
MDSUK Patient Support 🩸
@mds_uk
UK charity for blood cancer Myelodysplastic Syndromes & CMML Support, advocacy, info for patients/carers/staff. #MDS_UK
ID: 2209401973
http://www.mdspatientsupport.org.uk/ 22-11-2013 18:46:39
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1,1K Followers
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🩸 Although #MDS is very rare in younger people, their specific conditions and needs should not be neglected, explains Emma Paine(MDSUK Patient Support 🩸), herself very young at the time of her diagnosis: vimeo.com/874009168#MDSW… #Bloodcount #ThinkMDS

🙏 Thank you to all the amazing individuals who participated in interviews & supported #MDSWAD2023! Your dedication to spreading awareness about #MDS is truly inspiring. Together, we can make a difference in the lives of those affected. #thinkMDS #BloodCount MDSUK Patient Support 🩸 Hrvatska udruga leukemija i limfomi


In this issue, we look back on the MDS World Awareness Day and thank all contributors. You will also read about the changes in the MDSA steering committee, training on the new HTA regulations and information about a newly approved MDS treatment. MDSUK Patient Support 🩸 Hrvatska udruga leukemija i limfomi

Doing a bit of analysis & I really need more participants! Blood Cancer UK Blood Cancer UK Research Leukaemia UK Leukaemia Care MPN Voice MDSUK Patient Support 🩸 Myeloma UK ACLT Charity CLL Advocates Network CLL Advocates Network LymphomaAction please share the link below! Thank you very much! brookeshls.co1.qualtrics.com/jfe/form/SV_ah…




‘Don’t wait for your final 40 minutes’: Watch the inspiring TEDx talk by our patron Caitlin Limmer. Caitlin's story is not just one of triumph over adversity; it's a beacon of inspiration, urging us all to live life to the fullest, cherishing every moment. mdspatientsupport.org.uk/tedx-talk-2024…

The NHS has launched an urgent appeal for O blood-type donors following a cyber attack that has affected some of the largest hospitals in London. Sky's Science Editor Tom Clarke has the full story ⬇️ trib.al/unjm70D 📺 Sky 501, Virgin 602, Freeview 233 and YouTube


The key to achieving the best possible support & information for all those impacted by MDS & CMML is through close collaboration with specialists and researchers. Please consider joining our newly-created professional network. See link for more details. (mdspatientsupport.org.uk/contact-us-pat…)

Calling all MDS UK Patient members, still time to participate in our 2024 Members Survey. Your feedback is crucial. By sharing your thoughts, you help us understand what we're doing right and where we can serve you better. See link for more information. mdspatientsupport.org.uk/contact-us-pat…

Where angels fear to tread: Blood Cancer Awareness Month 2024 (3): revrebel.blogspot.com/2024/09/blood-… #thisisbloodcancer @TrinaCNS Vincent Rajkumar Richard Coles Shiv Smith 💙 Sharon Terry Blood Cancer UK Blood Cancer UK Research Vidhya Murthy Will Mcgookin Adrian Warnock Amer Zeidan MBBS,MHS عامر زيدان Race Against Blood Cancer



