Kelly O'Neill (Kelly Young) (@rawarrior) 's Twitter Profile
Kelly O'Neill (Kelly Young)

@rawarrior

Writer, speaker, advocate, funny girl. Original RA Warrior since 2009. Grateful for 5 all-🌟 kids, God’s great grace, NFL, NASA. Creator: #rheum Founder @RheumPF

ID: 52594438

linkhttp://rawarrior.com calendar_today01-07-2009 01:46:18

37,37K Tweet

7,7K Followers

2,2K Following

Iain B. McInnes (@iainbmcinnes1) 's Twitter Profile Photo

Not all researchers have the opportunity to receive expert advice on their #clinical research projects from experienced researchers. This led us to set up the EULAR #ConsultationService. Researchers can request the free service here: eular.org/vrc_eular_cons… #rheum #rheumatic

Mike Putman (@ebrheum) 's Twitter Profile Photo

Shots fired! Strong letter & rebuttals in NEJM re:UPA vs ABA RCT I covered this on the podcast & agree w/both sides: 1. DAS28-CRP was a silly primary outcome 2. CDAI also looked better for UPA Moral of the story: don’t play shenanigans with outcome measures!

Shots fired! Strong letter &amp; rebuttals in <a href="/NEJM/">NEJM</a> re:UPA vs ABA RCT

I covered this on the podcast &amp; agree w/both sides: 

1. DAS28-CRP was a silly primary outcome
2. CDAI also looked better for UPA

Moral of the story: don’t play shenanigans with outcome measures!
Mike Putman (@ebrheum) 's Twitter Profile Photo

FINCH1 RCT of filgotinib (JAKi) in RA vs. PLBO and ADA, @ARD_BMJ Better ACR20 wk12 (77% vs 50% PLBO, NNT~4); small infxn rsk and no MACE signal Held up U.S. FDA d/t sperm count concerns; may come to market next year? See pics for other JAKi; network meta analysis anyone?

FINCH1 RCT of filgotinib (JAKi) in RA vs. PLBO and ADA, @ARD_BMJ 

Better ACR20 wk12 (77% vs 50% PLBO, NNT~4); small infxn rsk and no MACE signal

Held up <a href="/US_FDA/">U.S. FDA</a> d/t 
sperm count concerns; may come to market next year?

See pics for other JAKi; network meta analysis anyone?
Matthew Katz, MD 🇺🇸🟦 (@subatomicdoc) 's Twitter Profile Photo

Today I had back to back experiences in which patients for long term follow up had ongoing symptoms, explainable if others took time to mull it over rather than fit into a 15 minute visit. Active listening is so important, even if you can't do something to 'solve' it #survonc

Donna Hoyne (@donna_hoyne) 's Twitter Profile Photo

It is always an exciting day for Team ACR when the abstracts are published! Thank you to the ~2,000+ presenters for sharing your research. We are honored to showcase your work at #ACR21.

ClinRheumatol (@clinrheumatol) 's Twitter Profile Photo

Does treatment with #JAKinhibitors increase risk of venous #thromboembolism in RA patients? 👉rdcu.be/cynRz #RheumatoidArthritis #RheumTwitter

Does treatment with #JAKinhibitors increase risk of venous #thromboembolism  in RA patients?
👉rdcu.be/cynRz
#RheumatoidArthritis #RheumTwitter
Kelly O'Neill (Kelly Young) (@rawarrior) 's Twitter Profile Photo

Unfortunately, calling this disease by "the A word" perpetuates the myths that delay treatment---for a disease that's successfully treatable only if it's caught early. #rheumdisease doesn't start or end in the joints #ACR21 #rheum

Kelly O'Neill (Kelly Young) (@rawarrior) 's Twitter Profile Photo

1st partial control in 16 yrs frequently in jeopardy due to disorganized #rheum office sending scripts late. #30dayscriptssuck Too many people with rheumatoid disease (PRD) suffering unnecessarily still by improper management of the tools we do have.

Jeffrey Sparks MD MMSc (@jeffsparks) 's Twitter Profile Photo

EULAR-EMEUNET JC Zach Wallace The COVID-19 Global Rheumatology Alliance This (The COVID-19 Global Rheumatology Alliance) was formed on Twitter (!) from a now-legendary tweet by Leonard Calabrese in early 3/2020. The physician registry is administered jointly by UCSF and EULAR. Physicians can voluntarily enter cases of rheumatic diseases who had COVID-19

John M. Davis III, MD MS (@johndavisiii) 's Twitter Profile Photo

Before I walk into the exam room, I try to make a mental intention to ask #patients with #rheum diseases about their #goals. Research by Kelly O'Neill (Kelly Young) & RPF in collaboration w/ #mayoclinicrheumatology suggests we do not do this enough. #MindfulMondays onlinelibrary.wiley.com/doi/full/10.10…

John M. Davis III, MD MS (@johndavisiii) 's Twitter Profile Photo

Concerning data in our #ACR21 poster no. 1167 #RA pts whose main #goal is less #pain also report: - not having a #treatment plan - longer duration before Rx - more DMARDs tried - lower patient satisfaction Unmet #healthcare needs for #RA persistent pain Kelly O'Neill (Kelly Young) RPF

Concerning data in our #ACR21 poster no. 1167

#RA pts whose main #goal is less #pain also report:

- not having a #treatment plan
- longer duration before Rx
- more DMARDs tried
- lower patient satisfaction

Unmet #healthcare needs for #RA persistent pain

<a href="/rawarrior/">Kelly O'Neill (Kelly Young)</a> <a href="/RheumPF/">RPF</a>
John M. Davis III, MD MS (@johndavisiii) 's Twitter Profile Photo

We need practical approaches for #goal based shared decision making for patients with #rheum diseases. Here’s a big shout out to @JenBartonMD and Glyn Elwyn @glynelwyn.bsky.social for their strong work in this field. Kelly O'Neill (Kelly Young) RPF Elena MyasoedovaMD ☀️ Cynthia Crowson #sdm #goalsetting #ACR21

Dr. Ron DePinho (@rondepinho) 's Twitter Profile Photo

Analysis of 17,000 adults taking Vit D and/or omega-3, showing no impact on cancer and CVD but reduced incidence of autoimmune disease by 25% to 30% in older adults vs those who received neither. Supplements without adverse events. medpagetoday.com/meetingcoverag…