Maddi has SPG15 (Hereditary Spastic Paraplegia 15) and is fundraising for an SDR operation in the USA. This operation will improve Maddi’s mobility. This will make a huge difference to her life. Please help us raise £85,000. #sdrchangeslives bit.ly/FutureForMaddi

Its Maddi’s 18th soon & she has decided to set up her own fundraising page to ask for donations to support her mission to have the SDR surgery in St Louis, USA. Thank you to everyone that has supported Maddi so far 💖 justgiving.com/fundraising/ma…

Archie is 3 years old an identical twin. In January he was diagnosed with neuroblastoma. With the support of Bradley Lowery Foundation we are aiming to raise £200,000 for treatments not available on the NHS which may reduce the chances of his cancer returning ❤️ bit.ly/Archiesjourney

Hopes that surgery will help Essex teenager with rare form of motor neurone to walk unaided - family in appeal for funds dunmowbroadcast.co.uk/news/maddi-thu…

❤️ Bradley Lowery Foundation Chelsea FC Rare Disease UK Bradley Walsh

Our recent #itvnews #interview discussing #spg15 and a mother’s mission to cure a child and raise funds for life changing surgery to help Maddi keep walking #SDR Donate to bit.ly/FutureForMaddi

Tickets now on Sale for THE AUTUMN BALL 9th Nov a special event for @MaddiFoundation Save Our Maddi at @downhall01 Essex. A night dressed in best for a great evening with entertainment, live auction & our lovely host Vicki Michelle MBE 💙 message 4 tickets LOVELIGHT Andy Wilsher Sings...

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#Day10 Maddi has been feeling a bit better...Physio was good and her range of movement has improved since having the SDR surgery trying to take baby steps 🙌 #sdr #tspark #SLCH #raredisease #essexgirl #fundraiser #spg15 #london #thankful #maddi #essex

Shame on americanair & British Airways for downgrading from premium to economy, a young girl who had serious spinal surgery in the USA. Family saved up to pay for her travel to be comfortable after surgery. Both companies are inefficient blaming each other!

This would help so much to add you as our sponsor at our Charity Ball next week, fundraising for a new cure soon for children with rare diseases.

Our presentation video at The Maddi Ball 2019. ⁦Vicki Michelle MBE 💙⁩ ⁦Chelsea FC⁩ ⁦@MaddiFoundation⁩ ⁦@downhall01⁩ ⁦LOVELIGHT⁩ youtu.be/LiQu9__Gq7Y

PLEASE take a look at our new campaign and see how much we have raised and how far we need to go for a possible treatment. #rare #raredisease #help #donate #cure gofundme.com/f/SavingMaddi?… GoFundMe

Thank you to The i Paper today for following and publishing our story today to support #Savingmaddi #curespg15 . And helping us raise awareness and sharing to the world 💕 Bradley Walsh Good Morning Britain

Shame on British Airways and americanair Maddi had serious spinal surgery in Oct in America, we booked better seats for Maddi’s return to be comfortable after surgery. THEY messed up and downgraded us. NOW they deny they did this, so no refund. Shameful!!

Today is Rare Disease Day! Maddi is Rare. No 1 in the U.K, to have SPG15. A cruel disease but we will never stop advocating and raising awareness. We may have to do things differently than most and it may take us longer. #ShareYourRare #RareDisease #RareDiseaseDay #Saturday

Today's front page: World Cup hero Sir Geoff Hurst pledges to donate brain for research after dementia tragedy for 1966 team mates mirror.co.uk/sport/football…

Click here to support Saving Maddi - CureSPG15 organized by Carina Thurgood gofund.me/a46fe2bc GoFundMe

This is absolutely brilliant to see and give us hope for the future