Thankful for the amazing Children's Health Neuromuscular Team and the generous Dallas community that raised $750,000 at Muscular Dystrophy Association Uncork a Cure

I'm participating at MDA Muscle Walk. Join my team or donate to support us! do.nr/y0my50 via DonorDrive

Dallas Muscular Dystrophy Association Walk with the Children's Health Neuromuscular team! 🎈💪🏻

You did it!   We’ve now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states, with the addition of Hawaii at the start of 2024. Thank you for everything you do to help improve the lives of everyone impacted by SMA.

What a wonderful #CarrellKrusen. From thought-provoking presentations to valuable insights, your contributions made this event special. Pleasure seeing everyone. Shoutout to Susan Iannaccone, Jaya Trivedi, Kaitlin Batley, & the team for their incredible work behind-the-scenes!

Proud of our team and excited to share our review of pediatric patients with Myasthenia Gravis cared for at UT Southwestern Medical Center and Children's Health UTSWPedsNeuro “Juvenile Myasthenia Gravis in North Texas: Clinical Features, Treatment Response and Outcomes” authors.elsevier.com/c/1i--839uenmu…

PPMD is excited to share that a consensus statement providing insights from clinicians who care for patients with #Duchenne into the current therapeutic landscape and access to novel therapies has been published in the Annals of Child Neurology Society. parentprojectmd.org/consensus-stat…

doi.org/10.1002/cns3.2… Commentary on DMD treatment from treating physicians across the country 💪🏻

Immune-mediated myositis following gene therapy for Duchenne muscular dystrophy: a case report Our experience at UTSW 💊💪🏻 link.springer.com/article/10.100…

So thankful to have been a part of MDA camp this year! What an adventure with the best med shed crew and most amazing campers 💪🏼🏕️ Muscular Dystrophy Association Children's Health

Excited to get our center’s experience with neurology e-consults published! A useful strategy to address the growing neurological demand, especially in a safety-net clinic. We hope this paper can be a blueprint for other institutions to implement. journals.sagepub.com/eprint/WHYFG7P…

So proud to be selected as one of D Magazine’s 2024 Best Doctors!

Thanks Muscular Dystrophy Association for hosting a wonderful ENGAGE symposium in our community. Proud to work with such amazing women on the Neuromuscular team Shaida Khan UTSW Neurology UT Southwestern O'Donnell Brain Institute UTSWPedsNeuro

Had a great time being part of a panel discussion on developing our adult care model for DMD pts at Parkland. We work with our amazing peds team to transition care to our adult multidisciplinary clinic. So grateful to see this program come to fruition UTSW Neurology Parkland Health

Calling all neuromuscular experts! Join us at the 47th Annual Carrell Krusen Symposium from Feb 20-21, 2025. Interact with a wonderful panel and discuss genotype/phenotype correlation for congenital myopathies. Register Today: bit.ly/4g32SGh #NMSK

There's still time to register for the 47th Annual Carrell Krusen #NMSK Symposium. 🌟 Alan H. Beggs, Ph.D. joins us as the keynote speaker from Harvard Medical School 🌟 Register Today: bit.ly/4g32SGh

Optimizing TK2d Care Through a Multidisciplinary Approach reachmd.com/programs/neuro… via ReachMD UTSWPedsNeuro

So proud of our team at UTSWPedsNeuro MDA Study Highlights Lack of Psychosocial Care Services for Duchenne Muscular Dystrophy neurologylive.com/view/mda-study… via NeurologyLive®

Amazing front page news today, our very own Dr. Kaitlin Batley continues to pioneer treatment for rare genetic disorders National Organization for Rare Disorders (NORD) #NARS1 All credits to Dallas Morning News

11 yr old Marley was born with a mutation in a gene called NARS1, which is involved in making a protein critical to the central nervous system. Later this year, she may become the first person in the world to receive personalized therapy for her disease. bit.ly/3SI4jAO