Last chance! Only 2 days left to pre-order your limited-edition RARE sweatshirt! 💜 Support #RareDiseaseDay & raise awareness for #KDM5C and all #rare diseases. Proceeds benefit the KARES Foundation. Order now at customink.com/fundraising/RD… #ShareYourColors #ShowYourStripes 🦓

Join us for the KARES Virtual Research Symposium on March 1, 2025! 🧬⁠ ⁠ Secure your spot NOW to stay up-to-date on the latest information about KDM5C genetic variants and their implications. 💚 ⁠ ⁠ Register today at our 🔗LINK IN BIO🔗 or bit.ly/3W9UAW1

Rare Disease Day is on February 28! Show your support for over 300 million people worldwide living with a rare disease. Share, educate, and stand in solidarity! Wear your RARE sweatshirt to our virtual research symposium on March 1 to celebrate Rare Disease Day with us! 💙💜

Reminder: Don't forget to register for our upcoming Family Education Series on Understanding Pathological Demand Avoidance (PDA) in Neurodivergent Youth featuring Dr. Alex Klein, PsyD! Tues, Feb 18 | 4 PM PST / 7 PM EST on Zoom Register at: us06web.zoom.us/meeting/regist…

💜 We're just 12 days away from Rare Disease Day on February 28! Join us in raising awareness and showing support for the rare disease community. Every voice matters! 🌍 Don't forget to show support by wearing your purple and green!

Meet the Speakers for the upcoming Virtual Research Symposium on March 1, 2025! 🧬 If you haven’t already, secure your spot now to get the latest information about KDM5C genetic variants. Register at: bit.ly/3W9UAW1

⏳ One week to go! Rare Disease Day is on February 28—a day to raise awareness and show support for the 300 million people living with a rare disease worldwide. 💜💙 Let’s make an impact together!

Rare Disease Day is just 4 days away! This February 28—the rarest day of them all—let’s stand together to support the 300 million people worldwide living with a rare disease. 💜💙 Every voice, every action makes a difference! Wear your purple and green to spread KDM5C awareness!

💙Today is Rare Disease Day—the rarest day of them all! Today is a day to celebrate as we raise awareness for 300+ million people living with rare diseases. Don’t forget to rep your Rare Disease sweatshirts! Together, we shine a light on rare diseases and share our colors!💜💚🌍

Check out this story featuring one of our #KDM5C kiddos! #RareDiseaseAwareness #DisabilityRights

Thank you to everyone that joined us for the 2025 KARES Research Symposium! 💜💚 We had a wonderful turn out with 57 attendees! 🧬 Did you miss it? Email [email protected] if you are interested in watching a recording of the symposium.

🗓 March 18 | 11 AM ET | LIVE on Zoom Not sure if you’ve enrolled in RARE-X? Need a refresher? Join our LIVE Q&A with Melissa McNeilly & Heather Cofer! 📊 Your data fuels KDM5C research while staying in your control. 🔗 Register now: us06web.zoom.us/.../register/0…

Want to stay up-to-date with the KARES Foundation? 💜 Sign up for our email newsletter to receive the latest KARES Foundation news and events. kares.foundation/subscribe

We’d love to highlight your story in our Family Spotlight! Your journey matters, and by sharing it, you can inspire and connect with others in the KDM5C community. Click the link below to fill out the questionnaire to celebrate KDM5C families like yours: kares.foundation/family-spotlig…

✅ Wrapping up our Board Strategic Planning meeting in Ann Arbor, MI—future site of our 2026 Family & Science Conference! 💙 Thanks to Michigan Medicine, our members & the Iwase lab for hosting us. Excited for big strides in KDM5C advocacy, research & support in 2025 and beyond! 🙏

🌍💙 Celebrating World Autism Awareness Day! Many individuals diagnosed with KDM5C-related disorders also have an autism diagnosis. Let’s spread kindness, understanding, and acceptance—today and every day!

✨Meet Sheldon - this month’s Family Spotlight! ✨ Learn about his favorite hobbies to the ways KDM5C has shaped his journey, Sheldon’s story is inspiring. 💜💚 You can also read it at: kares.foundation/family-spotlig…

Registration and sponsorships are now OPEN for the KARES 5K Sept 27-28, 2025! This year’s theme is MY RACE, MY PACE. You can move ➡️in any way 🏃🏽🚴🏻‍♀️🧑🏼‍🦽 ➡️at any pace 🐌🚀 ➡️from anywhere! 🌎 Register today to celebrate KDM5C Awareness Day! runsignup.com/kares

Let’s talk consent—because how your data is used is YOUR decision When you join the KDM5C data program through RARE-X, you control your information IF you want researchers to be able to access your data, revisit your consent form & check “General Research” not just “Biomedical”

Save the Date!!🗓️ June 26-28 2026🌟 We are SO excited for our second Family and Science Conference!! This global gathering will be held in Ann Arbor, Michigan this year! We look forward to seeing you for a weekend of unforgettable education and community building.💜