
Lupus Europe
@lupuseurope
Lupus Europe is the umbrella association of currently 32 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
ID: 268798214
http://www.lupus-europe.org 19-03-2011 13:53:11
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Just had an inspiring #EULAR2025 briefing with the amazing Lupus Europe team! 🌟 No one told me there’d be 14,000 people 😳 Excited to bring back lots of info for the #lupus community. Bit nervous about my presentation, but can’t wait to connect with everyone! 🤝💜

NEW for #LUPUS2025—ERN ReCONNET 🇪🇺–SLICC–SLEuro expert consensus on the therapeutic management of rare systemic #lupus erythematosus manifestations bit.ly/3YXEmAO Free to read with registration on lancet.com (also free) Laurent ARNAUD #SLE


✅ The @ERN_RECONNET - #SLICC - @SLEUROSOCIETY consensus on RARE #LUPUS MANIFESTATIONS has just been published in The Lancet Rheumatology (FREE LINK: authors.elsevier.com/a/1l8og9UBHvvg…) and it's the opportunity to ask YOU this very interesting question: how would YOU define rare in #medicine?




🎥 In today’s #PROs episode, Francesca Marchiori from Lupus Europe reflects on 30+ years living with lupus – and why patient-reported outcomes matter. At #3TR, we belive it is important to highlight patients’ real-life experiences. 👉 Watch the interview: 3tr-imi.eu/research/patie…


✅ What do 4525 #lupus patients from 36 European countries think is the OPTIMAL TREATMENT GOAL in #SLE? How do they assess the patient/physician relationship and what is missing the most? Check Lupus Europe 2024 Swiss knife survey (#openaccess) at:authors.elsevier.com/a/1l9h%7E5alwY…


‼️Lupus patients’ voice is online! 📣 So proud to have been part of this amazing work in colllaboration with Laurent ARNAUD and Lupus Europe surveying the unmet needs of people living with #lupus!

✅ Check this very important study about the #burden of #lupus 🦋 according to the #patient perspective 🏥 Lupus Europe reports on the most neglected #SLE manifestations, disease #burden, frequency of #flare, satisfaction with #treatment OPENACCESS at: authors.elsevier.com/a/1l9h%7E5alwY…



🌟 Being a finalist in the Made WITH Patients 2025 Made with Patients Awards is recognition of LupusGPT’s mission to empower the #lupus community with: ✅ Reliable, evidence-based information about lupus ✅ Free access ✅ Multilingual support to break language & literacy barriers

