Researchers developed NZ-97, an inhalable drug that stimulates the growth of stem cells in the lungs, potentially repairing scarring in IPF. buff.ly/3y1MkOA #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Virginia's allergy season means changed routines for columnist Sam Kirton in the wake of his bilateral lung transplant. buff.ly/3xQfHDF #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Enrollment has been completed for a Phase 2b trial that’s testing LYT-100 (deupirfenidone) for adults with idiopathic pulmonary fibrosis. buff.ly/3U4q8e3 #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Columnist Sam Kirton addresses a common misconception about the role of advocacy organizations in developing new therapies. buff.ly/3xDMED6 #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

As columnist Ann Reynoso prepares to travel by air for the first time since her PF diagnosis, she must first manage extreme travel anxiety. buff.ly/3JiT3WK #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Low doses of controlled-release morphine, a natural opioid, may reduce the frequency of daytime cough in people with IPF. buff.ly/4aypexv #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

In honor of National Donate Life Month, columnist Sam Kirton explains what he's shared in letters to his organ donor family over the years. buff.ly/4aQQBTn #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Bexotegrast, an investigational oral treatment for IPF from Pliant Therapeutics, is now moving into a pivotal, adaptive Phase 2b/3 trial. buff.ly/3xrxvEX #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Since her diagnosis of IPF, columnist Charlene Marshall has occasionally found herself fighting impostor syndrome in her daily life. buff.ly/3TJMX6S #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

We're excited to share Marcella Debidda & Ethan Ash from our team will be taking the World Orphan Drug Congress USA stage this month!

'Optimizing patient recruitment by leveraging existing online communities: Success stories.'

Get 2 for 1 tickets with our code RARE50: tinyurl.com/5x9hf4hw

Columnist Sam Kirton shares his experience traveling abroad to the Netherlands — his first international trip as a post-transplant patient. buff.ly/4cIBAF0 #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

To travel internationally for a river cruise, columnist Sam Kirton, a post-transplant IPF patient, had to make careful preparations. buff.ly/3IRw05i #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Almee, the first behavioral therapy-based app designed to ease anxiety in PF patients, has received FDA breakthrough device designation. buff.ly/491rtIh #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Mark your calendars! Coming to Boston April 23-25 is #WorldOrphanUSA , and we want you to join us!

Join the movement shaping the future of rare disease healthcare. Use our code RARE50 for half-priced tickets when you register here: tinyurl.com/5x9hf4hw

Columnist Sam Kirton recently adopted an Aussiedor puppy named Beau. The dog has already become an excellent companion, Sam says. buff.ly/43F4XUB #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

GRI Bio was cleared by U.K. regulators to begin a small Phase 2a clinical trial testing its natural killer T-cell therapy in IPF patients. buff.ly/3PqiCZI #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

The transplant journey is a complex study in being human, columnist Christie Patient writes on her mom's five-year transplant anniversary. buff.ly/3TCitVq #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Even within the IPF community, everyone is unique, which means our treatment plans will all look different, columnist Sam Kirton writes. buff.ly/3VeaXkE #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

Lung infections are frequent and can be dangerous for IPF patients, writes columnist Charlene Marshall, who shares helpful tips. buff.ly/3uZjwFw #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosis awareness

As a fierce champion of the rare voice, we are a proud partner of #WorldOrphanUSA , coming to Boston this April 23-25.

Use our code RARE50 for a huge 50% discount on your tickets and join us in making a difference in the lives of rare disease patients: tinyurl.com/5x9hf4hw