
SclerodermaRF
@sclerodermarf
Scleroderma Unit @royalfreenhs
Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer royalfreecharity.org/news/fundraisi…
ID: 915533769783771137
https://sclerodermarf.blogspot.com/ 04-10-2017 11:07:15
4,4K Tweet
885 Followers
940 Following


Fantastic day at the annual SclerodermaRF Royal Free London family day, 30 year anniversary yesterday 🥳 eternally grateful to Dr Howell and Dr Ramnani for their dedication to improving the Raynaud's experience and hopefully one day, #SclerodermaFreeWorld #RaynaudsFreeWorld 🙏


Wowee 9 years ago, my local paper The Southport Visiter! southportvisiter.co.uk/news/southport… June #SclerodermaAwarenessMonth 2025, 30 years SclerodermaRF Royal Free London youtu.be/guWYZ9E1G5A?si… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds


June is #SclerodermaAwarenessMonth treatment options used, such as chemotherapy. We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW 🙏 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds Royal Free London



June #SclerodermaAwarenessMonth Symptoms Infographic including puffy fingers, shiny tight itchy skin, fatigue, difficulty with swallowing, making a fist, msk pain blog.raynaudsscleroderma.co.uk/2017/04/sclero… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #NoCure




Today I have made it to 52 years having been told I had 15 months to live by my diagnosing doctor in 1997, when I was 24. Eternally grateful to Dame Prof Carol Black, Prof Chris Denton, Dr Kevin Howell and team Royal Free Royal Free London #SclerodermaFreeWorld #Research #Scleroderma

