🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Help me raise awareness of #OvarianCancer by r/t signs & symptoms - Persistent Bloating Loss of Appetite or feeling full quickly Frequent or urgent need to urinate and/or constipation Pain or pressure in pelvic area #OvarianCancerAwarenessMonth Macmillan Cancer Support Marie-Louise Connolly 🩵

Our response to Department for Work and Pensions proposed changes to Personal Independence Payments (PIP): "Life costs more if you live with a neurological condition and support to manage extra costs, such as Personal Independence Payments (PIP) are vital.”

What are your experiences of using digital tools for healthcare? Share your thoughts with our NeuroLifeNow survey. Respond using the following link: neurolifenow.typeform.com/to/JIQtlMDR?ut… The questionnaire will close on the 31st of March. #survey #healthcare #digitaltools The Neurological Alliance

One Week to go! Just Include will launch its Northern Ireland programme including a handbook, accompanying workshops and digital accessibility campaign; digitAll. 📍Long gallery, Stormont 10:30am-12:30pm. Please share widely! Sign up here: eventbrite.co.uk/e/just-include…

Help improve rare disease trials! If you have a rare condition, are a parent/carer, or represent a group, join LEAP. Learn more and register for their webinar on March 28th here: newcastleuniversity.zoom.us/webinar/regist… Applications close April 11th 2025#RareDisease #LEAPPanel #MakeADifference

#WelfareNotWarfare DPAC Northern Ireland had a brilliant protest in Derry Northern Ireland pictures are here ⬇️📢📢📢📢

This is a concerning read. Timely access to diagnostic services is crucial for ensuring that people with neurological conditions receive accurate diagnoses and appropriate treatment before their symptoms worsen. This issue needs to be urgently addressed:

The form to apply for Personal Independence Payment (PIP) is about 20 pages, but don't be put off. 🧠 The Brain Charity has created a step-by-step video to guide you through the appeal process with confidence. 👉 Watch the full video and find more at: thebraincharity.org.uk/get-help/apply…

Weak Neck Muscles Found With Chiari Full PDF version; conquerchiari.org/library/index/…

Collaborative #PhD #RareDisease studentships available - findaphd.com/phds/project/l… findaphd.com/phds/project/d… findaphd.com/phds/project/l… Northern Ireland Kidney Research Fund NIRDP QUB MDBS #LoveQUB

When is the Council installing a #ChangingPlaces toilet at #HillsboroughForestPark to provide safe, dignified, hygienic and inclusive toileting facilities for disabled children & adults and some older people? #IncLOOsion #StillWaiting

How awesome is this? Just one of the informal snippets from today’s #RareDiseaseNI carer online support tool demo & discussions. #RareDisease QUB Public Health Public Engagement MHLS SPACE QUB QUB MHLS Faculty NIRDP THANK YOU everyone 🥳👇🏻

From the Guardian. 52% Labour plans will break communities. #welfarenotwarfare

Calling the NI rare disease community! What's your experience getting meds for a rare disease? Clinical trials? Home nurse visits? Share YOUR feedback via this short survey to shape future!  surveymonkey.com/r/92S2CNM  #RareDiseasesNI #HealthReview #PatientVoice #NIdoh

Anyone in Northern Ireland with a rare disease please take this NIRDP survey in regards to medication access. It’s vitally important to have your voices heard.

Stanford researchers found that some patients with symptoms of spinal CSF leaks can still get better, even if they don’t meet the usual rules for diagnosis. (1/5)

The Department has launched a public consultation on the final report of the Regional Review of Neurology services. ➡️Read more: health-ni.gov.uk/news/health-mi…

A shout out to AHPs from Northern Ireland, a rare opportunity to learn more about #Chiari #Syringomyelia #EDS in The Walton, Liverpool, Thur 3 July - AHP day . Talks on rehabilitation, pain management, physiotherapy management, holistic need. Shona Pryde

niNCA are seeking to hear from people living with a range of neurological conditions to gather responses relating to the Regional Review of Neurology Services report. niNCA are holding a series of consultation events - links below: