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Edinburgh Kidney researchers Prof. Neeraj Dhaun (Bean) & Dr Rob Hunter (Robert Hunter) of the Edinburgh Vasculitis Service, & Dr Eve Miller-Hodges of the Scottish IMD Service “show their stripes” to raise awareness for Rare Disease Day 2024 #RareDiseaseDay #ShowYourStripes

We’re excited to welcome 140 participants from 19 countries to the #AlportWorkshop in Nicosia, Cyprus this week!

#NephJC to better appreciate how far we’ve went, we have to know where we’ve started Since is March, for us nephrologists, it will be about #NephMadness. Do you remember wonderful blog by Neil Turner on #nephistory? AJKD ajkdblog.org/2017/03/07/nep…

Timely! We’re just discussing the value of the simple, cheap, historic dipstick at the amazing patients day at the #AlportWorkshop in Nicosia

Kicking off day two of the #AlportWorkshop in Nicosia! The conference is the seventh Alport international workshop, and organised by the Alport Syndrome Alliance. Members of the Alport community meet to connect, share experiences and inform each other about latest research.

Delighted to announce new venture. For too long medical tests have been too restricted to only people where there’s evidence of benefit. We think different. Everyone should be allowed them.

Exciting news: LifeArc is supporting Dr. Louise Oni RaDaR and the entire #UKKidneyEcosystem to transform treatments for people with rare kidney diseases. Go team kidney!

This helps explain why I’m not good at it

link.springer.com/content/pdf/10… Patient and physician resources for Alport patients Alport UK Holly Mabillard Kidney Research UK The UK Kidney Association

Want to know the latest news and approaches in Alport syndrome? Join professors Rachel Lennon, Prof Danny Gale and Neil Turner for an interactive day dedicated to sharing research updates from the Alport Research Hub. Register for your place by contacting [email protected]

Join us for the 2024 Alport Research Hub Symposium on Friday 5 July, 10-4.30pm. Chaired by Prof Rachel Lennon, Danny Gale and Neil Turner. An interactive day dedicated to sharing the latest news and approaches in Alport Syndrome and updates from the Alport Research Hub.

Come and hear the latest news from the Alport Research Hub! This event will be the day before our Alport patient information day in Liverpool - why not come to both? All welcome! Travel and accommodation bursaries available for patients. Email [email protected]

Two weeks to go until our Alport Research Hub Symposium where professors Rachel Lennon, Prof Danny Gale and Neil Turner discuss the latest news and approaches to Alport syndrome. Not registered? Click here: bit.ly/3xjv8o2 Alport UK

Tomorrow is our Alport Research Hub Symposium, and we cannot wait! We are looking forward to hearing all the latest news and approaches on Alport syndrome by prof Rachel Lennon, Danny Gale, and Neil Turner. Will you be joining us? Rachel Lennon Prof Danny Gale Neil Turner Alport UK

We need more kidney metaphors. xkcd.com/2960/

If you have used Bea’s fantastic website or benefitted from her excellent tweetorials please please vote for her! She does everything without any funding and with >300k visits her website will have had a genuine positive impact on the lives of people living with #IBD

8 days left to apply! This second call welcomes research ideas that could help us to understand the impact that Alport syndrome has on hearing and sight as well as kidney problems. Find out more and apply here: bit.ly/3PG99OQ Closes 4 Sept. Prof Danny Gale Rachel Lennon

Impressive work and doesn't it raise some interesting Qs

Emma Holliday, contemporary UK painter, based in North East England, known for her local landscapes and still lifes #WomensArt