A new survey has been launched looking for experiences of transcutaneous vagus nerve stimulation by #pwme Please share widely, this is an international study so can be completed across the world! More information here: physiosforme.com/post/vagus-ner…

Putting it into Practice: What NICE ME/CFS means for GPs A thread ⬇️ doctorswith.me/nice-gp-update/

We are thrilled to have received such a large number of applications to join our final workshops, however this does mean we won't be able to select everyone. We're aiming to let all applicants know if they've been selected by the end of January. #MECFS #PrioritiseME #MyalgicE

Researchers from University of Liverpool are conducting a survey looking at the experiences of transcutaneous vagus nerve stimulation in people with ME/CFS. Information sheet (bit.ly/3Ig88pO) & survey (bit.ly/3tAw8Qd) Open 'til 11/2/22 #pwME #MECFS

“The letters/emails sent after each appointment summarising what was discussed are invaluable, thank you so much. Everything about the services at the Trust are so well thought out to meet all the needs of patients with ME. This immediately makes one feel welcome […],not alone.”

🔴 Great news: DecodeME opens for first participants this month. 🧬 Please RT! Phase 1 opens on January 31 for around 550 people. 🙏Thanks so much for your support. We can't wait to share the study with you! 💙 #MEcfs #PwME #MyalgicE #MillionsMissing decodeme.org.uk/great-news-dec…

The last years made us very wary of hugging. Yet, hugging is important esp for #pwME. It can reduce stress + improve our heart health. Today on #NationalHugDay we encourage you to let your dearest know that you’re there for them with a (virtual) hug lifting their spirits #MECFS

We are excited to announce that we will be merging with Action for ME and launching our new Action for M.E Healthcare Services on 1 February 2022. Find more details and information on our merger here: metrust.org.uk/our-merger-wit… #METrust #MECFS #pwME

An exciting few weeks ahead w this & DecodeME the ME/CFS Study launch. 2022 is the year for people with #ME #MECFS to finally receive the investment & focus they more than deserve. More research, more funding, more understanding, more healthcare…let’s end the ignorance, injustice & neglect

Encouraging healthy people to exercise is fine but please remember that exercise is contraindicated for people with #MECFS and many #LongCovid patients. #r4today

Have questions about the study? Join this month's webinar on Thurs morning: us02web.zoom.us/webinar/regist… (We'll post the recording and transcript when they're available.)

🔴Epstein-Barr virus (#EBV) can play a key role in causing #MS, a recent study showed. EBV is known to play a role in causing some cases of #MEcfs (through causing glandular fever). #DecodeME will look for evidence that genetic factors make EBV more likely to trigger ME/CFS.🧬

You're invited to our Thurs 10am webinar, with: ➡️launch update ➡️Pippa (she/her) @theslowlane_ME Vale explain how #MEcfs patients & carers help tell others about the study JOIN: *Zoom (Register at: us02web.zoom.us/webinar/regist…) *Live on Facebook (Recording available later.)

The 4th episode of our Learn About M.E podcast is now live. In this episode, we hear from medical students about their experience of learning about ME/CFS in their medical schools. buzzsprout.com/1717775?fbclid…

"I appreciate how kind, sympathetic and thoughtful the doctor was." #patientquotes #METrust #MECFS #pwME

We have received a request from a journalist exploring experiences of access to services and support during lockdown. Do you think you can help? If you can shed light on your experience, drop us a comment or email us at [email protected].

.Sonya Chowdhury (Webinar) Please do go to the M.E. charities like Action for ME and ME Association if you need help with getting a diagnosis of ME/CFS. If you do get a ME/CFS diagnosis (including following COVID-19 infection) you can take part in DecodeME. #LongCovid

We've now been able to send responses to all the applicants for the final workshops. We're so grateful to have so many excellent people joining us and wish we could have had all of you! These workshops are sure to create some fascinating dialogue.