Rare Patient Voice (@rarepatientvoic) 's Twitter Profile
Rare Patient Voice

@rarepatientvoic

We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.

ID: 2189258191

linkhttps://www.rarepatientvoice.com/ calendar_today12-11-2013 00:06:40

1,1K Tweet

1,1K Followers

3,3K Following

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ICYMI: Check out the recording of the RPV/Patients as Partners in Clinical Research June 10 webinar on patients and clinical trial co-design. theconferenceforum.org/webinars/patie… #ClinicalResearch #PatientEngagement #ClinicalTrials

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At Rare Patient Voice, we’re proud to stand with the disability community—and we’re committed to continuing the work. Let’s keep moving forward, together! #DisabilityPride #InclusionInAction #PatientVoice

At <a href="/rarepatientvoic/">Rare Patient Voice</a>, we’re proud to stand with the disability community—and we’re committed to continuing the work. Let’s keep moving forward, together!
#DisabilityPride #InclusionInAction #PatientVoice
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Last month, RPV Marketing & Communications Director Laura Mullen took part in a LinkedIn Live discussion, presented by Idea Citizen, on community & connection. The live event is now available as an archived recording. youtube.com/watch?v=45Zt81… #community #leadership #connection

Last month, RPV Marketing &amp; Communications Director Laura Mullen took part in a LinkedIn Live discussion, presented by Idea Citizen, on community &amp; connection. The live event is now available as an archived recording.
youtube.com/watch?v=45Zt81…
#community #leadership #connection
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@rarepatientvoice has been named one of the 31 top qual research companies by @Quirk's! Read more: quirks.com/articles/31-to… #QualResearch #PatientRecruitment

@rarepatientvoice has been named one of the 31 top qual research companies by @Quirk's! Read more: quirks.com/articles/31-to…
#QualResearch #PatientRecruitment
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#ThoughtLeadership is important to us at Rare Patient Voice. Check out some recent podcast interviews featuring our President and SVP here. #PatientRecruitment #RareDisease #ChronicIllness rarepatientvoice.com/about-us/in-th…

#ThoughtLeadership is important to us at <a href="/rarepatientvoic/">Rare Patient Voice</a>. Check out some recent podcast interviews featuring our President and SVP here.
#PatientRecruitment #RareDisease #ChronicIllness
rarepatientvoice.com/about-us/in-th…
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Did you know that we have thousands of non-rare disease patients in the RPV community who are living with more common conditions like asthma, cancers, & diabetes in our community? Learn more about RPV in our FAQ: rarepatientvoice.com/for-researcher… #PatientRecruitment #ResearchRespondents

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Meet our team! Laurie Cotumaccio joined RPV in 2023 as a Marketing Associate. Read more about Laurie: rarepatientvoice.com/meet-our-team-… #TeamWork #marketing #ThoughtLeadership

Meet our team! Laurie Cotumaccio joined RPV in 2023 as a Marketing Associate. Read more about Laurie: rarepatientvoice.com/meet-our-team-…
#TeamWork #marketing #ThoughtLeadership
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We surveyed past, current & potential clients to learn about satisfaction across recruiting companies. Here are some highlights: *We lead recruiters in overall satisfaction *We top the list of recruiters customers are likely to recommend *94% will consider using us again

We surveyed past, current &amp; potential clients to learn about satisfaction across recruiting companies. Here are some highlights:

*We lead recruiters in overall satisfaction
*We top the list of recruiters customers are likely to recommend
*94% will consider using us again
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RPV's Wes Michael & Stacey Haines were guests on the Arachnoiditis Unfiltered podcast recently. The conversation included how connecting patients with researchers is changing the narrative in rare disease. The episode is live: youtube.com/watch?v=CoRSL4… #RareDisease #Patients

RPV's Wes Michael &amp; Stacey Haines were guests on the Arachnoiditis Unfiltered podcast recently. The conversation included how connecting patients with researchers is changing the narrative in rare disease. The episode is live: youtube.com/watch?v=CoRSL4…
#RareDisease #Patients
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RPV's Pam Cusick is interviewed on the latest episode of Story Conversations Podcast, discussing the power & importance of patient stories. podcasts.apple.com/us/podcast/s4-… #RareDisease #PatientVoices #ChronicIllness

RPV's Pam Cusick is interviewed on the latest episode of Story Conversations Podcast, discussing the power &amp; importance of patient stories.
podcasts.apple.com/us/podcast/s4-…
#RareDisease #PatientVoices #ChronicIllness
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Register today for tomorrow's live webinar on patients & clinical trial co-design, presented by RARE Revolution Magazine & featuring RPV President Wes Michael. us02web.zoom.us/webinar/regist… #ClinicalTrials #PatientEngagement

Register today for tomorrow's live webinar on patients &amp; clinical trial co-design, presented by <a href="/RareRevolutionM/">RARE Revolution Magazine</a> &amp; featuring RPV President Wes Michael. us02web.zoom.us/webinar/regist…
#ClinicalTrials #PatientEngagement
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Join us on 9.25, 1pm ET for a live webinar on fighting fraud in the market research world. RPV's Wes Michael will share practical methods RPV has developed over the last 13 years to reduce fraud in both qual and quant research.  app.livestorm.co/greenbook/figh… #MRX #HealthcareResearch

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As we celebrate this day dedicated to the contributions & achievements of workers, we want to take a moment to acknowledge the invaluable input from our patient and caregiver community. #LaborDay #RareDisease #ChonicIllness

As we celebrate this day dedicated to the contributions &amp; achievements of workers, we want to take a moment to acknowledge the invaluable input from our patient and caregiver community.
#LaborDay #RareDisease #ChonicIllness
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As we celebrate this day dedicated to the contributions & achievements of workers, we want to acknowledge the invaluable input from our patient & caregiver community. We are grateful for your participation & dedication, which help bring about meaningful change.

As we celebrate this day dedicated to the contributions &amp; achievements of workers, we want to acknowledge the invaluable input from our patient &amp; caregiver community. We are grateful for your participation &amp; dedication, which help bring about meaningful change.
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In a live Greenbook webinar on September 25, Rare Patient Voice President Wes Michael will share methods RPV has developed to reduce fraud in qual & quant research. Sign up now for what promises to be an enlightening program! app.livestorm.co/greenbook/figh… #MRX #HealthcareMarketing

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Conference season 2025 is in full swing, and Team RPV is hitting the ground running! Visit rarepatientvoice.com/for-researcher… for where we will be and to set up one-on-one meetings. #conferences #MRX #RareDisease

Conference season 2025 is in full swing, and Team RPV is hitting the ground running! Visit rarepatientvoice.com/for-researcher… for where we will be and to set up one-on-one meetings.
#conferences #MRX #RareDisease
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We're exhibiting at the SCRS Site Solutions Summit in Orlando later this month! Visit the RPV booth to discuss how we can recruit patients needed for clinical trials & other research studies. To arrange a one-on-one meeting: calendly.com/pamcusick/meet…

We're exhibiting at the SCRS Site Solutions Summit in Orlando later this month! Visit the RPV booth to discuss how we can recruit patients needed for clinical trials &amp; other research studies. To arrange a one-on-one meeting: calendly.com/pamcusick/meet…
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As a proud sponsor of #WODC Europe 2025, Rare Patient Voice is gearing up for an extraordinary event! Be part of the most impactful discussions & networking in orphan drugs & rare diseases. Book by 19 Sept to save €900 + 25% off with code SBSN25! lnkd.in/ecGagXTU

As a proud sponsor of #WODC Europe 2025, <a href="/rarepatientvoic/">Rare Patient Voice</a> is gearing up for an extraordinary event! Be part of the most impactful discussions &amp; networking in orphan drugs &amp; rare diseases. 

Book by 19 Sept to save €900 + 25% off with code SBSN25!
lnkd.in/ecGagXTU
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Be sure to reserve your seat for next week's powerful discussion of methods to combat fraud in market research, featuring RPV's Wes Michael. Register now: app.livestorm.co/greenbook/figh…