Today, Pennsylvania advocates came together at the state capitol for a #RareAction Network #RareDiseaseDay Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of #raredisease heard!

Today, Pennsylvania advocates came together at the state capitol for a #RareAction Network #RareDiseaseDay Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of #raredisease heard!

Out now! Download the official poster for #RareDiseaseDay 2019 now available via rarediseaseday.org/downloads. Share it today to show your support for the rare disease community. #ShowYourRare

I hear rumor National Organization for Rare Disorders (NORD) is gonna be launching a Show Your Stripes Challenge! Oh, it's ON if they give me the chance... Terry aka TernieLaBiscuit You DOWN?? #RAREDISEASEDAY #SHOWYOURSTRIPES #PKUSTRONG #RAREQUEEN

🚨Winter 2019 Fashion Trend🚨 STRIPES! Get ready to #ShowYourStripes for #RareDiseaseDay...

The zebra is the official symbol of #rarediseases in the U.S. Everyone has their own unique stripes, those characteristics that make each individual distinct. It's time to #ShowYourStripes!

We’re going big for our 10th anniversary of Rare Disease Day in the U.S. Who’s with us? It’s time to #ShowYourStripes! Learn more about how you can get involved and help to increase attention on #rarediseases to the world at large this #RareDiseaseDay. ow.ly/Yg4f50kdJZ3

youtu.be/3FFfmT_B-Xs please check out my full video and leave a comment to help me #RaiseAwareness for #MdDS and help #StopTheRock #ShowYourStripes #ZebraDiagnosis

Every stripe has a story. I have 3 of the more than 7,000 rare diseases. #showYourStripes #RareDiseaseDay

The #RaceforRP #Ferrari360 Modena certainly knows how to #ShowYourStripes supporting #RareDiseaseDay on the streets of #NewOrleans, raising awareness for #RelapsingPolychondritis, a rare #AutoimmuneDisease. EURORDIS-Rare Diseases Europe @AARDATweets @RPASF_Official National Organization for Rare Disorders (NORD) Rare Disease Day

How will you Show Your Stripes this #RareDiseaseDay? We'd love to know! Share your ideas using the hashtag, #ShowYourStripes!

To mark #RareDiseaseDay 2019 EURORDIS, Agrenska &@rarediseasesint are organising the Second High-Level Event of the ngorarediseases at the United Nations HQ in New York on 21 Feb. The event is a chance to discuss next steps towards a UN Resolution on rare diseases. bit.ly/RDDEventUN

Rare diseases are not so rare after all. Our colleagues #CareAboutRARE to support the 350MM affected by a #raredisease worldwide #RareDiseaseDay

Sending a huge thank you to everyone for all your hard work today in making an impact for the #raredisease community in honor of #RareDiseaseDay! We want to see how you celebrated! Share your photos from today by replying!

Due to inclement weather, the New Hampshire #RareDiseaseDay event scheduled for today at the capitol has been cancelled. A new date will be announced soon! National Organization for Rare Disorders (NORD)

Together, we can truly accomplish a tremendous amount of awareness for #rarediseases by taking part in #RareDiseaseday each year. Learn more about the 2018 campaign success in the #NORD blog here: bit.ly/2Hf3okC #TogetherWeAreStrong

Attend this upcoming #RareDiseaseDay event! x.com/RareAction/sta…

"I would really, really love to see this bill passed because it would potentially help people who have rare diseases and are fighting them daily." Please call your KY legislators and ask them to override Gov Bevin's veto of SB7! Call 1-800-372-7181 cjky.it/2q7UEWy

Successful #RareDiseaseDay in New Hampshire! #RareAction #TogetherWeAreStrong