MNDA SE Wales (@sewalesmnd) 's Twitter Profile
MNDA SE Wales

@sewalesmnd

We provide advice and support to people living with MND and their families in SE Wales. We also fundraise towards national research, to find a cure for MND.

ID: 1456261934

calendar_today25-05-2013 07:29:36

2,2K Tweet

894 Followers

315 Following

MND Association (@mndassoc) 's Twitter Profile Photo

We want to say a huge thank you, again, to Martyn and Anna, for speaking on the realities of being a carer. Watch their story below 💙

MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

We need you! We want to hear from #MND carers. Please share your perspectives, experiences and insights into the financial impact of caring for somebody with MND. It will just take a few minutes to share your views via this survey👇 mndassociation.org/media/latest-n…

MND Education (@mndeducation) 's Twitter Profile Photo

We've revised our wheelchairs information sheet and pathway for professionals! These aim to support HSCPs to provide timely access to appropriate wheelchairs for people with #MND. Download at mndassociation.org/publications, or email [email protected] for hard copies.

We've revised our wheelchairs information sheet and pathway for professionals! These aim to support HSCPs to provide timely access to appropriate wheelchairs for people with #MND. 

Download at mndassociation.org/publications, or email mndconnect@mndassociation.org for hard copies.
LifeArc (@lifearc1) 's Twitter Profile Photo

If you've been affected by motor neuron disease, please take part in our survey. The closing date is 29 May. Your feedback is vital for helping shape the future of MND treatments.

MND Association | Cymru Wales (@mndassocwales) 's Twitter Profile Photo

Next week we're launching our new campaign for the upcoming #GeneralElection. Make sure you check-in on Tuesday when all will be revealed...

Next week we're launching our new campaign for the upcoming #GeneralElection.

Make sure you check-in on Tuesday when all will be revealed...
MND Research (@premiumxremark) 's Twitter Profile Photo

Up to 50% of people with #MND #ALS can experience changes to thinking and behaviour. Researchers want to talk to people with MND and caregivers to hear their experiences of testing for these symptoms and help inform how they are assessed. More info⬇️ mndassociation.org/research/get-i…

Up to 50% of people with #MND #ALS can experience changes to thinking and behaviour.

Researchers want to talk to people with MND and caregivers to hear their experiences of testing for these symptoms and help inform how they are assessed.

More info⬇️

mndassociation.org/research/get-i…
MND Association (@mndassoc) 's Twitter Profile Photo

Are you a carer for someone with MND? Join our 12-week online peer support programme to connect with others who understand your journey. Volunteer peer supporters, trained to provide guidance through an online app can help improve your wellbeing. Find out more below 📱

MNDA SE Wales (@sewalesmnd) 's Twitter Profile Photo

21st June is Global MND Awareness Day. Come along to our Mamma Mia Movie Matinee for MND at Market Hall Cinema Brynmawr. Doors open 12pm, tickets £7 each at cinema or Deborah Gwillym, tel 07969 009476, or via justgiving.com/page/mammamiaf… #mnd #mndawareness #globalmndawarenessday

21st June is Global MND Awareness Day. Come along to our Mamma Mia Movie Matinee for MND at Market Hall Cinema Brynmawr.  Doors open 12pm, tickets £7 each at cinema or Deborah Gwillym, tel 07969 009476, or via
justgiving.com/page/mammamiaf… 
#mnd #mndawareness 
#globalmndawarenessday
Ian Flatt (@ianflatttdm) 's Twitter Profile Photo

Please help push our Leeds Hospitals Charity Rob Burrow Centre for MND fundraising over the £50k before we close this campaign 💜 Thank you for al the support - it’s been epic 🙏 Exciting new chapter coming soon 💙💛💜 #mnd #als donate.giveasyoulive.com/campaign/whats…

Please help push our <a href="/LDShospcharity/">Leeds Hospitals Charity</a> Rob Burrow Centre for MND fundraising over the £50k before we close this campaign 💜

Thank you for al the support - it’s been epic 🙏

Exciting new chapter coming soon 💙💛💜
#mnd #als 

donate.giveasyoulive.com/campaign/whats…
MND Association (@mndassoc) 's Twitter Profile Photo

Alex (pictured with his husband Craig) was diagnosed with MND at just 30. He told us our financial grants have "totally changed his life." In the first half of 2024, we’ve provided over £1.4 million in financial support to people like Alex and their families. Learn more 👇

MND Association (@mndassoc) 's Twitter Profile Photo

Louix, age 8, took on an epic children's triathlon to raise funds for the Association, inspired by his "beautiful Nana," who is living with MND. His mum, Anna, shared, "The first person he went to after the race was my mum." Louix has raised an incredible £2,600! 🧡

MND Association (@mndassoc) 's Twitter Profile Photo

‘I don’t do fear’: 102-year-old, Manette, raises £10k for MND Association and East Anglia Air Ambulance in record breaking skydive👇 theguardian.com/uk-news/articl…

David Setters (@dsetters) 's Twitter Profile Photo

.MND Association #Mirocals Q of The Day 6/7 Why fixation on FULL regulatory route rather than available INTERIM routes to hasten access for @MNDpatients even if difficult i.e. NHS Specials & Medicines Repurposing? Pls explain. Are you working in best interest of patients NOW? King's MND Centre

.<a href="/mndassoc/">MND Association</a> #Mirocals Q of The Day 6/7 Why fixation on FULL regulatory route rather than available INTERIM routes to hasten access for @MNDpatients even if difficult i.e. NHS Specials &amp; Medicines Repurposing? Pls explain. Are you working in best interest of patients NOW? <a href="/kingsmnd/">King's MND Centre</a>
Jayne Halhead (@jaynes__world) 's Twitter Profile Photo

❤️ What a wonderful, uplifting story... "It's also about highlighting the loss of mobility and freedom of movement that my father and other #MND sufferers experience—a reminder that we should never take these abilities for granted" said Jonny. romfordrecorder.co.uk/news/24537179.…

MND Association (@mndassoc) 's Twitter Profile Photo

Thanks to you and the #IceBucketChallenge, we invested £120,000 into our selfless volunteers. Alongside expanding our volunteer network, we trained our Association Visitors (AVs) who play a vital role in our support for those affected by #MND. 🧊 mndassociation.org/icebucketchall…