Lucy Allen (@lucyallen_cft) 's Twitter Profile
Lucy Allen

@lucyallen_cft

Director of Research & Healthcare Data @CFTrust. All views are my own

ID: 1222826774196838400

calendar_today30-01-2020 10:24:24

42 Tweet

90 Followers

127 Following

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

No more sleeps to #CFWeek! We will be sharing stories of day-to-day life with cystic fibrosis and would love you to share yours too by using the hashtag #WeWontStop cysticfibrosis.org.uk/get-involved/f…

No more sleeps to #CFWeek! We will be sharing stories of day-to-day life with cystic fibrosis and would love you to share yours too by using the hashtag #WeWontStop cysticfibrosis.org.uk/get-involved/f…
Diabetes UK Research (@duk_research) 's Twitter Profile Photo

Diabetes that develops in atypical ways has been identified as an under-researched area of importance by our DRSGs. That’s why we’re partnering with Cystic Fibrosis Trust to fund research exploring #diabetes, #cysticfibrosis and cystic fibrosis-related diabetes #CFRD diabetes.org.uk/research/for-r…

Diabetes that develops in atypical ways has been identified as an under-researched area of importance by our DRSGs. That’s why we’re partnering with <a href="/cftrust/">Cystic Fibrosis Trust</a> to fund research exploring #diabetes, #cysticfibrosis and cystic fibrosis-related diabetes #CFRD diabetes.org.uk/research/for-r…
Medicines Discovery Catapult (@meddisccat) 's Twitter Profile Photo

📢Our funding programme with We Share is now open for applications – early-stage medicines discovery start-ups across Europe working in psychiatry, hearing of cystic fibrosis infections, get in touch now ⬇️ ow.ly/p7nw50GPxqM #wsxmdc #funding

📢Our funding programme with <a href="/WeShareImpact/">We Share</a> is now open for applications – early-stage medicines discovery start-ups across Europe working in psychiatry, hearing of cystic fibrosis infections, get in touch now ⬇️
ow.ly/p7nw50GPxqM

#wsxmdc #funding
Question CF (@questioncf) 's Twitter Profile Photo

Good morning everyone! As we get ready for launching the ‘refresh’ survey (12 noon GMT today) we thought we’d set up a Facebook page please give us a follow, thank you! facebook.com/questioncf #questioncf

Question CF (@questioncf) 's Twitter Profile Photo

We’re also on Instagram! You’ll find us at @question_cf where you’ll see we’ve put up all the questions that made the Top20 last time. Please give us a follow and an RT. #questioncf #cysticfibrosis

National Institute for Health and Care Research (@nihrresearch) 's Twitter Profile Photo

A huge thank you to every one of the 5,000 participants who've so far taken part in this vital #COVID19 antiviral study. If you're eligible and test positive then please consider taking part! #Research #ClinicalTrials #PANORAMIC

Question CF (@questioncf) 's Twitter Profile Photo

Of the 728 surveys completed, only 20% were from health care professionals, with physios topping the chart (thank you all!) closely followed by respiratory doctors. We need to hear from more of you, please spare us 5 minutes of your time to tell us what you think. #questioncf

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

Your genetic data is read from your blood sample. The sample isn’t retained or stored, but the data is added anonymously to the CF BioResource database. Researchers will invite you to take part in research studies based on your genetic data. #Future4CF ow.ly/TbI350I99fH

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

ICYMI: registration for UKCFC 2022 is now open! The UK's biggest conference dedicated to all aspects of clinical care and research in the field of #cysticfibrosis is back. 🔬 Nab your tickets today! ➡️ ow.ly/g8uG50IyvsR

ICYMI: registration for UKCFC 2022 is now open! 

The UK's biggest conference dedicated to all aspects of clinical care and research in the field of #cysticfibrosis is back. 🔬

Nab your tickets today!

➡️ ow.ly/g8uG50IyvsR
Alex Horsley (@alexrhorsley) 's Twitter Profile Photo

Do you have CF but are not taking Kaftrio? We need your help! Cystic Fibrosis Trust hosting an online focus group next Tues (12th July) pm, to understand what adult pwCF understand about trials of new treatments and how to make these better. For info email: [email protected]

Alan Smyth (@alanrsmyth) 's Twitter Profile Photo

Interested in doing a PhD in MRI imaging? Join the GRAMPUS-CF Strategic Research Centre and help us understand and treat the gut symptoms of cystic fibrosis. bit.ly/3eFYjrz Evidence Based Child Health cf/Aware Cystic Fibrosis Trust Question CF

Question CF (@questioncf) 's Twitter Profile Photo

We’ve had a fantastic response to the ranking survey so far, particularly from the patient/carer community who have provided 80% of the responses. However, we need to hear from more of you, please share fare and wide surveymonkey.co.uk/r/qCFsurvey2

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

The countdown is on! You only have 3 more days to let us know your CF research priorities in the second Question CF survey. Head to the link below to have your say now. 💬 ❓ ow.ly/LJnq50L68iW

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

Carols by Candlelight is returning to celebrate its 20th anniversary on Thursday 15 December and tickets are now available! We’d love for you to join us at St Luke's Church London to kick start that festive feeling. cysticfibrosis.org.uk/carols #fundraising #festive #christmas

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

Funding and supporting research that will benefit everybody with CF is at the heart of everything we do. Our 2022 Research Impact Report gives some examples of the difference we’re making together. As one united and unstoppable community. ow.ly/hTcC50LtfsS

Funding and supporting research that will benefit everybody with CF is at the heart of everything we do. Our 2022 Research Impact Report gives some examples of the difference we’re making together. As one united and unstoppable community. ow.ly/hTcC50LtfsS
Gwyneth Davies (@daviesgwyneth) 's Twitter Profile Photo

Perspective article “Future Therapies for Cystic Fibrosis” published today in Nature Communications (Open access)! Here we look to the future of cystic fibrosis therapies and consider priorities for future research and development. rdcu.be/c5chV

Lucy Allen (@lucyallen_cft) 's Twitter Profile Photo

Do you have an interest in ageing research? If so, register your interest to help us better understand how we "manage an ageing population with cystic fibrosis", one of the top 10 research priorities for the CF community.

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

As part of our 60th anniversary awards, we would love for you to put a nomination in to celebrate our wonderful researchers – it might be an inspirational student, mentor, peer or team-mate. The categories are Clinical Research and Basic Science. ➡️ cysticfibrosis.org.uk/get-involved/s…

As part of our 60th anniversary awards, we would love for you to put a nomination in to celebrate our wonderful researchers – it might be an inspirational student, mentor, peer or team-mate.

The categories are Clinical Research and Basic Science.

➡️ cysticfibrosis.org.uk/get-involved/s…