Lillian Leigh GAICD (@projectbreath) 's Twitter Profile
Lillian Leigh GAICD

@projectbreath

Lawyer, Health Consumer
#equity #access #lungcancer #rarecancer #hope
Views my own.

ID: 4599780674

calendar_today19-12-2015 04:12:39

2,2K Tweet

1,1K Followers

1,1K Following

Dr Anne-Marie Baird (@bairdam) 's Twitter Profile Photo

So special to meet, and have Her Royal Highness Princess Dina Mired of Jordan Princess Dina Mired as part of the STARS workshop to discuss Policy Advocacy with Lillian Leigh GAICD and Andrew Ciupek #WCLC23 #LCSM IASLC

So special to meet, and have Her Royal Highness Princess Dina Mired of Jordan <a href="/dinamired/">Princess Dina Mired</a> as part of the STARS workshop to discuss Policy Advocacy with <a href="/ProjectBreath/">Lillian Leigh GAICD</a> and Andrew Ciupek
 #WCLC23 #LCSM <a href="/IASLC/">IASLC</a>
Prof Tom John (@tommyjohn00) 's Twitter Profile Photo

MARS2 conclusively proves that EPD surgery for "resectable"mesothelioma results in worse outcomes than chemotherapy alone #WCLC23. Amazing study and presentation. Congrats Sanjay Popat Dr Riyaz Shah and teams

MARS2 conclusively proves that EPD surgery for "resectable"mesothelioma results in worse outcomes than chemotherapy alone #WCLC23. Amazing study and presentation. Congrats <a href="/DrSanjayPopat/">Sanjay Popat</a> <a href="/DrRiyazShah/">Dr Riyaz Shah</a> and teams
Stephen V Liu, MD (@stephenvliu) 's Twitter Profile Photo

#WCLC23 Dr. Eric Lim Eric Lim presents the long awaited MARS2 trial: A Multicentre Randomised Trial Comparing (Extended) Pleurectomy Decortication vs No Radical Surgery for Mesothelioma. Endpoint is OS and they consulted pts to ensure benefit was meaningful.

#WCLC23 Dr. Eric Lim <a href="/ekslim/">Eric Lim</a> presents the long awaited MARS2 trial: A Multicentre Randomised Trial Comparing (Extended) Pleurectomy Decortication vs No Radical Surgery for Mesothelioma. Endpoint is OS and they consulted pts to ensure benefit was meaningful.
Lillian Leigh GAICD (@projectbreath) 's Twitter Profile Photo

A truly remarkable presentation of the MARS 2 results by surgeon Prof Eric Lim Eric Lim at this morning's Presidential Symposium. Thank you so much for demonstrating patient-centric care and the value of patient involvement in research design! #wclc23 IASLC #lcsm

A truly remarkable presentation of the MARS 2 results by surgeon Prof Eric Lim <a href="/ekslim/">Eric Lim</a> at this morning's Presidential Symposium. Thank you so much for demonstrating patient-centric care and the value of patient involvement in research design!
#wclc23 <a href="/IASLC/">IASLC</a> #lcsm
Prof Tom John (@tommyjohn00) 's Twitter Profile Photo

Very interesting results from FLAURA2. Significant improvement in PFS across all subsets. But most benefit seen in pt with CNS mets and L858R. More AEs with chemo but ILD same 3-4%. I think new SoC in these subsets #WCLC23

Very interesting results from FLAURA2. Significant improvement in PFS across all subsets. But most benefit seen in pt with CNS mets and L858R. More AEs with chemo but ILD same 3-4%. I think new SoC in these subsets #WCLC23
Lillian Leigh GAICD (@projectbreath) 's Twitter Profile Photo

Very interesting indeed, and a lot more discussions req'd with patients about the risks vs the benefits. Toxicity is real for osi, and higher with osi+chemo. Prof Yi-Long Wu has identified: psychological barriers are likely. #WCLC23 IASLC Jill Feldman #lcsm

Lillian Leigh GAICD (@projectbreath) 's Twitter Profile Photo

I've been reflecting on all that I've had the privilege to learn from HRH Princess Dina Mird of Jordan Princess Dina Mired at IASLC #WCLC23 this week, and I'm fired up more than ever to tackle inequities. Medical advancements MUST not leave global citizens behind.

I've been reflecting on all that I've had the privilege to learn from HRH Princess Dina Mird of Jordan <a href="/dinamired/">Princess Dina Mired</a> at <a href="/IASLC/">IASLC</a> #WCLC23 this week, and I'm fired up more than ever to tackle inequities. Medical advancements MUST not leave global citizens behind.
Prof Tom John (@tommyjohn00) 's Twitter Profile Photo

Not many people understand how important research is furthering treatments for #lungcancer. You not only got it but used your voice to help others too. Thank you for being a strong #advocate for all pts with cancer. You inspire us to do better! 🙏🏾🙏🏾🙏🏾

Lillian Leigh GAICD (@projectbreath) 's Twitter Profile Photo

"Words Matter" is not just a catch phrase, it's a simple and profound truth to combat #stigma - says Jill Feldman To the medical community, please use non-stigmatising language. Find out more about the IASLC Language Guide here: iaslc.org/IASLCLanguageG… #LCSM

"Words Matter" is not just a catch phrase, it's a simple and profound truth to combat #stigma - says <a href="/jillfeldman4/">Jill Feldman</a>

To the medical community, please use non-stigmatising language. 
Find out more about the <a href="/IASLC/">IASLC</a> Language Guide here: iaslc.org/IASLCLanguageG…
#LCSM
Prof. Haryana Dhillon (@hagsie) 's Twitter Profile Photo

Oops 🙊 forgot my raspberry beret today! #COSA23. thank you 🙏🏽 COSA & POCOG for this generous recognition of my humble contribution to our field.

Germaine Tan (@_germainetan_) 's Twitter Profile Photo

Having a parent pass away from non smoking related lung cancer years back, it was an emotional moment hearing consumer Lillian Leigh share her thoughts and speak to the first new national lung cancer screening program in nearly 20 years at #COSA2023. canceraustralia.gov.au/about-us/lung-…

Having a parent pass away from non smoking related lung cancer years back, it was an emotional moment hearing consumer Lillian Leigh share her thoughts and speak to the first new national lung cancer screening program in nearly 20 years at #COSA2023. 

canceraustralia.gov.au/about-us/lung-…
Reema Harrison, PhD (@reemaharrison) 's Twitter Profile Photo

Lillian Leigh GAICD highlights the need to connect primary & specialist cancer care- an issue identified by Victorian health staff & consumers in Australian Institute of Health Innovation’s #CanEngage Project. Codesign is underway with CALD communities Western Health Austin Health & PHNs to create solutions #COSA23

Thoracic Oncology Group of Australasia (@togaanz) 's Twitter Profile Photo

Our highest ever number of downloads at a whopping 454+! Catch the podcast buff.ly/47sesXq or buff.ly/4aS6vgO No doubt the lowdown on NGS in NSCLC has been 🔥due to the funding of the small gene panel for non-squamous NSCLC from 1 Nov 23 buff.ly/3Pwzhd7

Our highest ever number of downloads at a whopping 454+!
Catch the podcast buff.ly/47sesXq or buff.ly/4aS6vgO

No doubt the lowdown on NGS in NSCLC has been 🔥due to the funding of the small gene panel for non-squamous NSCLC from 1 Nov 23 buff.ly/3Pwzhd7
IASLC (@iaslc) 's Twitter Profile Photo

Applications are now open for the STARS PRA & STARS Scholar Programs! We invite people who have or had #lungcancer and their family members to apply. Applications close on 3/15/24 @ 5PM MST. To Learn More & Apply Go To: iaslc-stars.org/stars-program #LCSM

Applications are now open for the STARS PRA &amp; STARS Scholar Programs! We invite people who have or had #lungcancer and their family members to apply. Applications close on 3/15/24 @ 5PM MST. To Learn More &amp; Apply Go To: iaslc-stars.org/stars-program #LCSM
Lillian Leigh GAICD (@projectbreath) 's Twitter Profile Photo

Grateful for this opportunity to share my thoughts on the impact that a diverse group of patient advocates can make in all aspects of the policy process. My call is to empower. #wclc24 IASLC