Shaun (@shaunneppl) 's Twitter Profile
Shaun

@shaunneppl

NF (Neurofibromatosis),FNF, Raising Awareness for NF one wristband at a time.

ID: 100598091

linkhttps://gf.me/u/yg34q3 calendar_today30-12-2009 21:19:02

1,1K Tweet

155 Followers

661 Following

Shaun (@shaunneppl) 's Twitter Profile Photo

Surgery #4 Nov 9th Philadelphia. Tyler will undergo left frontal craniotomy 4-5 hour surgery, one week hospital. Tyler is missing the portion of bone in the skull that protects the eye and optic nerve. Please keep him in your prayers. #ENDNF #IKNOWAFIGHTER #TEAMTYLER

Surgery #4  Nov 9th Philadelphia. Tyler will undergo left frontal craniotomy 4-5 hour surgery, one week hospital.  Tyler is missing the portion of bone in the skull that protects the eye and optic nerve. Please keep him in your prayers. #ENDNF #IKNOWAFIGHTER #TEAMTYLER
Shaun (@shaunneppl) 's Twitter Profile Photo

Challenge time!! Can I get 100 friends and family to donate $5 today?! When your done comment below so we can see you! #TEAMTYLER #ENDNF gf.me/u/yg34q3

Shaun (@shaunneppl) 's Twitter Profile Photo

#TEAMTYLER #ENDNF wristbands are in. You can donate through the Go Fund Me link or DM for more details. gofundme.com/f/tyler-neppls…

#TEAMTYLER #ENDNF wristbands are in. You can donate through the Go Fund Me link or DM for more details. gofundme.com/f/tyler-neppls…
Shaun (@shaunneppl) 's Twitter Profile Photo

Wristbands $5/ea and T shirts $25 proceeds to help offset costs of Brain surgery in November. DM for information #ENDNF #TEAMTYLER

Wristbands $5/ea and T shirts $25 proceeds to help offset costs of Brain surgery in November. DM for information #ENDNF #TEAMTYLER
Shaun (@shaunneppl) 's Twitter Profile Photo

Get me out of here!!! 5 days after brain surgery he is out. His brother and grandma got here today so we are enjoying the time together. Thank you EVERYONE for the prayers, texts, phone calls and well wishes. TeamTyler is extremely grateful to you all!! #TeamTyler #EndNF

Shaun (@shaunneppl) 's Twitter Profile Photo

Hard to believe it’s been over a week already since Tyler’s surgery. His incision is healing better than imagined, swelling is less each day and pain is manageable by pretty much Tylenol/Ibuprofen only now. First follow up appointment is scheduled for Thursday. #TeamTyler #EndNF

Hard to believe it’s been over a week already since Tyler’s surgery. His incision is healing better than imagined, swelling is less each day and pain is manageable by pretty much Tylenol/Ibuprofen only now. First follow up appointment is scheduled for Thursday. #TeamTyler #EndNF
Shaun (@shaunneppl) 's Twitter Profile Photo

Can’t believe it’s been a month Picture is Tyler’s new implants. progress is going well,he still has some swelling that will take time to come down. Surgery #2 (5th overall) March 24th back in Philadelphia. Keep are family in your daily thoughts and prayers. #TeamTyler #EndNF

Can’t believe it’s been a month Picture is Tyler’s new implants. progress is going well,he still has some swelling that will take time to come down. Surgery #2 (5th overall)  March 24th back in Philadelphia. Keep are family in your daily thoughts and prayers.

#TeamTyler #EndNF
Shaun (@shaunneppl) 's Twitter Profile Photo

4 surgeries in 3 years and the 5th is 3 weeks from today. Lots of times I tell myself it’s not fair then I look at his attitude on surgery days and think to myself what a tough SOB he is. #TeamTyler #EndNF

4 surgeries in 3 years and the 5th is 3 weeks from today. Lots of times I tell myself it’s not fair then I look at his attitude on surgery days and think to myself what a tough SOB he is. #TeamTyler #EndNF