…
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

MedStar National Rehabilitation Hospital in DC is recruiting adults (18+) with neurogenic bladder for a study on probiotic bladder wash dosage. Some may qualify to provide urine samples for $20 each. Contact Chris Riegner at [email protected] or (202) 877-1560

Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

Join Sarah Dimeglio, Gina Powley, & Rachel Boeche from Hollister Inc. as they answer common catheter questions. Learn how to make informed choices, advocate for yourself, and find the right fit. Packed with useful tips! Listen now: bladderbuzzpodcast.buzzsprout.com/1290071/episod…

Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

🚨 Early Bird Deadline Extended! 🚨 Great news! You now have until March 14 to lock in early bird registration for SBCCM 2025! Join us June 5-7 for cutting-edge discussions, innovative solutions & top-tier networking in Spina Bifida care. πŸ”— Register now: eventcreate.com/e/2025-spina-b…

🚨 Early Bird Deadline Extended! 🚨
Great news! You now have until March 14 to lock in early bird registration for SBCCM 2025! Join us June 5-7 for cutting-edge discussions, innovative solutions & top-tier networking in Spina Bifida care.

πŸ”— Register now: eventcreate.com/e/2025-spina-b…
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

The 2025 Spina Bifida Clinical Care Meeting agenda is now available! View the full event schedule and register today at sbclinicalcaremeeting.org. Early bird rates end TOMORROW, March 14, 2025. Register today to secure your lowest rate.

The 2025 Spina Bifida Clinical Care Meeting agenda is now available! View the full event schedule and register today at sbclinicalcaremeeting.org. 

Early bird rates end TOMORROW, March 14, 2025. Register today to secure your lowest rate.
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

Community Information Session - Medical Trauma and Adults with Spina Bifida πŸ—“οΈ Tuesday, March 25, 2025 πŸ•– 7 PM EST/ 6 PM CT/ 5 PM MT/ 4 PM PST πŸ”— give.sbaa.org/event/communit…

Community Information Session - Medical Trauma and Adults with Spina Bifida
πŸ—“οΈ Tuesday, March 25, 2025
πŸ•–  7 PM EST/ 6 PM CT/ 5 PM MT/ 4 PM PST
πŸ”— give.sbaa.org/event/communit…
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

Community Information Session - Navigating Employment and Benefits at Age 18 πŸ—“οΈ April 3, 2025 πŸ•– 7 PM EST/ 6 PM CT/ 5 PM MT/ 4 PM PST πŸ”— bit.ly/3FuzQD6

Community Information Session - Navigating Employment and Benefits at Age 18
πŸ—“οΈ April 3, 2025
πŸ•– 7 PM EST/ 6 PM CT/ 5 PM MT/ 4 PM PST
πŸ”— bit.ly/3FuzQD6
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

New fact sheet from MedStar Health: Probiotic Lactobacillus is Safe and Well Tolerated When Instilled in the Bladder. Click the link below to learn more. spinabifidaassociation.org/wp-content/upl…

Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

What is Neurogenic Lower Urinary Tract Dysfunction (NLUTD)? Learn more at the link below. spinabifidaassociation.org/wp-content/upl…

Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

πŸ”Ή 2025 Spina Bifida Clinical Care Meeting Session Highlight πŸ”Ή Genetics in Spina Bifida: Where Are We Today? Presented by Rick Finnell, PhD Register for the 2025 Spina Bifida Clinical Care Meeting held at Children's of Alabama June 6-7, 2025. sbclinicalcaremeeting.org

πŸ”Ή 2025 Spina Bifida Clinical Care Meeting Session Highlight πŸ”Ή

Genetics in Spina Bifida: Where Are We Today? Presented by Rick Finnell, PhD

Register for the 2025 Spina Bifida Clinical Care Meeting held at Children's of Alabama June 6-7, 2025. sbclinicalcaremeeting.org
Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

Check out this Bladder Buzz podcast episode. Learn more about incontinence in aging women with Dr. Zhina Sadeghi, a leading urology expert. buzzsprout.com/1290071/158866…

Spina Bifida Association (@spinabifidaassn) 's Twitter Profile Photo

New fact sheet from MedStar Health: Probiotic Lactobacillus is Safe and Well Tolerated When Instilled in the Bladder. Click the link below to learn more. spinabifidaassociation.org/wp-content/upl…