Lupus Europe (@lupuseurope) 's Twitter Profile
Lupus Europe

@lupuseurope

Lupus Europe is the umbrella association of currently 32 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

ID: 268798214

linkhttp://www.lupus-europe.org calendar_today19-03-2011 13:53:11

6,6K Tweet

4,4K Followers

357 Following

Roxana González (@roxosler) 's Twitter Profile Photo

Great talk by Dr. Morand on the future of drug trial design in SLE. TRM-SLE is a promising multi-domain outcome measure that integrates patient input and defines meaningful clinical thresholds. Towards more inclusive and realistic trials #LUPUS2025

Great talk by Dr. Morand on the future of drug trial design in SLE. TRM-SLE is a promising multi-domain outcome measure that integrates patient input and defines meaningful clinical thresholds. Towards more inclusive and realistic trials #LUPUS2025
Ricky Chotai (he/him) (@ricky_chotai) 's Twitter Profile Photo

Just had an inspiring #EULAR2025 briefing with the amazing Lupus Europe team! 🌟 No one told me there’d be 14,000 people 😳 Excited to bring back lots of info for the #lupus community. Bit nervous about my presentation, but can’t wait to connect with everyone! 🤝💜

The Lancet Rheumatology (@thelancetrheum) 's Twitter Profile Photo

NEW for #LUPUS2025—ERN ReCONNET 🇪🇺–SLICC–SLEuro expert consensus on the therapeutic management of rare systemic #lupus erythematosus manifestations bit.ly/3YXEmAO Free to read with registration on lancet.com (also free) Laurent ARNAUD #SLE

NEW for #LUPUS2025—<a href="/ern_reconnet/">ERN ReCONNET 🇪🇺</a>–SLICC–<a href="/SLEuroSociety/">SLEuro</a> expert consensus on the therapeutic management of rare systemic #lupus erythematosus manifestations bit.ly/3YXEmAO
Free to read with registration on lancet.com (also free)
<a href="/Lupusreference/">Laurent ARNAUD</a> #SLE
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

🚨🚨🚨 AHHH we have just been granted a 🔓 FREE 50-DAY ACCESS LINK to the expert #consensus on the therapeutic management of RARE systemic #lupus erythematosus manifestations Can you please re-tweet the link so that a MAXIMUM have access for free 🔄 LINK: authors.elsevier.com/a/1l8og9UBHvvg…

🚨🚨🚨 AHHH we have just been granted a 🔓 FREE 50-DAY ACCESS LINK to the expert #consensus on the therapeutic management of RARE systemic #lupus erythematosus manifestations
Can you please re-tweet the link so that a MAXIMUM have access for free 🔄 LINK: authors.elsevier.com/a/1l8og9UBHvvg…
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ The @ERN_RECONNET - #SLICC - @SLEUROSOCIETY consensus on RARE #LUPUS MANIFESTATIONS has just been published in The Lancet Rheumatology (FREE LINK: authors.elsevier.com/a/1l8og9UBHvvg…) and it's the opportunity to ask YOU this very interesting question: how would YOU define rare in #medicine?

✅ The @ERN_RECONNET - #SLICC - @SLEUROSOCIETY consensus on RARE #LUPUS MANIFESTATIONS has just been published in <a href="/TheLancetRheum/">The Lancet Rheumatology</a> (FREE LINK: authors.elsevier.com/a/1l8og9UBHvvg…) and it's the opportunity to ask YOU this very interesting question: how would YOU define rare in #medicine?
EULAR (@eular_org) 's Twitter Profile Photo

🧬Join the "Beyond CAR-T Cells: B Cell Targeting Therapies" session at #EULAR2025 💥Discover new B cell–targeting agents 📅Saturday, 14 June 2025 | 09:00 CEST | Room A2. For more information 👉 bit.ly/4jxLgV5 #EULAR #Rheumatology

Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

For #lupus it is interesting to have a look at the #thrombocytopenia item of the #SLEDAI2k ➡️ 99,999 Plt = thrombocytopenia ➡️ 100,001 Plt = NO thrombocytopenia Difference btw these 2 situations is minimal, and none of the 2 impact the way patients feel function and survive.

For #lupus it is interesting to have a look at the #thrombocytopenia item of the #SLEDAI2k
➡️ 99,999 Plt = thrombocytopenia
➡️ 100,001 Plt = NO thrombocytopenia
Difference btw these 2 situations is minimal, and none of the 2 impact the way patients feel function and survive.
3TR-IMI (@3tr_imi) 's Twitter Profile Photo

🎥 In today’s #PROs episode, Francesca Marchiori from Lupus Europe reflects on 30+ years living with lupus – and why patient-reported outcomes matter. At #3TR, we belive it is important to highlight patients’ real-life experiences. 👉 Watch the interview: 3tr-imi.eu/research/patie…

EULAR (@eular_org) 's Twitter Profile Photo

🧬 Join the session "Not All About B Cells: Myeloid-Related Inflammation in Lupus" at #EULAR2025 Dive into the other key players in lupus pathogenesis beyond B cells! 📅 Wednesday, 11 June 2025 | 14:15 CEST | Room A3. For more information 👉 bit.ly/4jxLgV5 #EULAR

Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ What do 4525 #lupus patients from 36 European countries think is the OPTIMAL TREATMENT GOAL in #SLE? How do they assess the patient/physician relationship and what is missing the most? Check Lupus Europe 2024 Swiss knife survey (#openaccess) at:authors.elsevier.com/a/1l9h%7E5alwY…

✅ What do 4525 #lupus patients from 36 European countries think is the OPTIMAL TREATMENT GOAL in #SLE? How do they assess the patient/physician relationship and what is missing the most?
Check <a href="/LupusEurope/">Lupus Europe</a> 2024 Swiss knife survey (#openaccess) at:authors.elsevier.com/a/1l9h%7E5alwY…
elisabetta chessa (@elis_chessa) 's Twitter Profile Photo

‼️Lupus patients’ voice is online! 📣 So proud to have been part of this amazing work in colllaboration with Laurent ARNAUD and Lupus Europe surveying the unmet needs of people living with #lupus!

Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ Check this very important study about the #burden of #lupus 🦋 according to the #patient perspective 🏥 Lupus Europe reports on the most neglected #SLE manifestations, disease #burden, frequency of #flare, satisfaction with #treatment OPENACCESS at: authors.elsevier.com/a/1l9h%7E5alwY…

✅  Check this very important study about the #burden of #lupus 🦋 according to the #patient perspective 🏥 <a href="/LupusEurope/">Lupus Europe</a> reports on the most neglected #SLE manifestations, disease #burden, frequency of #flare, satisfaction with #treatment
OPENACCESS at: authors.elsevier.com/a/1l9h%7E5alwY…
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ TODAY is the start of SLEuro Advanced #Lupus workshop #6, in Torino, Italy but you can already register for the next meeting, which will be in the beautiful city of Tallinn, Estonia 12-13 Sept 2025 ⬇️

Lupus Europe (@lupuseurope) 's Twitter Profile Photo

🌟 Being a finalist in the Made WITH Patients 2025 Made with Patients Awards is recognition of LupusGPT’s mission to empower the #lupus community with: ✅ Reliable, evidence-based information about lupus ✅ Free access ✅ Multilingual support to break language & literacy barriers

🌟 Being a finalist in the <a href="/PFMDwithPatient/">Made WITH Patients</a> 2025 Made with Patients Awards is recognition of LupusGPT’s mission to empower the #lupus community with:

✅ Reliable, evidence-based information about lupus
✅ Free access
✅ Multilingual support to break language &amp; literacy barriers
Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ AMAZING discussions this morning at SLEuro 6th Advanced #Lupus Workshop in Torino, Italy. Thanks to our host Pr Mariele Gatto and the amazing team from scribing.it we will keep wonderful graphical memories ⬇️ of these high-level debates 👍💪

✅ AMAZING discussions this morning at <a href="/SLEuroSociety/">SLEuro</a> 6th Advanced #Lupus Workshop in Torino, Italy. Thanks to our host Pr Mariele Gatto and the amazing team from scribing.it we will keep wonderful graphical memories ⬇️ of these high-level debates 👍💪