
Leah
@leahedscn2a
Founder, Executive Director and Former President of the FamilieSCN2A Foundation. Mom and rare disease advocate of epilepsy and autism, SCN2A-related disorders.
ID: 1009192591609516033
http://scn2a.org 19-06-2018 21:53:58
469 Tweet
951 Followers
1,1K Following




Very excited to see tbe St. Jude Research PTNI Dr. Heather Mefford @hcmefford.bsky.social making progress towards precision medicine for rare neuro diseases like #SCN2A 💜💙💚



Looking forward to all the posters this year!! @NeuroBender Yang Yang & Lab Dennis Lal @KearneyLab Ingo Helbig Chris Ahern DasMachine-NU





Have you heard of the UPenn Million Dollar Bike Ride by ODC?? Please help us to continue funding amazing research to #cureSCN2A charity.pledgeit.org/f/71UKiEvDHM

Please consider helping us to continue to fund amazing research to #cureSCN2A. Even a small gift would mean a lot to me and to FamilieSCN2A charity.pledgeit.org/f/71UKiEvDHM


So incredibly excited for the #SCN2A Italia and Germany groups for being awarded CZI Science RAO grant!


Write a review of FamilieSCN2A Foundation on GreatNonprofits greatnonprofits.org/org/familiescn…

Have you worked with the FamilieSCN2A Foundation? Write a review for us on GreatNonprofits greatnonprofits.org/org/familiescn… Thank you!