Exciting news for Eا𝖔n М̶ߎsƙ༝̲ 🎉

🗓 Join the online educational event on Adult Life & Duchenne! → Experts share their experience and knowledge on adult life and #Duchenne → Duchenne adults from different parts of the world share their experience of living with Duchenne worldduchenneday.org/online-event-o… #WDAD2021

Today is World Duchenne Awareness Day 🎈 help us #SpreadTheWord to raise awareness for Duchenne Muscular Dystrophy #WDAD2021 worldduchenneday.org/spreadtheword-…

🎈Today is World #Duchenne Awareness Day 🎈 #WDAD2021

We are starting World #MitochondrialDisease Week with this simple statistic. Some might say it's only one, but for families that one is their everything. There are few effective treatments & NO CURE for #mito Please RT to raise awareness. Find out more: thelilyfoundation.org.uk

Please RT and help raise awareness during World #MitochondrialDisease Week. Thank you. #lilyfoundation #mitoaware

As part of #mitoawarenessweek Please view this short animation which gives a simple overview of #mitochondrialdisease

We are excited to announce Orphan Reach: Emmes' Rare Disease Center! This global specialty center is dedicated to the advancement of #raredisease research by providing specialized clinical trial design & execution capabilities Orphan Reach Learn more: bit.ly/3nRDz0Q

Do you have the ability to build strong relationships with a variety of people? Yes? Apply to join the team as our new Fundraising Officer! Read the job description now and apply before 9am on 1st December Good luck & we look forward to meeting you! 👉ow.ly/W63E50GIc6q

#BREAKING: We are excited to announce the launch of Orphan Reach as Emmes's Rare Disease Center! The center will incorporate Emmes’ world class reputation in public health research, with the expertise of Orphan Reach. Learn more: lnkd.in/ef5WP7bT

We are delighted to be exhibiting at World Orphan Drug Congress in Barcelona next week! You can visit us at booth #19 to meet with our experts, and to learn all about our exciting launch as Emmes's Rare Disease Center. #WODC #WODCEurope #RareDisease

For #WorldPneumoniaDay, we're sharing a study with Emmes authors of #pneumococcal #vaccines published in 2018 #StopPneumonia #EveryBreathCounts pubmed.ncbi.nlm.nih.gov/29279281/

Come and visit our stand at #WODC Barcelona and pick up a copy of our latest #FutureofRare in print.

Inside the rare disease centre which aims to accelerate biotech growth... DDW’s Megan Thomas spoke with Thomas Ogorka our Managing Director about the potential of our rare disease centre. You can read the interview here: lnkd.in/e5AgMwFh #raredisease #rarediseasecentre

#RAREfact #RareDiseaseDay2022

Nada is determined to spread awareness about Epidermolysis Bullosa and fight against social discrimination. Read Nada's story and share your own: cutt.ly/fO2h8x2 #RareDiseaseDay2022

Spend few minutes to sign up to the #RareDiseaseDay new webinar about ways to introduce rare diseases to young children, taking place on the 17th February 2022 tinyurl.com/485drj5s #RareDiseasDay2022 #RareDiseaseMonth

Virtual #RareDiseaseDay at NIH 2022 is next Monday, Feb. 28! Register here: go.usa.gov/xeMGH #RDDNIH Check out this thread for information on sessions w/Rare Diseases Clinical Research Network speakers ⬇️ (1/4)

Rare Disease Day is just around the corner... are you ready to get involved? Watch our recorded webinar and learn how to prepare your social media communication ahead of Rare Disease Day 2022. ➡️Watch now: cutt.ly/PPUcIS8 #RareDiseaseDay

#LightUpForRare! Will you help make a global chain of lights for #RareDiseaseDay2022 to show your support for the rare disease community and unite across the world? #RareDiseaseDay2022 #TuesdayTakeover Genetic Alliance UK Rare Disease UK