OrphanDev Network (@orphandev_net) 's Twitter Profile
OrphanDev Network

@orphandev_net

#FCRIN expertise network of researchers, clinicians, entrepreneurs and patients representatives united to accelerate innovation for #RareDiseases patients

ID: 1529086051733602306

linkhttp://www.orphan-dev.org calendar_today24-05-2022 13:09:57

4 Tweet

14 Followers

63 Following

BNDMR Maladies Rares (@bndmr) 's Twitter Profile Photo
BNDMR Maladies Rares
@bndmr

3 years ago

🚩Première publication du nombre de cas par maladie rare recensés dans la #BNDMR❗️👁️📊📢 bitly.ws/qZfy Ministère de la Santé et de l'Accès aux soins Assistance Publique – Hôpitaux de Paris (AP-HP) Orphanet Filières Maladies Rares Alliance maladies rares EURORDIS-Rare Diseases Europe Fondation Maladies Rares #maladiesrares #patients #recherchemédicale

🚩Première publication du nombre de cas par maladie rare recensés dans la #BNDMR❗️👁️📊📢 bitly.ws/qZfy <a href="/Sante_Gouv/">Ministère de la Santé et de l'Accès aux soins</a> <a href="/APHP/">Assistance Publique – Hôpitaux de Paris (AP-HP)</a> <a href="/Orphanet/">Orphanet</a> <a href="/FilieresMR/">Filières Maladies Rares</a> <a href="/AllianceMR/">Alliance maladies rares</a> <a href="/eurordis/">EURORDIS-Rare Diseases Europe</a> <a href="/fdmaladiesrares/">Fondation Maladies Rares</a> #maladiesrares #patients #recherchemédicale
ERDERA (@erdera_org) 's Twitter Profile Photo
ERDERA
@erdera_org

3 years ago

✈️Are you a #PhD, #MedicalDoctor or #PostDoc interested in training outside your country of residence? If so, check out the @EJPRareDiseases ERN Research Mobility Fellowship that might be for you! 🚨Deadline: 13 June ℹ️More information: ejprarediseases.org/ern-research-m…

✈️Are you a #PhD, #MedicalDoctor or #PostDoc interested in training outside your country of residence? If so, check out the @EJPRareDiseases ERN Research Mobility Fellowship that might be for you! 🚨Deadline: 13 June ℹ️More information: ejprarediseases.org/ern-research-m…
OrphanDev Network (@orphandev_net) 's Twitter Profile Photo
OrphanDev Network
@orphandev_net

3 years ago

📢 Formation : DIU Maladies Rares 2022-2023 Objectif : former les experts des centres de référence, les pharmaciens et autres professionnels aux spécificités des essais thérapeutiques inhérentes aux maladies rares. Plus d’info :usercontent.one/wp/www.orphan-… #RareDiseases

📢 Formation : DIU Maladies Rares 2022-2023 Objectif : former les experts des centres de référence, les pharmaciens et autres professionnels aux spécificités des essais thérapeutiques inhérentes aux maladies rares. Plus d’info :usercontent.one/wp/www.orphan-… #RareDiseases
Institut Marseille Maladies Rares (@marmara_amu) 's Twitter Profile Photo
Institut Marseille Maladies Rares
@marmara_amu

3 years ago

SUMMER SCHOOL🌞| MarMaRa Institute Summer School is offering a rich 3-day program under the theme "#Rare_Diseases at the #Omics era: Current tools for frequent challenges"! We are still accepting applications! Register for FREE ASAP! here🔗columbo.univ-amu.fr/index.php/6646…

SUMMER SCHOOL🌞| MarMaRa Institute Summer School is offering a rich 3-day program under the theme "#Rare_Diseases at the #Omics era: Current tools for frequent challenges"! We are still accepting applications! Register for FREE ASAP! here🔗columbo.univ-amu.fr/index.php/6646…