Maybe it isn't that chronic pain is hard to talk about so much as it is hard to listen to? How doctors respond to patients with chronic pain abetternhs.net/2023/02/21/in-…

Dr Jonathon Tomlinson Chronic pain is complex. The Advanced Pain Discovery Hub aims to understand more about chronic pain, collecting pain data into a data hub resource for research. Alleviate Pain Data Hub ADVANTAGE Visceral Pain Consortium CRIISP

Now live - our first James Lind Alliance survey! Help us discover and rank the top priorities for research in primary care management of chronic conditions that really reflect the needs of those most affected - full info and our 2 min survey can be found at primarycaretrials.ie/psp/

Does you or someone your care for manage chronic health condition(s)? Please complete and share our James Lind Alliance priority setting partnership survey at primarycaretrials.ie/psp/

After a rigorous 18 month process the results of the Guts UK Charity and James Lind Alliance priority setting partnership into the future of #IBS research are now available here gutscharity.org.uk/research/psps/…

New Comment - Black et al - Top 10 research priorities for #irritablebowelsyndrome: results of a James Lind Alliance priority setting partnership thelancet.com/journals/langa… #IBS #GITwitter Guts UK Charity BSG Chris Black Alexander Ford James Lind Alliance

The top 10 research priorities for #IBS include questions around how the classification of IBS (beyond change in stool form/frequency) should be approached in clinical trials + the best treatment(s) for symptoms such as faecal urgency, abdominal pain & gut sensitivity #gitwitter

The Top 10 Research Priorities for #ibs have been identified by listening to the voices of patients, families and HCPs. I have no doubt this important work will impact the future of IBS research and, in turn, improve the quality of life of people with IBS Guts UK Charity

Thanks Galway Advertiser for covering our priority setting partnership! We're excited to hear what questions the people of Galway have for future research into managing chronic health conditions - visit the link at the end of the article to add your thoughts advertiser.ie/galway/article…

Opinion: I now have a side hustle, writes the FT's Miranda Green. But it turns out it’s a job nobody wants - dealing with the admin that follows a bereavement on.ft.com/41CpJlq

Couldn't clip the whole thing, but anyone doubting the impact of #LongCovidKids just needs to listen to how brave Freya is, but also how sad 💔 Heartbreaking. We need to do so much more. Thanks Jamie Coulson and BBC Yorkshire for highlighting this incredibly important issue 🙏

Latest new research paper from Mental Health Policy Research Unit led by @KSaundersKCL on trauma-informed care link.springer.com/article/10.118…

Wanna know who's doing what in the world of #LongCovid & #MECFS? 🧐 Here are our databases, currently maintained my myself & Michael Alexander 👇 Have an area you particularly care about? Please drop me a message & contribute! 🙏 crunchme.notion.site/CrunchME-bdad5…

This is Sarah and Gemma, Wendy’s daughters. Our mum died peacefully early this morning. She wrote a blog post before she died so you can read about it from her perspective. Sarah and Gemma whichmeamitoday.wordpress.com/2024/02/22/my-…

Funded by Balvi, our macroeconomic modelling experts have partnered with Professor Ruairidh Milne to draw on the latest evidence unpacking trends in prevalence, effects on the ability to work and the costs of #LongCovid treatment in the UK by 2030. 3/4

Great to present our recent HRB PrimaryCare CTNI priority setting work with the James Lind Alliance at #UKSBM2024 today in Glasgow - if you're looking for our top research priorities for managing chronic conditions in primary care, visit primarycaretrials.ie/psp

The ‘gender health gap’ shortens lives and costs billions on.ft.com/4df6hls | opinion

We’ve added an important message to the latest news section on our website today regarding the IIH Intervention trial. iih.org.uk

Can I Butt In? episode 19 is now available to stream wherever you get your podcasts! You can tune in directly here > canibuttin.podbean.com/e/diverticular… Guts UK Charity James Lind Alliance #DiverticularDisease #Diverticula #Diverticulitis #Diverticulosis #ComplicatedDiverticularDisease

YOU can help to shape research! 📣 The first survey for the Diverticular Disease Priority Setting Partnership (PSP) is now live! Fill out the survey here: loom.ly/dXJEr7M (🧵1/4)