Tenure-track position at Johannes Kepler University Linz, Austria: Mechanism Exploration of Rare Diseases (Pediatrics) Deadline for applications 15 June bit.ly/3a6ZaPz Any queries can be sent to [email protected]

If you are a healthcare professional treating paediatric patients with achondroplasia please consider contributing to this survey on spinal pathology, deadline for submissions 24 June, with @EuRRBone and European Reference Network on Rare Bone Diseases bit.ly/3x18qgf

Don't forget to register for ECRD online on 27 June - 1 July 2022! invt.io/1txb5rhdwr6

The Endo-ERN newsletter is out now! Read more about ECE2022, upcoming joint webinar with ESE, Endo-ERN and ESPE, 1st Endo-ERN clinical practice guideline and much more. buff.ly/3HbNTdB

Achondroplasia survey alert - calling all healthcare professionals! If you haven't already done so there is still time to take part in the survey on spinal pathology in achondroplasia. Results to be disseminated at #iccbh2022 Deadline 24 June bit.ly/3Ofhmpa

One more week to participate in this survey! @EuRRBone European Reference Network on Rare Bone Diseases

Are you between 12 & 18 and interested in the themes of #healthcare, children's rights, and more? Register for the @EJPRareDiseases second paediatric expert patients training workshop! 📆12-15 July 📍Lyon, France 🚨Deadline to show interest: 1 July 👉ejprarediseases.org/expression-of-…

Do you treat patients with achondroplasia? Don’t miss the chance to share your experience and complete this survey. Last chance to participate! ➡️bit.ly/3Ofhmpa @EuRRBone European Reference Network on Rare Bone Diseases Results will be shared at #iccbh2022 ISCBH

Would you like to play a pivotal role in strengthening the outreach of our network, facilitating a simplified access to Endo-ERN for patients and caregivers throughout Europe? Then we are looking for you! More info about the ERN Communication manager role buff.ly/3a40dQL

When in Rome , why not visit us at the ESPE conference 🇮🇹 Come meet and great our Endo-ERN team alongside @eurreca, ERICA and @EuRRBone at stand 14/15 ESPE 2022! #rareendocrine #ESPE2022 #healthcare #ERN

Check out this webinar with Dr. Jarod Wong from the University of Glasgow & Justus Kuijer. ow.ly/RQ6Q50Mi5XI #EndoERN #raredisease #ESEtalks #EndocrineConnections #rarediseases #endocrinology #endocrine #healthunion #eu4health #EUGlobalHealthStrategy #healthiertogether

This paper summarises the main results of European research activities related to DSD. #EndoERN #raredisease #ESEtalks #EndocrineConnections #rarediseases #endocrinology #endocrine #healthunion #eu4health #EUGlobalHealthStrategy #healthiertogether ow.ly/k9TX50Mh61p

In this webinar Prof. Tom Kurzawinski will talk about timing of surgery as well as its outcomes. ow.ly/Fy0950Mi6YZ #EndoERN #raredisease #EndocrineConnections #rarediseases #endocrinology #endocrine #healthunion #eu4health #EUGlobalHealthStrategy #healthiertogether

Learn more about rare disease registries at the upcoming webinar hosted by our #EuRRECa colleagues. Check out the full programme and reserve your place: ow.ly/uIko50MZ4ck #EndoERN #raredisease #endocrine #endocrinology #EuRRECa #registries #research

Free training - discover the differences between basket, umbrella, and platform trials and gain valuable insights into cutting-edge statistical methods for Rare Diseases Clinical Trials. Don't miss this incredible opportunity and sign up now! ow.ly/nssR50NgUTA

⁦Ana Luisa Priego⁩ presenting ⁦@eurreca⁩ and @eurr-bone at the ⁦RareEndoERN⁩ GA.

Don't forget our conference Advances in Achondroplasia opens tomorrow in Frankfurt. Esteemed faculty can't wait to welcome you. bit.ly/EAFconfTick

Attention researchers mark your calendar and register now! The next #ESETalks webinar features the #EuRRECa registries. ow.ly/zm6x50NGJrM #EndoERN #ESE #EuRRECa #ESPE #endocrinology #raredisease #endocrine #healthunion #eu4health

The @eurreca @EuRRBone team at LUMC Leiden; lucky to have such a great bunch of people to work with! @BotcentrumLUMC Ana Luisa Priego

Are you working interested in improving outcomes for patients with pituitary adenoma? The CAPITAL meeting is not one to be missed. Check out the full programme: ow.ly/k9Z750OPXK0